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Latest Cystic Fibrosis Trust Stories

2011-05-18 10:55:00

Tens of Thousands to Participate During National Cystic Fibrosis Awareness Month BETHESDA, Md., May 18, 2011 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation announced today that more than 200 cities will host Great Strides walks May 21-22, 2011. Great Strides is a national fundraiser that generates critical funds for lifesaving cystic fibrosis research, education and care. The 2011 goal of Great Strides is to raise nearly $40 million nationwide. May is National Cystic Fibrosis...

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2011-05-11 05:45:00

Users of social networking sites such as Facebook have twice the number of friends online as they do in real life, according to new study by the Cystic Fibrosis Trust in Britain. The survey of 3,000 participants found that the typical British social network user has 121 friends online, compared with 55 real life friends.  The study also revealed that one in 10 people found their best friend online, and that people tend to be more truthful with their online friends.  Ten percent of...

2011-03-19 11:12:00

BETHESDA, Md., March 19, 2011 /PRNewswire-USNewswire/ -- Sen. Ron Wyden (D-OR) and Reps. Edward Markey (D-MA) and Cliff Stearns (R-FL) were honored for outstanding leadership on behalf of people with cystic fibrosis during the Cystic Fibrosis Foundation's annual March on the Hill event in Washington, D.C., this week. During March on the Hill, members of the cystic fibrosis community meet with elected officials to raise awareness about the disease. "Senator Wyden, Representative Markey...

2011-03-14 09:31:00

ROCKAWAY, N.J., March 14, 2011 /PRNewswire/ -- America's largest specialty party retailer, Party City, announces its support of the Cystic Fibrosis Foundation with a nationwide, in-store campaign from March 4 - April 2. Party City customers can support the CF Foundation with dollar donations collected at the registers of its more than 600 retail stores. All donations will help fund CF research, medical and education programs. Together, Party City and the CF Foundation aim to help the...

2010-11-18 14:01:24

An investigational drug targeting a defective protein that causes cystic fibrosis has been shown to improve lung function in a small study of CF patients, according to findings published Nov. 18, 2010, in the New England Journal of Medicine. The investigational drug, VX-770, appeared to improve function of what is known as CFTR--the faulty protein responsible for CF. It is among the first compounds being developed for CF that specifically targets the root cause of cystic fibrosis. Patients...

2010-11-08 11:29:00

Proceeds from holiday DVD sales to support cystic fibrosis research and programs BETHESDA, Md., Nov. 8, 2010 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation announced today that it will partner with CVS/pharmacy and Warner Home Video for the second year to raise critical funds for cystic fibrosis through the sale of classic family movies this holiday season. From now through Dec. 28, 2010, CVS/pharmacy will sell four animated holiday favorites from Warner Home Video, including...

2010-10-19 08:20:00

Historic Time in Treatment of Rare Disease as Promising Drugs Reach Phase 3 Trials BETHESDA, Md., Oct. 19 /PRNewswire-USNewswire/ -- In the largest meeting of its kind, nearly 4,000 doctors, scientists, researchers and caregivers will meet in Baltimore, Md., Oct. 21 -23, 2010, to present the latest information and advancements on cystic fibrosis (CF) drug development, research and care. The conference comes at a critical point in the history of cystic fibrosis, a fatal genetic disease...

2010-09-23 14:04:00

Legislation to Help Speed Research for Cystic Fibrosis and Other Rare Diseases BETHESDA, Md., Sept. 23 /PRNewswire-USNewswire/ -- Today the U.S. House of Representatives passed the "Improving Access to Clinical Trials Act" (I-ACT), in a victory for the Cystic Fibrosis Foundation, its advocates and 120 other health advocacy organizations. The bill, which passed the Senate Aug. 5, now goes to President Obama's desk for his signature. He is expected to sign it. This legislation enables...

2010-08-06 09:41:00

BETHESDA, Md., Aug. 6 /PRNewswire-USNewswire/ -- The U.S. Senate last night passed the "Improving Access to Clinical Trials Act" (I-ACT), a bipartisan piece of legislation championed by the Cystic Fibrosis Foundation, its advocates and 120 other health advocacy organizations. The legislation enables patients with rare diseases to participate in clinical trials without losing eligibility for public healthcare benefits. "We are one step closer to breaking down a serious barrier to...

2010-06-21 10:55:00

Kids From 14 States Make Case for Drug Funding and Improved Care for Fatal Disease BETHESDA, Md., June 21 /PRNewswire-USNewswire/ -- Teens from across the United States whose siblings have cystic fibrosis will press their elected officials in Washington, D.C., June 24, to fund drug research and increase access to clinical trials for those with rare diseases. Their goal is to speed the development of new drugs for people who need them most. The teens, ranging in age from 13 to 17 years,...


Word of the Day
Cthulhu
  • A gigantic fictional humanoid alien god being described with a head resembling an octopus and dragon wings and claws, around whom an insane cult developed.
  • Pertaining to the mythos of Cthulhu and additional otherworldly beings created by H. P. Lovecraft or inspired by his writings and imitators.
This word was invented in 1926 by H.P. Lovecraft for his short story, 'The Call of Cthulhu.' 'Cthulhu' may be based on the word 'chthonic,' which in Greek mythology refers to the underworld.
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