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Last updated on April 20, 2014 at 21:20 EDT

May is Cystic Fibrosis Awareness Month

April 30, 2012

Every Canadian Called on to Fight for People Struggling with CF 

TORONTO, April 30, 2012 /CNW/ – Tomorrow marks the first day of May, Cystic Fibrosis (CF) Awareness Month. Throughout the month, Cystic Fibrosis Canada shines the spotlight on
4,000 Canadians living with this fatal genetic disease, by raising
awareness and funds for life-saving CF research and care. 

“Every week, two children are diagnosed and one person dies from this
devastating disease in Canada,” said Maureen Adamson, CEO of Cystic
Fibrosis Canada. “Too many young lives are cut short by cystic
fibrosis; almost half of the sufferers who die do not live to see their
25(th) birthday. We continue to courageously invest in innovative CF research
and care, but we can only do this with the generous support of
Canadians. May is Cystic Fibrosis Awareness Month and I invite everyone
to champion and support our great cause.”

Ryan Morrissette, a dedicated CF Champion, is a 17-year-old dancer and
member of the B.C. hip-hop dance crew Freshh. Despite being diagnosed
with cystic fibrosis at the age of two, Ryan is embarking on a
successful dance career thanks to improvements in CF treatments and
care. When diagnosed, his family was told he would not live past his
eighth birthday.

“People with CF like me, never get a day off from hours of therapy and
dozens of medications that keep us breathing,” said Ryan. “I hope every
Canadian will join us by walking and sponsoring the Great Strides walk(TM) on Sunday, May 27( th) in almost 70 places across Canada. And if you’re in B.C., come on out
to Great Strides in New Westminster and watch me and Freshh ramp-up the walk with the
moves that got us into the Canada’s Got Talent finals coming up on May 13( th)!”

Cystic Fibrosis
Cystic fibrosis is the most common fatal genetic disease affecting Canadian children and young adults. It is a
multi-system disease that affects mainly the lungs and the digestive
system. In the lungs, where the effects are most devastating, a
build-up of thick mucus causes severe respiratory problems. Mucus and
protein also build up in the digestive tract, making it difficult to
digest and absorb nutrients from food. As improved therapies have
helped to address the malnutrition issues, ultimately most deaths
related to cystic fibrosis are due to lung disease. Currently, there is
no cure.

May is Cystic Fibrosis Awareness Month
There are many ways to join the fight against cystic fibrosis during
May, Cystic Fibrosis Awareness Month. Canadians can participate or
sponsor a walker on Sunday, May 27(th), in the Great Strides(TM) walk in one of 67 locations in Canada; donate to
support life-saving CF research and care; help raise awareness about
the disease using social media; and participate and fundraise in
hundreds of other outstanding events organized by 51 local Cystic
Fibrosis Canada chapters across the country.

Cystic Fibrosis Canada
Cystic Fibrosis Canada is one of the world’s top three charitable
organizations committed to finding a cure for cystic fibrosis and is an
internationally-recognized leader in funding CF research, innovation,
and clinical care. We invest more funding in life-saving CF research
and care than any other non-governmental agency in Canada. Since 1960,
Cystic Fibrosis Canada has invested more than $140 million in leading
research and care, resulting in one of the world’s highest survival
rates for Canadians living with cystic fibrosis.

NOTE TO MEDIA: An Electronic Media Kit is available online at http://www.vvcnetwork.ca/cf/20120501/ with May is Cystic Fibrosis Awareness Month interview footage, B-Roll footage, and photographs available for media
use in television.
Includes Maureen Adamson, CEO, Cystic Fibrosis Canada, Ryan Morrissette,
CF Champion, diagnosed at age two, Canadians Fighting Cystic Fibrosis
.

For more information, please visit:

The Great Strides(TM) walk at www.cysticfibrosis.ca/greatstrides
Cystic Fibrosis Canada’s website www.cysticfibrosis.ca
Cystic Fibrosis Canada on Facebook at www.facebook.com/CysticFibrosisCanada
Cystic Fibrosis Canada on Twitter at www.twitter.com/CFCanada

SOURCE Cystic Fibrosis Canada


Source: PR Newswire