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Last updated on April 19, 2014 at 5:20 EDT

Latest Cystic Fibrosis Foundation Stories

2012-05-29 02:27:36

WOONSOCKET, R.I., May 29, 2012 /PRNewswire/ -- On May 27, CVS/pharmacy launched a new in-store fundraising campaign named Advancing Medical Research, to support medical research and help improve the quality of life for those living with amyotrophic lateral sclerosis (ALS) and cystic fibrosis (CF). Funds raised through the campaign will benefit the ALS Therapy Alliance (ATA), a leading organization dedicated to advancing ALS research, and the Cystic Fibrosis Foundation, the world's leader in...

2012-05-17 06:25:04

Tens of Thousands Join Effort to Find a Cure During Cystic Fibrosis Awareness Month BETHESDA, Md., May 17, 2012 /PRNewswire-USNewswire/ -- Tens of thousands of people in more than 200 cities will participate in Great Strides walks May 19-20, 2012, to raise critical funds for cystic fibrosis research, education and care, the Cystic Fibrosis Foundation announced today. Great Strides is the largest national fundraiser for cystic fibrosis, a fatal genetic disease that causes debilitating...

2012-05-10 10:24:51

Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments BETHESDA, Md., May 10, 2012 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation issued the following statement regarding the House Energy and Commerce Committee's Health Subcommittee approval of legislation to include consultation with rare disease experts and patient advocates as part of the U.S. Food and Drug Administration's (FDA) systematic drug review process. [Details...

2012-05-10 06:27:13

ATLANTA, May 10, 2012 /PRNewswire/ -- The Cystic Fibrosis Foundation - Georgia Chapter will hold its 22(nd) Annual GREAT STRIDES walk. The event will be held on Saturday, May 19th at the IC Courtyard on the Georgia Tech campus; registration begins at 8:30 a.m., and the 5K walk begins at 9:30 a.m. Great Strides is a national fundraising program that aims to raise $40 million in 2012 to support vital cystic fibrosis research, education and care programs. It is the CF...

2012-05-02 06:25:11

SAN DIEGO, May 2, 2012 /PRNewswire/ -- Synteract, Inc., a full-service contract research organization (CRO), and Rempex Pharmaceuticals, a biopharmaceutical company developing new therapies to combat the growing issue of antibiotic resistance, have partnered for the third annual Great Strides fundraising walk to benefit the Cystic Fibrosis (CF) Foundation through participation and donations. Synteract and Rempex (on behalf of Aptalis Pharma) are also working together on clinical trials to...

2012-04-25 14:21:31

Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments BETHESDA, Md., April 25, 2012 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation issued the following statement regarding Senate committee approval of legislation to include consultation with rare disease experts and patient advocates as part of the U.S. Food and Drug Administration's (FDA) systematic drug review process. [Details provided below.] Statement from...

2012-04-07 23:02:24

Emily´s Entourage has announced a charity auction for two tickets to American Idol to benefit the Cystic Fibrosis Foundation after donating over $80,000 from their t-shirt fundraiser. The tickets up for bid are for the May 9, 2012 show and are currently up for bid on CharityBuzz under Emily´s Entourage. (link below) Philadelphia, PA (PRWEB) April 06, 2012 Following up their successful t-shirt fundraiser benefiting the Cystic Fibrosis Foundation through the sale of custom t-shirts,...

2012-04-05 23:01:07

Philadelphia area Cystic Fibrosis fundraiser Emily's Entourage has had a successful t-shirt fundraiser yielding both money and awareness for the Cystic Fibrosis Foundation through the sale of custom t-shirts by US screen printers, Rush Order Tees. Rush Order Tees printed the t-shirts for fundraising and promoted their availability through social media in coordination with the non-profit charitable organization Emily´s Entourage. Philadelhpia, PA (PRWEB) April 05, 2012 The Cystic...

2012-04-05 06:24:29

The CF Foundation's "Adding Tomorrows" video selected from more than 1,000 entries; to be featured on YouTube's homepage. BETHESDA, Md., April 5, 2012 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation has been awarded "best video" in the DoGooder YouTube Nonprofit Video Awards for the Large Nonprofit Category. The annual contest is designed to recognize the creative and effective use of video to promote the work of the nonprofit sector in catalyzing social good. The...

2012-03-12 14:31:32

New research could provide roadmap for more effective drug discovery for CF A recent study led by Gergely Lukacs, a professor at McGill University's Faculty of Medicine, Department of Physiology, and published in the January issue of Cell, has shown that restoring normal function to the mutant gene product responsible for cystic fibrosis (CF) requires correcting two distinct structural defects. This finding could point to more effective therapeutic strategies for CF in the future. CF, a...