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Public Urged to Take Action to Fight ‘Cruel Mystery’ Affecting Millions Worldwide

May 1, 2014

May is Lupus Awareness Month; Lupus Foundation of America Education Programs and Events Taking Place Nationwide

WASHINGTON, May 1, 2014 /PRNewswire-USNewswire/ — In recognition of Lupus Awareness Month this May, the Lupus Foundation of America is calling on the public to take action and raise their voice to increase lupus awareness and help solve the cruel mystery that is lupus. Lupus is a mysterious and devastating disease that ravages different parts of the body and has no known cause and no known cure.

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Awareness and understanding of lupus is essential to improve the diagnosis and treatment of the disease and find a cure. However, currently, lupus awareness is painstakingly low. Research conducted by the Lupus Foundation of America shows that nearly three-quarters (72%) of Americans between the ages of 18 and 34 – those most at risk for lupus – have either not heard about lupus at all or know little to nothing, about lupus, beyond the name.

“Lupus is one of the most misunderstood diseases there is, and research to better understand lupus and discover effective treatments is greatly underfunded, relative to the disease’s scope and devastation,” explains Sandra C. Raymond, President and CEO of the Lupus Foundation of America. “We need increased awareness, we need more funding – we need a cure. We are calling on all Americans this May to take action and join the Lupus Foundation of America in the fight against this disease that can rob people of the best years of their lives.”

Take Action, Raise Your Voice, Share Your Story

There are many ways the public can take action, learn about lupus and support those who suffer from its brutal impact. This May, the Lupus Foundation of America kicks off a new campaign called Dear Lupus. Whether you are a person living with lupus, a healthcare provider or have a family or friend with the disease, it impacts everyone. The Dear Lupus campaign provides an opportunity for individuals to get creative and produce their own video to tell their story. For more details about the campaign and how to submit a video, visit lupus.org/dear lupus.

Other ways the public can join the fight against lupus during Lupus Awareness Month include:

    --  Put On Purple Day (Friday, May 16): This is a special day when local
        communities rally to bring greater attention to lupus by wearing purple,
        lighting buildings, monuments and fountains purple and telling others
        why they support people affected by lupus.
    --  Spread the Word about Lupus to Friends, Family and Colleagues: Post
        fliers throughout the office and the community; share daily facts about
        lupus or place a banner or info-graphic in newsletters, on websites and
        on social media sites.
    --  Walk to End Lupus Now(TM): Visit WalkToEndLupusNow.org to find a Lupus
        Foundation of America Walk in your community, and put together a team of
        walkers. Every step raises money for lupus research and education
        services.
    --  Fundraise Your Way:  Host a fundraiser and awareness event in your
        community. Visit lupus.org/awareness for ideas to get started.

For more information about Lupus Awareness Month and ways to take action and join the fight, visit the Lupus Foundation of America’s website at lupus.org/awareness.

About the Lupus Foundation of America

The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus, one of the world’s cruelest, most unpredictable and devastating diseases, while giving caring support to those who suffer from its brutal impact. Through a comprehensive program of research, education, and advocacy, we lead the fight to improve the quality of life for all people affected by lupus. Learn more about the Foundation at www.lupus.org. For the latest news and updates, follow us on Twitter and Facebook.

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SOURCE Lupus Foundation of America


Source: PR Newswire



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