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Last updated on April 23, 2014 at 17:36 EDT

Latest Cystic Fibrosis Trust Stories

2010-11-18 14:01:24

An investigational drug targeting a defective protein that causes cystic fibrosis has been shown to improve lung function in a small study of CF patients, according to findings published Nov. 18, 2010, in the New England Journal of Medicine. The investigational drug, VX-770, appeared to improve function of what is known as CFTR--the faulty protein responsible for CF. It is among the first compounds being developed for CF that specifically targets the root cause of cystic fibrosis. Patients...

2010-11-08 11:29:00

Proceeds from holiday DVD sales to support cystic fibrosis research and programs BETHESDA, Md., Nov. 8, 2010 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation announced today that it will partner with CVS/pharmacy and Warner Home Video for the second year to raise critical funds for cystic fibrosis through the sale of classic family movies this holiday season. From now through Dec. 28, 2010, CVS/pharmacy will sell four animated holiday favorites from Warner Home Video, including...

2010-10-19 08:20:00

Historic Time in Treatment of Rare Disease as Promising Drugs Reach Phase 3 Trials BETHESDA, Md., Oct. 19 /PRNewswire-USNewswire/ -- In the largest meeting of its kind, nearly 4,000 doctors, scientists, researchers and caregivers will meet in Baltimore, Md., Oct. 21 -23, 2010, to present the latest information and advancements on cystic fibrosis (CF) drug development, research and care. The conference comes at a critical point in the history of cystic fibrosis, a fatal genetic disease...

2010-09-23 14:04:00

Legislation to Help Speed Research for Cystic Fibrosis and Other Rare Diseases BETHESDA, Md., Sept. 23 /PRNewswire-USNewswire/ -- Today the U.S. House of Representatives passed the "Improving Access to Clinical Trials Act" (I-ACT), in a victory for the Cystic Fibrosis Foundation, its advocates and 120 other health advocacy organizations. The bill, which passed the Senate Aug. 5, now goes to President Obama's desk for his signature. He is expected to sign it. This legislation enables...

2010-08-06 09:41:00

BETHESDA, Md., Aug. 6 /PRNewswire-USNewswire/ -- The U.S. Senate last night passed the "Improving Access to Clinical Trials Act" (I-ACT), a bipartisan piece of legislation championed by the Cystic Fibrosis Foundation, its advocates and 120 other health advocacy organizations. The legislation enables patients with rare diseases to participate in clinical trials without losing eligibility for public healthcare benefits. "We are one step closer to breaking down a serious barrier to...

2010-06-21 10:55:00

Kids From 14 States Make Case for Drug Funding and Improved Care for Fatal Disease BETHESDA, Md., June 21 /PRNewswire-USNewswire/ -- Teens from across the United States whose siblings have cystic fibrosis will press their elected officials in Washington, D.C., June 24, to fund drug research and increase access to clinical trials for those with rare diseases. Their goal is to speed the development of new drugs for people who need them most. The teens, ranging in age from 13 to 17 years,...

2010-05-19 09:51:00

Cystic Fibrosis Foundation Drug Development Model Spawns More Than 30 Promising Therapies BETHESDA, Md., May 19 /PRNewswire-USNewswire/ -- National Institutes of Health (NIH) Director Francis S. Collins, M.D., Ph.D., will lead a briefing on Capitol Hill Thursday, May 20, to discuss how funding for medical research at the NIH can be used more quickly to create new therapies for patients and save lives. Since being appointed director of the NIH, Collins has stressed the importance of...

2010-05-13 13:03:00

Tens of Thousands to Participate during National Cystic Fibrosis Awareness Month BETHESDA, Md., May 13 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation announced today that more than 200 cities will host GREAT STRIDES walks May 15-16. GREAT STRIDES is a national fundraiser benefiting critical cystic fibrosis (CF) research, education and care programs. GREAT STRIDES is in its 22nd year and seeks to raise about $40 million in 2010. Funds raised through GREAT STRIDES have helped...

2010-03-25 12:02:00

BETHESDA, March 25 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation announced today that its Facebook page has surpassed 60,000 fans--double the number of people in the United States who have cystic fibrosis, a rare and fatal genetic disease. This rapid growth may reflect the need for people with CF to come together and exchange information in a setting that does not put their health at risk. People with CF cannot socialize in proximity to each other without risking germ...

2010-02-22 20:48:00

CF Foundation's $1 Million Investment Helped Drug Known as Cayston(R) Become a Reality BETHESDA, Md., Feb. 22 /PRNewswire-USNewswire/ -- The U.S. Food and Drug Administration approved an important new inhaled antibiotic called Cayston® (aztreonam for inhalation solution) today for the treatment of cystic fibrosis. The drug was made possible by significant support from the Cystic Fibrosis Foundation, including a $1 million investment by a Foundation subsidiary to help...