Last updated on April 24, 2014 at 16:33 EDT

World Alzheimer’s Report 2012 Reveals Stigma and Social Exclusion are Major Barriers for People With Dementia and Their Carers

September 20, 2012

LONDON and NEW YORK, September 21, 2012 /PRNewswire/ –

        - 75% of people with dementia and 64% of family carers believe there are
          negative associations for those diagnosed with dementia in their countries
        - 40% of people with dementia report they have been avoided or treated
        - Report provides 10 key recommendations for governments and societies to
          include people with dementia into everyday activities

The latest World Alzheimer Report entitled: Overcoming the stigma of dementia,
released today by Alzheimer’s Disease International (ADI) [http://www.alz.co.uk ] reveals
that nearly one in four people with dementia (24%) hide or conceal their diagnosis citing
stigma as the main reason. Furthermore, 40% of people with dementia report not being
included in everyday life. What is startling is that nearly two out of three people with
dementia and their carers believe there is a lack of understanding of dementia in their

The World Alzheimer Report 2012 [http://www.alz.co.uk/research/world-report-2012 ]
provides 10 recommendations to enable governments and societies to overcome stigma,
including greater public education, with nearly half of the survey respondents indicating
education and awareness as a huge priority. Another key point is to encourage people with
dementia to share their experiences and to ensure that they are included in everyday

Nicole Batsch, co-author World Alzheimer Report 2012
[http://www.alz.co.uk/research/world-report-2012 ], comments, “Stigma remains a barrier to
making progress in all other dementia initiatives, such as improving care and support for
people with dementia and family carers and funding for research. The Alzheimer 2012 report
[http://www.alz.co.uk/research/world-report-2012 ] reveals that people with dementia and
carers feel marginalised by society, sometimes by their own friends and family members.
What they want is to be treated like normal people with a focus on their abilities and not
on their impairments. Bringing light to these issues will help improve the quality of life
for people with dementia and for their carers.”

Marc Wortmann, Executive Director of ADI [http://www.alz.co.uk ], says, “Dementia and
Alzheimer’s disease continue to grow at a rapid rate due to global ageing. The disease has
a huge impact on the families that are hit, but also affects health and social systems
because of the economic cost. Countries are not prepared and will continue not to be
prepared unless we overcome the stigma and enhance efforts to provide better care for
those who have dementia and find a cure for the future.”

The Latest World Alzheimer Report [http://www.alz.co.uk/research/world-report-2012 ]
reveals the following:

        - 24% of people with dementia and more than one in ten carers (11%) admitted
          to hiding or concealing the diagnosis of dementia - with those under the age of 65
          believing they might face special issues in their workplace or children's school
        - 40% of people with dementia reported not being included in everyday life
             - Nearly 60% of the above indicated that friends are the most likely people
             to avoid them or lose contact after diagnosis followed by family members
        - A quarter of carers (24%) feel there are negative associations in their
          country about carers of people with dementia while a similar number (28%) feel they
          have been treated differently or avoided
        - Both people with dementia and carers admitted they had stopped themselves
          forming close relationships as it was too difficult
        - Education, information and awareness were identified as priorities to help
          reduce the stigma of dementia

The Alzheimer 2012 report [http://www.alz.co.uk/research/world-report-2012 ] is based
on a global survey of 2500 people (those with dementia and family carers) across more than
50 countries. Just over 50% of the respondents with dementia had Alzheimer’s disease and
just under a half of the total number were under the age of 65. The main aims of the
survey were to record individual experiences of stigma by people with dementia and family
carers and help identify whether national dementia plans have had an impact on reducing

Dementia is seriously disabling for those who have it as well as their families and
carers. According to estimates from the World Health Organisation (WHO), there is
currently one new case of dementia every four seconds. If we take into account the rapid
increase in the elderly population, there will potentially be 115 million people with
dementia worldwide in the next 40 years, thus placing a major burden on health and social
systems. Only eight nations out of 193 WHO countries have implemented national dementia
plans, showing that more could be done by governments to help alleviate the associated
economic and social costs.

View film [http://youtu.be/-TC-KDUhBB0 ] featuring experts, patients and carers from
The Netherlands, Germany and India relating their experiences around Alzheimer’s Disease
[http://www.alz.co.uk ].

Notes to Editors:

Recommendations to tackle stigma surrounding dementia

        1) Educate the public
        2) Reduce isolation of people with dementia
        3) Give people with dementia a voice
        4) Recognise the rights of people with dementia and their carers
        5) Involve people with dementia in their local communities
        6) Support and educate informal and paid carers
        7) Improve the quality of care at home and in care homes
        8) Improve dementia training of primary healthcare physicians
        9) Call on governments to create national Alzheimer's disease plans
          10) Increase research into how to address stigma

B-roll footage is available

About Alzheimer’s Disease International

ADI is the international federation of 78 Alzheimer associations around the world, in
official relations with the World Health Organization. ADI’s vision is an improved quality
of life for people with dementia and their families throughout the world. ADI believes
that the key to winning the fight against dementia lies in a unique combination of global
solutions and local knowledge. As such, it works locally, by empowering Alzheimer
associations to promote and offer care and support for people with dementia and their
carers, while working globally to focus attention on dementia and campaign for policy
change from governments.

The distribution of the World Alzheimer Report 2012 has been made possible by Nutricia
Advanced Medical Nutrition, a specialised healthcare division of the food company Danone.

SOURCE Alzheimer’s Disease International (ADI)

Source: PR Newswire