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Latest Cystic Fibrosis Foundation Stories

2011-05-18 10:55:00

Tens of Thousands to Participate During National Cystic Fibrosis Awareness Month BETHESDA, Md., May 18, 2011 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation announced today that more than 200 cities will host Great Strides walks May 21-22, 2011. Great Strides is a national fundraiser that generates critical funds for lifesaving cystic fibrosis research, education and care. The 2011 goal of Great Strides is to raise nearly $40 million nationwide. May is National Cystic Fibrosis...

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2011-05-11 05:45:00

Users of social networking sites such as Facebook have twice the number of friends online as they do in real life, according to new study by the Cystic Fibrosis Trust in Britain. The survey of 3,000 participants found that the typical British social network user has 121 friends online, compared with 55 real life friends.  The study also revealed that one in 10 people found their best friend online, and that people tend to be more truthful with their online friends.  Ten percent of...

2011-03-19 11:12:00

BETHESDA, Md., March 19, 2011 /PRNewswire-USNewswire/ -- Sen. Ron Wyden (D-OR) and Reps. Edward Markey (D-MA) and Cliff Stearns (R-FL) were honored for outstanding leadership on behalf of people with cystic fibrosis during the Cystic Fibrosis Foundation's annual March on the Hill event in Washington, D.C., this week. During March on the Hill, members of the cystic fibrosis community meet with elected officials to raise awareness about the disease. "Senator Wyden, Representative Markey...

2011-03-14 09:31:00

ROCKAWAY, N.J., March 14, 2011 /PRNewswire/ -- America's largest specialty party retailer, Party City, announces its support of the Cystic Fibrosis Foundation with a nationwide, in-store campaign from March 4 - April 2. Party City customers can support the CF Foundation with dollar donations collected at the registers of its more than 600 retail stores. All donations will help fund CF research, medical and education programs. Together, Party City and the CF Foundation aim to help the...

2011-03-12 00:00:29

Agile Sciences' pharmaceutical compounds to be assessed for efficacy against bacterial isolates from cystic fibrosis patients. Raleigh, NC (PRWEB) March 11, 2011 Agile Sciences has been awarded a $75,000 grant from the Cystic Fibrosis Foundation which will facilitate testing of the company's lead pharmaceutical compounds toward bacterial isolates from cystic fibrosis patients. The company will collaborate with a leading cystic fibrosis expert and expects to complete the initial assessment...

2011-02-25 07:05:00

BOWIE, Md., Feb. 25, 2011 /PRNewswire/ -- Harvey Weiner, who recently joined The MIL Corporation (MIL), a midsized government contractor, has lead an impressive career in consulting, systems integration, and program management services to the Federal government. His most important feat, however, is his fight to find a cure for his son and daughter's disease. The Weiner's daughter, Melissa, 13, and son, Mathew, 16, were both under the age of three when the family learned both children...

2011-02-23 07:01:00

Patients on drug had significant weight gain, reduced sweat chloride and were less likely to experience a pulmonary exacerbation BETHESDA, Md., Feb. 23, 2011 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation and Vertex Pharmaceuticals announced today that VX-770, an oral medicine in development that targets the defective protein that causes cystic fibrosis, showed promising results in a Phase 3 clinical trial. The trial was designed to evaluate patients age 12 and up who carry...

2010-12-21 07:00:00

SOUTH PLAINFIELD, N.J., Dec. 21, 2010 /PRNewswire/ -- PTC Therapeutics, Inc. announced today that it has completed enrollment of a Phase 3 clinical trial of ataluren, an investigational new drug, in patients with nonsense mutation cystic fibrosis (nmCF). (Logo: http://photos.prnewswire.com/prnh/20010919/PTCLOGO ) The 48-week study is designed to determine whether ataluren can improve lung function in patients with nmCF. The trial has enrolled 238 patients at 36 sites in North America,...

2010-11-18 14:01:24

An investigational drug targeting a defective protein that causes cystic fibrosis has been shown to improve lung function in a small study of CF patients, according to findings published Nov. 18, 2010, in the New England Journal of Medicine. The investigational drug, VX-770, appeared to improve function of what is known as CFTR--the faulty protein responsible for CF. It is among the first compounds being developed for CF that specifically targets the root cause of cystic fibrosis. Patients...

2010-11-15 12:12:44

Researchers at the University of North Carolina at Chapel Hill School of Medicine have demonstrated that the gene mutated in cystic fibrosis not only controls traffic on the chloride highway, but also keeps the sodium highway from being overused. An imbalance of salt and water in patients with cystic fibrosis makes their lungs clog up with sticky mucus that is prone to infection. The cause of the offending imbalance is a well-known genetic error, one that blocks the molecular expressway for...


Word of the Day
mallemaroking
  • Nautical, the visiting and carousing of sailors in the Greenland ships.
This word is apparently from a confusion of two similar Dutch words: 'mallemerok,' a foolish woman, and 'mallemok,' a name for some persons among the crew of a whaling vessel.