Latest Cystic Fibrosis Foundation Stories
Conference Follows FDA Approval of Historic Drug to Treat Underlying Cause of CF - A Fatal Disease BETHESDA, Md., Oct. 9, 2012 /PRNewswire-USNewswire/ -- In the largest meeting of its kind, nearly 4,000 doctors, scientists and clinicians from diverse disciplines will meet in Orlando, Fla., Oct. 11 - 13, 2012, to present the latest advancements in cystic fibrosis research, care and drug development. Highlighted topics of the 26th annual North American Cystic Fibrosis Conference...
NEW YORK, Oct. 2, 2012 /PRNewswire-iReach/ -- The Johns Hopkins University School of Medicine (JHUSOM), in collaboration with the Institute for Johns Hopkins Nursing (IJHN) and DKBmed, LLC, has announced the presentation of Ahead of the Curve: Early Intervention in Cystic Fibrosis, featuring the first-ever three-dimensional animation at any North American CME program. (www.aotc-early.org) The symposia stresses the importance of early initiation of treatment and identification of lung...
William Clay, Chief Financial Officer for the Nashville parking management company Premier Parking has been recognized as one of Nashville’s Top 30 Under 30. Those selected by the Cystic Fibrosis Foundation are some of the most active and influential members of their local business community. Nashville, TN (PRWEB) August 28, 2012 For the past three years the Cystic Fibrosis Foundation (CFF) has been recognizing influential members of local business communities under the age of 30. In...
MARYSVILLE, Ohio, Aug. 14, 2012 /PRNewswire/ -- For the past three years, Rob Olson has hosted the "Breathe Easy Music Festival," a local Minneapolis summer concert event, held in his backyard, benefiting the Cystic Fibrosis Foundation (CFF). This year's event was canceled when he accidentally killed his 40,000-square-foot lawn with a non-Scotts product. The Scotts Company stepped in and pledged to restore the lawn, hopefully helping bring the "Breathe Easy Music Festival" back to...
BETHESDA, Md., July 30, 2012 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation officially unveiled today a new visual identity and logo. The new mark bears the words, adding tomorrows - the organization's tagline - and features the image of a rising sun, symbolizing past progress and hope for the future for all people with the disease. (Logo: http://photos.prnewswire.com/prnh/20120730/DC48724LOGO) The new logo, which is only the second in the CF Foundation's history,...
The Cystic Fibrosis Foundation held a successful Pipeline to a Cure Gala on Saturday, July 14, 2012 at the Hyatt Regency Huntington Beach Resort and Spa with surfing legends in attendance. Huntington Beach, CA (PRWEB) July 16, 2012 “Pipeline to a Cure 2012 was our most successful year ever. Because of all of our amazing sponsors, supporters and committee members we were able to raise $465,000 in net revenue! We are so thankful for everyone's support and love!” says Michael Shumard...
The Cystic Fibrosis Foundation is pleased to announce that the Fifth Annual Pipeline to a Cure gala will be held on Saturday, July 14th, 2012 at the Hyatt Regency Huntington Beach Resort and Spa. Huntington Beach, CA (PRWEB) July 14, 2012 Paul Motenko and Jerry Hennessy, Co-Founders of STACKED Restaurants are proud to support the Cystic Fibrosis Foundation at the Pipeline to A Cure Gala. The gala will be held on Saturday, July 14th, 2012 at the Hyatt Regency Huntington Beach Resort and...
Legislation Passes Last Hurdle Before Going to President for Signature Bill Increases Patient and Expert Participation in FDA Review of Cystic Fibrosis and Other Rare Disease Drugs BETHESDA, Md., June 27, 2012 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation applauds passage of a bill in the United States Senate to expand cooperation between the Food and Drug Administration (FDA) and outside rare disease experts and patient advocates during the FDA drug approval process....
Legislation Includes Measures to Increase Patient and Expert Participation in FDA Review of Rare Disease Medicines BETHESDA, Md., June 20, 2012 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation issued the following statement in response to passage of legislation today in the House of Representatives to expand consultation between the Food and Drug Administration (FDA) and external rare disease experts and patient advocates during the FDA drug approval process. The bill is...
WOONSOCKET, R.I., May 29, 2012 /PRNewswire/ -- On May 27, CVS/pharmacy launched a new in-store fundraising campaign named Advancing Medical Research, to support medical research and help improve the quality of life for those living with amyotrophic lateral sclerosis (ALS) and cystic fibrosis (CF). Funds raised through the campaign will benefit the ALS Therapy Alliance (ATA), a leading organization dedicated to advancing ALS research, and the Cystic Fibrosis Foundation, the world's...
