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Last updated on April 18, 2014 at 6:54 EDT

Latest Cystic Fibrosis Trust Stories

2013-06-04 12:20:09

Over 45,000 cars washed and more than $2-million raised for Cystic Fibrosis over a decade of fundraising HAMILTON, ON, June 4, 2013 /CNW/ - This Saturday, CARSTAR Collision and Glass will mark the 10-year anniversary of its Soaps It Up for Cystic Fibrosis campaign. Over the past decade, owners, staff and volunteers at CARSTAR locations across Canada have raised over $2-million for Cystic Fibrosis Canada. The program has seen the company set and break the Guinness World Record for...

2013-05-17 16:24:14

Cystic Fibrosis Foundation Announces "Walk Weekend" - Great Strides Fundraising Events Held Nationwide May 18-19 BETHESDA, Md., May 17, 2013 /PRNewswire-USNewswire/ -- Walks in nearly every state this weekend will raise funds to fight cystic fibrosis as part of Great Strides, the Cystic Fibrosis Foundation's largest national fundraising event. Cystic fibrosis is a fatal genetic disease that causes debilitating lung infections and premature death. "Every walker who joins Great...

2013-05-15 12:33:45

First Social Network for Canadian CF Patients Launched Today: The 'My Cystic Fibrosis Canada' Network TORONTO, May 15, 2013 /CNW/ - Cystic Fibrosis Canada launched the My Cystic Fibrosis (CF) Canada Network today, Canada's first-ever social network designed specifically for CF patients, by CF patients, to connect and share important information about living with this fatal genetic disease. The network is available on www.mycfnetwork.com and includes a compelling launch video featuring...

2013-03-26 12:29:46

Calling on provincial governments to ensure CF patients receive equitable access to KALYDECO(TM) TORONTO, March 26, 2013 /CNW/ - As part of the Common Drug Review process, the Canadian Drug Expert Committee (CDEC) has recommended that the drug KALYDECO(TM) (ivacaftor) be listed on the formulary listing of publicly funded drug plans for the treatment of cystic fibrosis in patients age six years and older who have the G551D mutation in the Cystic Fibrosis Transmembrane conductance...

2013-01-21 20:20:48

LAS VEGAS, Jan. 21, 2013 /PRNewswire/ -- The Cystic Fibrosis Foundation is one step closer to finding a cure for cystic fibrosis thanks to a little help from some superstar friends. More than $1 million was raised in support of cystic fibrosis research efforts last night during a special performance "Adding Tomorrows with Celine Dion," a partnership with international music icon Celine Dion, Caesars Entertainment, AEG Live and the Cystic Fibrosis Foundation. Held at Caesars Palace, the...

2012-12-03 12:27:20

Calling for the manufacturer and drug insurance plans to ensure CF patients receive equitable and affordable access to KALYDECO(TM) TORONTO, Dec. 3, 2012 /CNW/ - Health Canada has issued a Notice of Compliance (NOC) for KALYDECO(TM), approving the drug for use in Canada. This gives Canadian cystic fibrosis (CF) patients with the G551D mutation (ages six and older) a chance to gain access to this new, breakthrough treatment. Cystic Fibrosis Canada calls on Vertex Pharmaceuticals Inc....

2012-11-19 12:26:35

BETHESDA, Md., Nov. 19, 2012 /PRNewswire-USNewswire/ -- Cystic Fibrosis Foundation Therapeutics Inc. (CFFT), the nonprofit drug discovery and development affiliate of the Cystic Fibrosis Foundation, today announced a major expansion of its research collaboration with Pfizer Inc. designed to discover new drugs to treat people with the most common mutation of CF, Delta F508. Under the new six-year pre-clinical research program with Pfizer, CFFT will invest up to $58 million to speed the...

2012-10-25 11:23:36

First Drug to Treat the Cystic Fibrosis Defect was Developed in Collaboration With Cystic Fibrosis Foundation BETHESDA, Md., Oct. 25, 2012 /PRNewswire-USNewswire/ -- Kalydeco(TM), the first drug to treat the underlying cause of cystic fibrosis, has won The Wall Street Journal's 2012 Technology Innovation Award in the Medicine and Biotech category. The awards recognize technological breakthroughs that are game-changers or have a wide impact in their field and beyond. Kalydeco was...

2012-10-09 11:27:57

Conference Follows FDA Approval of Historic Drug to Treat Underlying Cause of CF - A Fatal Disease BETHESDA, Md., Oct. 9, 2012 /PRNewswire-USNewswire/ -- In the largest meeting of its kind, nearly 4,000 doctors, scientists and clinicians from diverse disciplines will meet in Orlando, Fla., Oct. 11 - 13, 2012, to present the latest advancements in cystic fibrosis research, care and drug development. Highlighted topics of the 26th annual North American Cystic Fibrosis Conference include:...

2012-07-16 23:02:55

The Cystic Fibrosis Foundation held a successful Pipeline to a Cure Gala on Saturday, July 14, 2012 at the Hyatt Regency Huntington Beach Resort and Spa with surfing legends in attendance. Huntington Beach, CA (PRWEB) July 16, 2012 “Pipeline to a Cure 2012 was our most successful year ever. Because of all of our amazing sponsors, supporters and committee members we were able to raise $465,000 in net revenue! We are so thankful for everyone's support and love!” says Michael...