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Last updated on April 23, 2014 at 16:13 EDT

The Steven J. Vertuccio Memorial Ride for Cystic Fibrosis Fuels National Attention

September 7, 2011

BOSTON and PELHAM, N.H., Sept. 7, 2011 /PRNewswire/ – The Steven J. Vertuccio Memorial Ride for Cystic Fibrosis, now in its sixth year, continues to raise the bar in exercise excellence. In 2010 The Adult Cystic Fibrosis (CF) Program at Children’s Hospital Boston and Brigham and Women’s Hospital kicked-off the Steven Vertuccio Wellness Program, designed to encourage patients to exercise during their hospitalizations and as outpatients in order to improve their conditioning and quality of life.

“The Adult CF Program at Children’s Hospital Boston and Brigham and Women’s Hospital is very excited about its relationship with the Steven J. Vertuccio Memorial Ride for Cystic Fibrosis and the development of the Steven Vertuccio Wellness Program. Steven continues to be an inspiration for all of us and it is only through our collaboration with his devoted family that this exercise protocol is available for our patients. Even as we enrolled our first patient earlier this summer, our program has already received national attention. The excitement has led to guidance from exercise experts across the cystic fibrosis community to help further our program. It has also become our main quality improvement objective with support from the Cystic Fibrosis Foundation’s Leadership and Learning Collaborative; a nationally recognized quality improvement initiative. Our goal is to help patients incorporate exercise into their regular routine while closely monitoring for improvement in their exercise capacity, lung function, quality of life, as well as decrease in rate of exacerbations, hospitalizations, and more,” said Dr. Carolyn E. Donovan of the Division of Respiratory Diseases at Children’s Hospital Boston.

The program features equipment produced by Sci-Fit with Fit-Key technology, which allows clinicians to download and analyze exercise data collected from patients as they exercise. The data will be stored on an electronic “key”, protected as with any other medical record that resumes with a patient’s preferred settings during subsequent sessions – allowing for improved continuity of care in both the inpatient and outpatient setting.

“The Steven Vertuccio Wellness Program will soon be the standard by which other exercise programs are measured and it thrills me to know that we will be honoring Steven each and every time a patient benefits from the program,” said Dr. Ahmet Uluer, director of the Adult Cystic Fibrosis Program at Children’s Hospital Boston and Brigham and Women’s Hospital.

The 6th Annual Steven J. Vertuccio Memorial Ride for Cystic Fibrosis will be held on Saturday September 10, 2011. Registration begins at 9:00 a.m. at Pro-Fitness Plus in Billerica, Mass.; the 80-mile ride travels through back roads of New England and commences at the Tewksbury Elks for a family-friendly barbeque, complete with live music, raffles and many great stories about Steve.

“It’s hard to believe we are now in our sixth year, it seems like just yesterday we had our inaugural ride in 2006,” said Laurie Vertuccio, SJV Memorial Ride executive director. “It thrills me to announce that the adult CF programs at Children’s Hospital Boston and Brigham and Women’s Hospital have gained national attention for the Steven Vertuccio Wellness Program. Steven continues to be an inspiration to everyone living with CF and we are ecstatic to be associated with, and help fund, such a remarkable program.”

About Steven J. Vertuccio Memorial Ride for Cystic Fibrosis

The Steven J. Vertuccio Memorial Ride for Cystic Fibrosis is an annual event that raises money for the Cystic Fibrosis Center at Children’s Hospital Boston. Additional information about SJV Memorial Ride for CF is available by contacting, Laurie Vertuccio at (781) 888-0439, laurie@sjvride.com or online at www.sjvride.com

About Children’s Hospital Boston

Children’s Hospital Boston, an internationally renowned center for medical research and treatment, is one of the only pediatric hospitals nationwide that focuses on pairing world-class research with clinical resources to develop novel therapies to treat and cure children. Many of the hospital’s scientific advancements have far-reaching implications for treating adults, too – they target diseases including prostate and breast cancer, macular degeneration, and Alzheimer’s. For more information or to donate visit: www.childrenshospital.org.

SOURCE Steven J. Vertuccio Memorial Ride for Cystic Fibrosis


Source: PR Newswire