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Latest Cystic Fibrosis Trust Stories

2009-09-22 05:00:00

Departing Chicago via Vespa Scooter, Schaller to Ride Through Seven Western States to Raise Awareness About CF BETHESDA, Md., Sept. 22 /PRNewswire-USNewswire/ -- Emily Schaller, a 27-year-old drummer with cystic fibrosis (CF), begins a 2,000-mile journey today aboard a Vespa scooter -- riding from Chicago to Burbank, California, in her quest to get on "The Ellen DeGeneres Show." Schaller, whose singular goal is to raise awareness about cystic fibrosis, has appeared in Forbes magazine, The...

2009-09-16 16:17:00

Bill would remove financial penalties for participating in research studies BETHESDA, Md., Sept. 16 /PRNewswire-USNewswire/ -- Four members of the United States Senate introduced legislation today to allow patients with rare diseases to participate in clinical drug studies without losing their eligibility for public healthcare coverage, echoing a move by the House of Representatives last month. The "Improving Access to Clinical Trials Act" is co-sponsored by Senators Ron Wyden (D-OR),...

2009-09-10 07:00:00

SOUTH PLAINFIELD, N.J., Sept. 10 /PRNewswire/ -- PTC Therapeutics, Inc. (PTC) today announced the initiation of a Phase 3 trial of ataluren (formerly PTC124(R)), an investigational protein restoration therapy in patients with nonsense mutation cystic fibrosis (nmCF). Patients with CF lack adequate levels of the cystic fibrosis transmembrane conductance regulator (CFTR) protein, a chloride channel necessary for normal function of the lung, pancreas, liver, and other organs. In nmCF, an...

2009-08-12 08:10:00

BETHESDA, Md., Aug. 12 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation announced it has received a 4-star rating for sound fiscal management for the second year in a row from Charity Navigator, the largest charity evaluator in the United States. The Foundation earned four out of four possible stars for achieving excellence in fiscal responsibility. With this top rating, the Foundation outperforms a majority of nonprofits in America with respect to fiscal management, according to...

2009-07-16 11:10:19

Cystic fibrosis medicines that help to break down mucus in the lungs may carry an unexpected long-term benefit, a study suggests.The treatments not only help breathing in the short term - they may also make lung infections develop to be less harmful in the long run, research from the University of Edinburgh shows.Scientists studied how bacteria which infect the lungs of cystic fibrosis patients gather nutrients from their surroundings. The work builds on the knowledge that most bacteria...

2009-07-09 15:59:00

BETHESDA, Md., July 9 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation commends the nomination by President Obama of Francis Collins, M.D., Ph.D., as the new director of the National Institutes of Health (NIH). "The CF Foundation is pleased that Dr. Collins, who was pivotal in the discovery of the gene responsible for cystic fibrosis, may lead the NIH during a time when the expanding role of science is being highlighted by President Obama," said Robert J. Beall, Ph.D., president and...

2009-06-15 12:37:00

Bill would remove financial penalties for participating in research studies BETHESDA, Md., June 15 /PRNewswire-USNewswire/ -- New legislation introduced today would allow patients with rare diseases to participate in clinical drug studies without losing their eligibility for government healthcare coverage. The "Improve Access to Clinical Trials Act" is co-sponsored by Representatives Edward J. Markey (D-MA) and Cliff Stearns (R-FL) and 30 members of the House of Representatives. Current...

2009-05-13 11:36:00

BETHESDA, Md., May 13 /PRNewswire-USNewswire/ -- In recognition of National Cystic Fibrosis Awareness Month, the Cystic Fibrosis Foundation has been invited to ring the closing bell of the New York Stock Exchange today. The Cystic Fibrosis Foundation is the leading organization in the United States devoted to curing and controlling cystic fibrosis, a fatal genetic disease. C. Richard Mattingly, executive vice president and chief operating officer of the Cystic Fibrosis Foundation, will join...

2009-05-07 07:50:00

Tens of Thousands of Volunteers Seek to Raise $40 Million for Life-threatening Disease BETHESDA, Md., May 7 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation announced today the launch of GREAT STRIDES, a national walk that generates critical funds for life-saving cystic fibrosis (CF) research. The 2009 goal of GREAT STRIDES, the largest CF fundraiser, is to raise $40 million. Tens of thousands of walkers are expected to turn out at 600 sites nationwide from now until June. The...

2009-03-18 08:05:00

Foundation Honored by NCQA for Leadership in Improving Care BETHESDA, Md., March 18 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation will be honored today in Washington, D.C., for remarkable leadership in improving the quality of care for people living with cystic fibrosis, by the National Committee for Quality Assurance (NCQA). The outlook for people with CF continues to improve steadily each year because of programs fueled by the Foundation. In the 1950s, few children with cystic...


Word of the Day
caparison
  • A cloth or covering, more or less ornamented, laid over the saddle or furniture of a horse, especially of a sumpter-horse or horse of state.
  • Clothing, especially sumptuous clothing; equipment; outfit.
  • To cover with a caparison, as a horse.
  • To dress sumptuously; adorn with rich dress.
This word ultimately comes from the Medieval Latin 'cappa,' cloak.
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