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Latest Cystic Fibrosis Trust Stories

2009-03-05 11:20:23

U.S. medical scientists involved in an international study say they've identified a gene that modifies lung disease severity in people with cystic fibrosis. Wake Forest University Baptist Medical Center researchers said the research is the first published study to search the entire genome looking for genes that modify the severity of cystic fibrosis lung disease. Carl Langefeld, a study co-author and Wake Forest University School of Medicine researcher, said the findings might help in the...

2009-02-17 11:55:21

U.S. scientists have turned a relatively benign virus into an infectious form that, in its first gene therapy test, cured cystic fibrosis tissue in culture. Researchers from the University of California-Berkeley and the University of Iowa said their achievement with the benign adeno-associated virus overcomes a major problem of earlier virus-based gene therapy for cystic fibrosis, setting the stage for tests in advanced animal models of the disease. I think it is worthwhile thinking about...

2008-12-17 12:10:00

Organization Has Filled More Than 1 Million Prescriptions BETHESDA, Md., Dec. 17 /PRNewswire-USNewswire/ -- Cystic Fibrosis Services, Inc., a wholly owned subsidiary of the Cystic Fibrosis Foundation, today announced its 20th anniversary of providing quality pharmacy services to the cystic fibrosis (CF) community nationwide. The organization was founded in 1988 with one patient, one prescription and a mission to improve access to specialty medications for people with CF. It met an untapped...

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2008-09-26 13:00:00

Scientists hope that a new development, which allows them to create pigs that develop cystic fibrosis in the same way the people do, will give them new insight into fighting the disease. Scientists at the University of Iowa and the University of Missouri have created genetically engineered piglets with the same mutation that causes cystic fibrosis in humans, they report in the journal Science. Up to this point, scientists have been unable to find any hints that may lead to a possible cure,...

2008-09-25 00:00:30

It's not every day you get a visit from the Lord Mayor of Plymouth - but that's what happened to Harvey Skinner, aged four, during a stay at Derriford Hospital. Harvey, who lives in Stoke and has cystic fibrosis, was in Woodcock Ward when Lord Mayor Brian Vincent and Lady Mayoress Pauline Murphy came to call. The Cystic Fibrosis Trust is the Lord Mayor's chosen charity for his year in office, and he was presented with a cheque for pounds250 by Emma Millar, another patient who also has the...

2008-08-30 09:00:20

What was your first experience of cystic fibrosis? I have two grandsons, now in their twenties, who were diagnosed at birth. It's a shock when you hear that news and you don't really know anything about the disease. When you are told, point-blank, they may not live beyond their teenage years, it's frightening. From the day it's diagnosed, you know you're living with a timebomb. What do you now know about the disease? It's a genetic condition which affects internal organs, especially the...

2008-07-15 15:00:53

WASHINGTON, July 15 /PRNewswire-USNewswire/ -- The U.S. House of Representatives today passed a resolution to encourage public awareness and understanding of cystic fibrosis, and support research to find a cure for the disease. The Cystic Fibrosis Foundation applauds the House for this important achievement. Introduced by co-chairs of the Congressional Cystic Fibrosis Caucus, Representatives Ed Markey (D-Mass.) and Cliff Stearns (R-Fl.), this legislation recognizes the unique challenges...

2008-07-09 12:00:49

HUNTINGTON BEACH, Calif., July 9 /PRNewswire-USNewswire/ -- Amazingly, surfers have unknowingly held a key to prolonging the lifespan and quality of life for people with cystic fibrosis (CF), a fatal genetic disease that causes the body to produce thick, sticky mucus, which clogs the lungs and leads to life-threatening lung infections. Several years ago, doctors in Australia noticed young surfers with cystic fibrosis had significantly healthier lungs. The doctors determined that inhaling...

2008-06-14 06:00:00

By Anonymous CYSTIC FIBROSIS Cystic fibrosis is the most common genetic disease in Caucasians. The median life span for those with this malady is 36 years, and lung disease is the major cause of mortality. For years, scientists have studied cystic fibrosis using mice in which the cystic fibrosis gene was altered. However, mice do not develop lung disease like humans with cystic fibrosis. Researchers at the University of Missouri, Columbia, and the University of Iowa, Iowa City, have taken...

2007-06-20 12:00:47

MARLBOROUGH, Mass., June 20 /PRNewswire-USNewswire/ -- Digital Federal Credit Union (DCU) teamed up with the Boomer Esiason Foundation (BEF) to present Massachusetts General Hospital (MGH) with a $50,000 donation to its Adult Cystic Fibrosis program at the Joey O'Donnell Cystic Fibrosis Center. Executives, business owners, entrepreneurs and golf enthusiasts from all over the region gathered at Wedgewood Pines Country Club in Stow, MA on June 19, 2007 to support the fight against cystic...


Word of the Day
vermicular
  • Like a worm in form or movement; vermiform; tortuous or sinuous; also, writhing or wriggling.
  • Like the track or trace of a worm; appearing as if worm-eaten; vermiculate.
  • Marked with fine, close-set, wavy or tortuous lines of color; vermiculated.
  • A form of rusticated masonry which is so wrought as to appear thickly indented with worm-tracks.
This word ultimately comes from the Latin 'vermis,' worm.
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