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Last updated on April 17, 2014 at 14:51 EDT

Latest Cystic Fibrosis Trust Stories

2010-02-05 08:56:00

BETHESDA, Md., Feb. 5 /PRNewswire-USNewswire/ -- As part of a steadfast commitment to finding a cure for cystic fibrosis, BJ's Restaurants, Inc. donated $521,000 to the Cystic Fibrosis Foundation in 2009 for research, care and education programs. BJ's has been involved with the Foundation since 1998 and is one of its largest and most loyal corporate supporters. "We are truly grateful to BJ's restaurants, their team members and their customers for their generosity and desire to help...

2009-12-18 13:55:39

Investigators report new findings about its special relationship with pH levels inside cells A team of researchers studying the protein that, when defective or absent, causes cystic fibrosis (CF) has made an important discovery about how that protein is normally controlled and under what circumstances it might go awry. "Understanding the regulation of salt transport in normal cells is critical for the development of new therapies for diseases, like CF, that disrupt salt movements across cell...

2009-11-24 08:39:00

Warner Home Video and CVS/pharmacy to Donate Proceeds from Holiday DVD Sales BETHESDA, Md., Nov. 24 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation announced today that CVS/pharmacy and Warner Home Video will partner with the Foundation this holiday season to raise critical funds for cystic fibrosis through the sale of classic family movies. The videos will be sold exclusively at CVS/pharmacy. Five dollars of every video purchased will be donated by CVS/pharmacy and Warner...

2009-10-08 09:30:00

Historic Time in Treatment of Cystic Fibrosis as Promising Drugs Reach Phase 3 Trials BETHESDA, Md., Oct. 8 /PRNewswire-USNewswire/ -- Francis S. Collins, M.D., Ph.D., the new NIH director who led an international effort to map the human genome and co-discovered the gene responsible for cystic fibrosis, will address more than 3,000 leading scientists and clinicians from around the world at the 23rd annual North American Cystic Fibrosis Conference (NACFC). Held in Minneapolis from...

2009-09-28 10:54:00

Legislation Would Remove Financial Penalties for Participating in Research Studies BETHESDA, Md., Sept. 28 /PRNewswire-USNewswire/ -- More than 100 patient, academic and industry organizations representing millions of Americans have joined the Cystic Fibrosis Foundation to support legislation that enables individuals with rare diseases to participate in clinical trials without losing eligibility for public healthcare benefits. The bill is sponsored by Senators Ron Wyden (D-OR),...

2009-09-25 08:20:00

Wedge Teams Up with 17-Year-Old Patient to "Pitch" Donations at Sept. 28 Game BETHESDA, Md., Sept. 25 /PRNewswire-USNewswire/ -- Eric Wedge, manager of the Cleveland Indians, is joining the fight against cystic fibrosis (CF), a fatal genetic disease. Wedge and 17-year old Michaela Mullet will star in a public service announcement (PSA) to be aired during a Cleveland Indians game against the Chicago White Sox on Monday evening, September 28. Cystic fibrosis clogs the lungs with thick...

2009-09-22 05:00:00

Departing Chicago via Vespa Scooter, Schaller to Ride Through Seven Western States to Raise Awareness About CF BETHESDA, Md., Sept. 22 /PRNewswire-USNewswire/ -- Emily Schaller, a 27-year-old drummer with cystic fibrosis (CF), begins a 2,000-mile journey today aboard a Vespa scooter -- riding from Chicago to Burbank, California, in her quest to get on "The Ellen DeGeneres Show." Schaller, whose singular goal is to raise awareness about cystic fibrosis, has appeared in Forbes magazine, The...

2009-09-16 16:17:00

Bill would remove financial penalties for participating in research studies BETHESDA, Md., Sept. 16 /PRNewswire-USNewswire/ -- Four members of the United States Senate introduced legislation today to allow patients with rare diseases to participate in clinical drug studies without losing their eligibility for public healthcare coverage, echoing a move by the House of Representatives last month. The "Improving Access to Clinical Trials Act" is co-sponsored by Senators Ron Wyden (D-OR),...

2009-09-10 07:00:00

SOUTH PLAINFIELD, N.J., Sept. 10 /PRNewswire/ -- PTC Therapeutics, Inc. (PTC) today announced the initiation of a Phase 3 trial of ataluren (formerly PTC124(R)), an investigational protein restoration therapy in patients with nonsense mutation cystic fibrosis (nmCF). Patients with CF lack adequate levels of the cystic fibrosis transmembrane conductance regulator (CFTR) protein, a chloride channel necessary for normal function of the lung, pancreas, liver, and other organs. In nmCF, an...

2009-08-12 08:10:00

BETHESDA, Md., Aug. 12 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation announced it has received a 4-star rating for sound fiscal management for the second year in a row from Charity Navigator, the largest charity evaluator in the United States. The Foundation earned four out of four possible stars for achieving excellence in fiscal responsibility. With this top rating, the Foundation outperforms a majority of nonprofits in America with respect to fiscal management, according to...