Latest Cystic Fibrosis Trust Stories
Legislation Passes Last Hurdle Before Going to President for Signature Bill Increases Patient and Expert Participation in FDA Review of Cystic Fibrosis and Other Rare Disease Drugs BETHESDA, Md., June 27, 2012 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation applauds passage of a bill in the United States Senate to expand cooperation between the Food and Drug Administration (FDA) and outside rare disease experts and patient advocates during the FDA drug approval process....
Legislation Includes Measures to Increase Patient and Expert Participation in FDA Review of Rare Disease Medicines BETHESDA, Md., June 20, 2012 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation issued the following statement in response to passage of legislation today in the House of Representatives to expand consultation between the Food and Drug Administration (FDA) and external rare disease experts and patient advocates during the FDA drug approval process. The bill is...
World-renowned Dirty Car Artist Scott Wade joins ninth annual Soaps It Up for Cystic Fibrosis Canada HAMILTON, ON, June 6, 2012 /CNW/ - For the past eight years, dirty cars have been making beautiful things happen for Cystic Fibrosis Canada through the annual CARSTAR Soaps It Up for Cystic Fibrosis National Car Wash Fundraiser. At this year's event on Saturday, June 9th, CARSTAR locations across the country will surpass $2-million in funds raised for Cystic Fibrosis Canada. To...
WOONSOCKET, R.I., May 29, 2012 /PRNewswire/ -- On May 27, CVS/pharmacy launched a new in-store fundraising campaign named Advancing Medical Research, to support medical research and help improve the quality of life for those living with amyotrophic lateral sclerosis (ALS) and cystic fibrosis (CF). Funds raised through the campaign will benefit the ALS Therapy Alliance (ATA), a leading organization dedicated to advancing ALS research, and the Cystic Fibrosis Foundation, the world's...
Tens of Thousands Join Effort to Find a Cure During Cystic Fibrosis Awareness Month BETHESDA, Md., May 17, 2012 /PRNewswire-USNewswire/ -- Tens of thousands of people in more than 200 cities will participate in Great Strides walks May 19-20, 2012, to raise critical funds for cystic fibrosis research, education and care, the Cystic Fibrosis Foundation announced today. Great Strides is the largest national fundraiser for cystic fibrosis, a fatal genetic disease that causes...
Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments BETHESDA, Md., May 10, 2012 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation issued the following statement regarding the House Energy and Commerce Committee's Health Subcommittee approval of legislation to include consultation with rare disease experts and patient advocates as part of the U.S. Food and Drug Administration's (FDA) systematic drug review process. [Details...
ATLANTA, May 10, 2012 /PRNewswire/ -- The Cystic Fibrosis Foundation - Georgia Chapter will hold its 22(nd) Annual GREAT STRIDES walk. The event will be held on Saturday, May 19th at the IC Courtyard on the Georgia Tech campus; registration begins at 8:30 a.m., and the 5K walk begins at 9:30 a.m. Great Strides is a national fundraising program that aims to raise $40 million in 2012 to support vital cystic fibrosis research, education and care programs. It is the CF...
SAN DIEGO, May 2, 2012 /PRNewswire/ -- Synteract, Inc., a full-service contract research organization (CRO), and Rempex Pharmaceuticals, a biopharmaceutical company developing new therapies to combat the growing issue of antibiotic resistance, have partnered for the third annual Great Strides fundraising walk to benefit the Cystic Fibrosis (CF) Foundation through participation and donations. Synteract and Rempex (on behalf of Aptalis Pharma) are also working together on clinical...
Philadelphia area Cystic Fibrosis fundraiser Emily's Entourage has had a successful t-shirt fundraiser yielding both money and awareness for the Cystic Fibrosis Foundation through the sale of custom t-shirts by US screen printers, Rush Order Tees. Rush Order Tees printed the t-shirts for fundraising and promoted their availability through social media in coordination with the non-profit charitable organization Emily’s Entourage. Philadelhpia, PA (PRWEB) April 05, 2012 The Cystic...
Breakthrough therapy targets defective protein SILVER SPRING, Md., Jan. 31, 2012 /PRNewswire-USNewswire/ -- The U.S. Food and Drug Administration today approved Kalydeco (ivacaftor) for the treatment of a rare form of cystic fibrosis (CF) in patients ages 6 years and older who have the specific G551D mutation in the Cystic Fibrosis Transmembrane Regulator (CFTR) gene. (Logo: http://photos.prnewswire.com/prnh/20090824/FDALOGO) CF is a serious genetic disorder affecting the lungs...
