Latest Batten disease Stories

2014-11-17 23:07:19

The Battle is Personal for a Texas Father Who is Trying to Save His Own Daughter’s Life New York, New York (PRWEB) November 17, 2014 Beyond Batten

2014-09-18 23:04:52

Beyond Batten Disease Foundation Delivers the Largest Investment in the History of Batten Research to Texas Children’s Hospital Houston, TX (PRWEB) September

2014-08-09 23:04:05

Emily Gimble's new single, “Mighty Like a Rose,” is available for download through many online music distributors. Austin, Texas (PRWEB) August 09, 2014

2014-04-01 23:23:22

Dr. Beverly Davidson Researches Novel Treatments for Neurological Diseases Philadelphia, PA (PRWEB) April 01, 2014 Beverly L.

2012-12-17 05:00:45

In this season of giving, in lieu of a party, Paramount Merchant Funding opted for an office fundraiser with staff, family, friends, vendors and other supporters gathering at a Times Square bowling

2012-03-16 11:10:09

Infants with Batten disease, a rare but fatal neurological disorder, appear healthy at birth.

2011-09-12 11:18:25

Earlier this year, an international consortium of researchers showed that a master gene called transcription factor EB or TFEB controls both the mechanism by which debris is gathered up in cell and that which destroys it.

2011-05-27 13:31:15

Cells, like ordinary households, produce "garbage" – debris and dysfunctional elements - that need disposal.

2011-05-09 10:55:00

AUSTIN, Texas, May 9, 2011 /PRNewswire/ -- Hundreds of runners are getting ready for the May 14-15 "Run to the Sun" overnight relay through the Texas Hill Country to help fight Batten disease and more than 600 additional, serious and often fatal, inherited, childhood illnesses.

2011-03-22 09:00:00

AUSTIN, Texas, March 22, 2011 /PRNewswire/ -- Beyond Batten Disease Foundation is recruiting volunteers for the first-ever overnight relay event, Run to the Sun. The relay will begin at 2:30 p.m.

Word of the Day
  • A handkerchief.
  • Specifically— The legendary sweat-cloth; the handkerchief of St. Veronica, according to tradition miraculously impressed with the mask of Christ; also, the napkin about Christ's head (Johu xx. 7).
  • In general, any miraculous portrait of Christ.
The word 'sudarium' comes from a Latin word meaning 'a handkerchief'.