Multiple Sclerosis – What Are People With MS and Their Health Care Providers Really Thinking?
- New national survey reveals insights on treatment of disease, psychosocial burden, and delays in starting treatment
“At the National MS Society, we stress the importance of early treatment. It’s critical for physicians and people living with MS to sit down early and have a candid conversation about an individual’s concerns, fears and options for treatment,” said Dr.
Results from the survey revealed that nearly 20% of people living with MS reported delaying the start of treatment for a variety of reasons, including fear or anxiety over treatment. Differences emerged between physicians and people living with MS about how much this fear affects their lives. In the survey, the majority of physicians, and MS nurses and other HCPs reported that anxiety around treatment impacts people living with MS “a great deal” or “somewhat” compared to less than half of those living with the disease who expressed such views.
“Patient and physician dialogue has come a long way in recent years, but there is still work to be done,” said
The MS Viewpoints survey uncovered that while individuals currently on treatment report being generally satisfied with their treatment, nearly one-third (33%) of people living with MS reported that their current MS treatment interferes with their quality of life and daily activities such as work/career, exercise routine and sleeping habits, topics that are more likely to be discussed by their MS nurse or other HCP than by their physician.
“The dialogue between a person living with MS and a nurse or other healthcare provider is important because it often focuses on the impact of MS on day-to-day activities,” said
About the Survey
Independent research group, GfK Roper Public Affairs & Media, conducted the survey, interviewing 250 neurologists, 250 MS nurses and other HCPs, and 250 people living with relapsing MS. Interviews focused on understanding and comparing views of the current treatment landscape and the potential impact of emerging therapies, and also explored some of the psycho-social barriers that people living with MS face on a daily basis.
The survey was conducted via phone in
About Multiple Sclerosis
Multiple sclerosis (MS) is a chronic, progressive disease of the central nervous system (CNS) that affects approximately 400,000 Americans and as many as 2.1 million individuals worldwide. While symptoms can vary, the most common symptoms of MS include blurred vision, fatigue, numbness or tingling in the limbs and problems with strength and coordination. The relapsing forms of MS are the most common.
About the National MS Society
The National MS Society addresses the challenges of each person affected by MS through funding cutting-edge research, driving change through advocacy, facilitating professional education, collaborating with MS organizations around the world, and providing programs and services designed to help people with MS and their families move their lives forward. In 2008 alone, through the national office and its 500-state network of chapters, the Society devoted over
About World MS Day
The first World MS Day will be observed on
About EMD Serono
EMD Serono, Inc., an affiliate of Merck KGaA, Darmstadt,
About GfK Roper
GfK Roper Public Affairs & Media is a division of GfK Custom Research North America specializing in customized public opinion polling, media & communications research, and corporate reputation measurement – in the US and globally. In addition to delivering a broad range of customized research studies, GfK Roper Public Affairs & Media draws from GfK’s syndicated consumer tracking services, GfK Roper Reports(R) US and GfK Roper Reports(R) Worldwide, which monitor consumer values, beliefs, attitudes and behaviors in the US and more than 25 other countries. Headquartered in
*Nursing and other HCPs survey participants included: registered nurses, certified medical assistants, licensed practical nurses, nurse practitioners, physicians’ assistants and certified nurse specialists
SOURCE EMD Serono; National Multiple Sclerosis Society