Latest Cystic Fibrosis Trust Stories

2009-09-16 16:17:00

Bill would remove financial penalties for participating in research studies BETHESDA, Md., Sept.

2009-09-10 07:00:00

SOUTH PLAINFIELD, N.J., Sept. 10 /PRNewswire/ -- PTC Therapeutics, Inc. (PTC) today announced the initiation of a Phase 3 trial of ataluren (formerly PTC124(R)), an investigational protein restoration therapy in patients with nonsense mutation cystic fibrosis (nmCF).

2009-07-16 11:10:19

Cystic fibrosis medicines that help to break down mucus in the lungs may carry an unexpected long-term benefit, a study suggests.

2009-07-09 15:59:00

BETHESDA, Md., July 9 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation commends the nomination by President Obama of Francis Collins, M.D., Ph.D., as the new director of the National Institutes of Health (NIH). "The CF Foundation is pleased that Dr.

2009-06-15 12:37:00

Bill would remove financial penalties for participating in research studies BETHESDA, Md., June 15 /PRNewswire-USNewswire/ -- New legislation introduced today would allow patients with rare diseases to participate in clinical drug studies without losing their eligibility for government healthcare coverage. The "Improve Access to Clinical Trials Act" is co-sponsored by Representatives Edward J.

2009-05-13 11:36:00

BETHESDA, Md., May 13 /PRNewswire-USNewswire/ -- In recognition of National Cystic Fibrosis Awareness Month, the Cystic Fibrosis Foundation has been invited to ring the closing bell of the New York Stock Exchange today. The Cystic Fibrosis Foundation is the leading organization in the United States devoted to curing and controlling cystic fibrosis, a fatal genetic disease. C.

2009-05-07 07:50:00

Tens of Thousands of Volunteers Seek to Raise $40 Million for Life-threatening Disease BETHESDA, Md., May 7 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation announced today the launch of GREAT STRIDES, a national walk that generates critical funds for life-saving cystic fibrosis (CF) research.

2009-03-18 08:05:00

Foundation Honored by NCQA for Leadership in Improving Care BETHESDA, Md., March 18 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation will be honored today in Washington, D.C., for remarkable leadership in improving the quality of care for people living with cystic fibrosis, by the National Committee for Quality Assurance (NCQA). The outlook for people with CF continues to improve steadily each year because of programs fueled by the Foundation.

Word of the Day
  • The horn of a unicorn considered as a medical or pharmacological ingredient.
  • A winged horse with a single horn on its head; a winged unicorn.
The word 'alicorn' comes from Italian alicorno, already associated with unicorns and reinterpreted, popularized by Bearing an Hourglass (1984) and other fantasy novels by Piers Anthony.