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Latest Cystic Fibrosis Trust Stories

2012-04-05 23:01:07

Philadelphia area Cystic Fibrosis fundraiser Emily's Entourage has had a successful t-shirt fundraiser yielding both money and awareness for the Cystic Fibrosis Foundation through the sale of custom t-shirts by US screen printers, Rush Order Tees. Rush Order Tees printed the t-shirts for fundraising and promoted their availability through social media in coordination with the non-profit charitable organization Emily´s Entourage. Philadelhpia, PA (PRWEB) April 05, 2012 The Cystic...

2011-11-11 06:51:45

(Ivanhoe Newswire) — Hope for better lungs! According to a recent study, the oral medication ivacaftor provides major, sustained improvement in lung function, growth and other signs and symptoms for cystic fibrosis patients. The study marks the first time a drug has been shown to work on the disease process rather than on the symptoms. Cystic fibrosis, which has no cure, is the most common lethal genetic disease in Caucasians. "Ivacaftor represents a significant advancement in the...

2011-07-06 09:50:00

Aptalis CF Cycle for Life Tour Series Supports Lifesaving Cystic Fibrosis Research BETHESDA, Md., July 6, 2011 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation today announced that Aptalis Pharma will be the 2011 national title sponsor for its premier cycle series--Aptalis CF Cycle for Life. The event features one-day bike tours held in 46 U.S. cities throughout the summer and fall. Thousands of cyclists will come together to raise money to help find a cure for cystic fibrosis,...

2011-06-22 10:58:00

Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease BETHESDA, Md., June 22, 2011 /PRNewswire-USNewswire/ -- Teens from across the United States whose siblings, cousins and other loved ones have cystic fibrosis will urge elected officials in Washington, D.C., to fund government agencies that are vital to drug research and development. They will also press Congress to protect health coverage for people with cystic fibrosis, a rare and fatal genetic disease....

2011-06-10 11:20:00

BETHESDA, Md., June 10, 2011 /PRNewswire-USNewswire/ -- Vertex Pharmaceuticals Inc. announced a plan to provide VX-770, a CF medicine in development, to people with the G551D mutation who are in critical medical need and may benefit from treatment prior to potential approval of the drug from the U.S. Food and Drug Administration (FDA). Pending FDA review and approval, Vertex expects to open the program at clinical sites in the United States as early as July. "We are delighted that...


Word of the Day
caparison
  • A cloth or covering, more or less ornamented, laid over the saddle or furniture of a horse, especially of a sumpter-horse or horse of state.
  • Clothing, especially sumptuous clothing; equipment; outfit.
  • To cover with a caparison, as a horse.
  • To dress sumptuously; adorn with rich dress.
This word ultimately comes from the Medieval Latin 'cappa,' cloak.
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