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Last updated on April 19, 2014 at 1:20 EDT

Latest Canadian Cystic Fibrosis Foundation Stories

2011-03-19 11:12:00

BETHESDA, Md., March 19, 2011 /PRNewswire-USNewswire/ -- Sen. Ron Wyden (D-OR) and Reps. Edward Markey (D-MA) and Cliff Stearns (R-FL) were honored for outstanding leadership on behalf of people with cystic fibrosis during the Cystic Fibrosis Foundation's annual March on the Hill event in Washington, D.C., this week. During March on the Hill, members of the cystic fibrosis community meet with elected officials to raise awareness about the disease. "Senator Wyden, Representative Markey...

2011-03-14 09:31:00

ROCKAWAY, N.J., March 14, 2011 /PRNewswire/ -- America's largest specialty party retailer, Party City, announces its support of the Cystic Fibrosis Foundation with a nationwide, in-store campaign from March 4 - April 2. Party City customers can support the CF Foundation with dollar donations collected at the registers of its more than 600 retail stores. All donations will help fund CF research, medical and education programs. Together, Party City and the CF Foundation aim to help the...

2010-10-19 08:20:00

Historic Time in Treatment of Rare Disease as Promising Drugs Reach Phase 3 Trials BETHESDA, Md., Oct. 19 /PRNewswire-USNewswire/ -- In the largest meeting of its kind, nearly 4,000 doctors, scientists, researchers and caregivers will meet in Baltimore, Md., Oct. 21 -23, 2010, to present the latest information and advancements on cystic fibrosis (CF) drug development, research and care. The conference comes at a critical point in the history of cystic fibrosis, a fatal genetic disease...

2010-09-23 14:04:00

Legislation to Help Speed Research for Cystic Fibrosis and Other Rare Diseases BETHESDA, Md., Sept. 23 /PRNewswire-USNewswire/ -- Today the U.S. House of Representatives passed the "Improving Access to Clinical Trials Act" (I-ACT), in a victory for the Cystic Fibrosis Foundation, its advocates and 120 other health advocacy organizations. The bill, which passed the Senate Aug. 5, now goes to President Obama's desk for his signature. He is expected to sign it. This legislation enables...

2010-06-21 10:55:00

Kids From 14 States Make Case for Drug Funding and Improved Care for Fatal Disease BETHESDA, Md., June 21 /PRNewswire-USNewswire/ -- Teens from across the United States whose siblings have cystic fibrosis will press their elected officials in Washington, D.C., June 24, to fund drug research and increase access to clinical trials for those with rare diseases. Their goal is to speed the development of new drugs for people who need them most. The teens, ranging in age from 13 to 17 years,...

2010-05-13 13:03:00

Tens of Thousands to Participate during National Cystic Fibrosis Awareness Month BETHESDA, Md., May 13 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation announced today that more than 200 cities will host GREAT STRIDES walks May 15-16. GREAT STRIDES is a national fundraiser benefiting critical cystic fibrosis (CF) research, education and care programs. GREAT STRIDES is in its 22nd year and seeks to raise about $40 million in 2010. Funds raised through GREAT STRIDES have helped...

2010-03-25 12:02:00

BETHESDA, March 25 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation announced today that its Facebook page has surpassed 60,000 fans--double the number of people in the United States who have cystic fibrosis, a rare and fatal genetic disease. This rapid growth may reflect the need for people with CF to come together and exchange information in a setting that does not put their health at risk. People with CF cannot socialize in proximity to each other without risking germ...

2010-02-05 08:56:00

BETHESDA, Md., Feb. 5 /PRNewswire-USNewswire/ -- As part of a steadfast commitment to finding a cure for cystic fibrosis, BJ's Restaurants, Inc. donated $521,000 to the Cystic Fibrosis Foundation in 2009 for research, care and education programs. BJ's has been involved with the Foundation since 1998 and is one of its largest and most loyal corporate supporters. "We are truly grateful to BJ's restaurants, their team members and their customers for their generosity and desire to help...

2009-10-08 09:30:00

Historic Time in Treatment of Cystic Fibrosis as Promising Drugs Reach Phase 3 Trials BETHESDA, Md., Oct. 8 /PRNewswire-USNewswire/ -- Francis S. Collins, M.D., Ph.D., the new NIH director who led an international effort to map the human genome and co-discovered the gene responsible for cystic fibrosis, will address more than 3,000 leading scientists and clinicians from around the world at the 23rd annual North American Cystic Fibrosis Conference (NACFC). Held in Minneapolis from...

2009-09-28 10:54:00

Legislation Would Remove Financial Penalties for Participating in Research Studies BETHESDA, Md., Sept. 28 /PRNewswire-USNewswire/ -- More than 100 patient, academic and industry organizations representing millions of Americans have joined the Cystic Fibrosis Foundation to support legislation that enables individuals with rare diseases to participate in clinical trials without losing eligibility for public healthcare benefits. The bill is sponsored by Senators Ron Wyden (D-OR),...