Cystic Fibrosis Foundation Supporters Ask Congress to Ensure Health Coverage for CF Kids
Posted on: Friday, 3 August 2007, 09:23 CDT
BETHESDA, Md., Aug. 3 /PRNewswire-USNewswire/ -- This week, more than 2,500 Cystic Fibrosis Foundation supporters asked Congress to expand health coverage for children with cystic fibrosis.
CF volunteers wrote their elected officials to convey the importance of the State Children's Health Insurance Program (SCHIP), which ensures that many children with cystic fibrosis have access to the health care and treatments that they need. Congress is considering reauthorization of the program.
During the Senate debate, the impact of these letters was illustrated when Senator Patty Murray (D-WA) spoke of the importance of SCHIP by sharing the story of a 9-year-old child with CF, Sydney Lee.
Standing beside a photograph of Sydney, and reading aloud from a letter written by Sydney's mother, Senator Murray spoke about the importance of health coverage for children with chronic diseases. The Senate is expected to vote on this legislation by the end of the week.
Cystic fibrosis was also a part of the discussion in the U.S. House of Representatives. On Wednesday, the House passed its bill to reauthorize SCHIP with language to include cystic fibrosis as part of a new Pediatric Health Quality Measurement Program. The program will develop and evaluate quality measures and best practices for the treatment of diseases like CF.
SCHIP is only one of many important legislative issues that have tremendous significance for people with cystic fibrosis. By becoming an advocate with the Cystic Fibrosis Foundation, volunteers and supporters can directly influence the policies that help in the fight against cystic fibrosis. To learn more about becoming an advocate, visit http://www.cff.org/GetInvolved/Advocate/.
About the Cystic Fibrosis Foundation
The Cystic Fibrosis Foundation is the leading organization devoted to curing and controlling cystic fibrosis. Headquartered in Bethesda, Md., the Foundation funds CF research, has 80 chapter and branch offices throughout the country, and supports and accredits a nationwide network of 115 CF care centers, including 94 adult programs, which provide vital treatments and other CF resources to patients and families. For more information, visit http://www.cff.org/.
Cystic Fibrosis Foundation
CONTACT: Jason Ranville, Public Policy Coordinator of Cystic FibrosisFoundation, +1-301-841-2617
Web site: http://www.cff.org/
Source: PRNewswire-USNewswire
Related Articles
- CW's 7th Heaven Actress Mackenzie Rosman to Visit Birmingham Area High School to Honor Cystic Fibrosis Foundation Fundraising
- Cystic Fibrosis Foundation to Receive Prestigious Health Care Award
- Cystic Fibrosis Foundation Web Site Rated 'Best of the Web'
- GeneGo and the Cystic Fibrosis Foundation Collaborate to Advance Understanding of Cystic Fibrosis
- FoldRx and Cystic Fibrosis Foundation Therapeutics Announce $22 Million Collaboration
- Cystic Fibrosis Foundation Launches Ambitious Effort to Increase Participation in Clinical Trials
- Copernicus to Receive Increased Support From Cystic Fibrosis Foundation Therapeutics to Further Development of Its Non-Viral Gene Therapy for Cystic Fibrosis
- Cystic Fibrosis Foundation Launches New Web Site
- Predix Pharmaceuticals Announces Milestone Payment From Cystic Fibrosis Foundation Therapeutics; Milestone is Part of a Research, Development and Commercialization Agreement
 |
 |
User Comments (0)
RSS Feeds