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Last updated on April 21, 2014 at 7:52 EDT

Latest Cystic Fibrosis Trust Stories

2012-01-31 11:00:00

Breakthrough therapy targets defective protein SILVER SPRING, Md., Jan. 31, 2012 /PRNewswire-USNewswire/ -- The U.S. Food and Drug Administration today approved Kalydeco (ivacaftor) for the treatment of a rare form of cystic fibrosis (CF) in patients ages 6 years and older who have the specific G551D mutation in the Cystic Fibrosis Transmembrane Regulator (CFTR) gene. (Logo: http://photos.prnewswire.com/prnh/20090824/FDALOGO) CF is a serious genetic disorder affecting the lungs...

2011-11-11 06:51:45

(Ivanhoe Newswire) — Hope for better lungs! According to a recent study, the oral medication ivacaftor provides major, sustained improvement in lung function, growth and other signs and symptoms for cystic fibrosis patients. The study marks the first time a drug has been shown to work on the disease process rather than on the symptoms. Cystic fibrosis, which has no cure, is the most common lethal genetic disease in Caucasians. "Ivacaftor represents a significant advancement in the...

2011-11-01 11:52:00

First Potential Drug to Treat Underlying Cause of Fatal Disease under Review by FDA BETHESDA, Md., Nov. 1, 2011 /PRNewswire-USNewswire/ -- For the first time, a drug that's designed to treat the underlying cause of cystic fibrosis, Kalydeco(TM) (ivacaftor), is under review by the U.S. Food and Drug Administration for possible approval in 2012. This milestone comes as the largest international gathering of cystic fibrosis experts kicks off in Anaheim, Calif., Nov. 3 - 5, 2011. Kalydeco...

2011-07-06 09:50:00

Aptalis CF Cycle for Life Tour Series Supports Lifesaving Cystic Fibrosis Research BETHESDA, Md., July 6, 2011 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation today announced that Aptalis Pharma will be the 2011 national title sponsor for its premier cycle series--Aptalis CF Cycle for Life. The event features one-day bike tours held in 46 U.S. cities throughout the summer and fall. Thousands of cyclists will come together to raise money to help find a cure for cystic fibrosis,...

2011-06-22 10:58:00

Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease BETHESDA, Md., June 22, 2011 /PRNewswire-USNewswire/ -- Teens from across the United States whose siblings, cousins and other loved ones have cystic fibrosis will urge elected officials in Washington, D.C., to fund government agencies that are vital to drug research and development. They will also press Congress to protect health coverage for people with cystic fibrosis, a rare and fatal genetic disease....

2011-06-10 11:20:00

BETHESDA, Md., June 10, 2011 /PRNewswire-USNewswire/ -- Vertex Pharmaceuticals Inc. announced a plan to provide VX-770, a CF medicine in development, to people with the G551D mutation who are in critical medical need and may benefit from treatment prior to potential approval of the drug from the U.S. Food and Drug Administration (FDA). Pending FDA review and approval, Vertex expects to open the program at clinical sites in the United States as early as July. "We are delighted that...

2011-05-18 10:55:00

Tens of Thousands to Participate During National Cystic Fibrosis Awareness Month BETHESDA, Md., May 18, 2011 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation announced today that more than 200 cities will host Great Strides walks May 21-22, 2011. Great Strides is a national fundraiser that generates critical funds for lifesaving cystic fibrosis research, education and care. The 2011 goal of Great Strides is to raise nearly $40 million nationwide. May is National Cystic Fibrosis...

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2011-05-11 05:45:00

Users of social networking sites such as Facebook have twice the number of friends online as they do in real life, according to new study by the Cystic Fibrosis Trust in Britain. The survey of 3,000 participants found that the typical British social network user has 121 friends online, compared with 55 real life friends.  The study also revealed that one in 10 people found their best friend online, and that people tend to be more truthful with their online friends.  Ten percent of...

2011-03-19 11:12:00

BETHESDA, Md., March 19, 2011 /PRNewswire-USNewswire/ -- Sen. Ron Wyden (D-OR) and Reps. Edward Markey (D-MA) and Cliff Stearns (R-FL) were honored for outstanding leadership on behalf of people with cystic fibrosis during the Cystic Fibrosis Foundation's annual March on the Hill event in Washington, D.C., this week. During March on the Hill, members of the cystic fibrosis community meet with elected officials to raise awareness about the disease. "Senator Wyden, Representative Markey...

2011-03-14 09:31:00

ROCKAWAY, N.J., March 14, 2011 /PRNewswire/ -- America's largest specialty party retailer, Party City, announces its support of the Cystic Fibrosis Foundation with a nationwide, in-store campaign from March 4 - April 2. Party City customers can support the CF Foundation with dollar donations collected at the registers of its more than 600 retail stores. All donations will help fund CF research, medical and education programs. Together, Party City and the CF Foundation aim to help the...