Infants with Batten disease, a rare but fatal neurological disorder, appear healthy at birth.

Earlier this year, an international consortium of researchers showed that a master gene called transcription factor EB or TFEB controls both the mechanism by which debris is gathered up in cell and that which destroys it.

Cells, like ordinary households, produce "garbage" – debris and dysfunctional elements - that need disposal.

AUSTIN, Texas, May 9, 2011 /PRNewswire/ -- Hundreds of runners are getting ready for the May 14-15 "Run to the Sun" overnight relay through the Texas Hill Country to help fight Batten disease and more than 600 additional, serious and often fatal, inherited, childhood illnesses.

AUSTIN, Texas, March 22, 2011 /PRNewswire/ -- Beyond Batten Disease Foundation is recruiting volunteers for the first-ever overnight relay event, Run to the Sun. The relay will begin at 2:30 p.m.