Latest Cystic fibrosis Stories

Parents' Passionate Efforts Help Researchers Identify Cause Of Rare Disorder Affecting 800 Worldwide

2012-08-02 02:30:15

LIVONIA, Mich., Aug. 2, 2012 /PRNewswire/ -- Alternating hemiplegia of childhood (AHC), a rare disorder that causes sporadic paralysis of the limbs and a range of other developmental challenges, has recently been given hope for a cure. Thanks to a grant in 2010 by the Pepsi Refresh Project and parental involvement throughout, a collaborative effort of prominent researchers at both Duke University and the University of Utah has resulted in identifying one of the key causes of the...

OrPro Therapeutics Receives NIH Grant Award to Advance Development of Recombinant Thioredoxin for Treatment of Cystic Fibrosis

2012-07-31 02:28:20

SAN DIEGO, July 31, 2012 /PRNewswire/ -- OrPro Therapeutics, Inc. today announced that the company has been awarded a National Heart, Lung and Blood Institute Small Business Innovation Research (SBIR) grant from the National Institutes of Health (NIH). The grant enables OrPro to advance development of its lead product, ORP-100, for the treatment of cystic fibrosis (CF), an inherited genetic disease that affects approximately 80,000 people worldwide. "This award focuses on an...

Cystic Fibrosis Foundation Unveils a New Logo

2012-07-30 10:24:22

BETHESDA, Md., July 30, 2012 /PRNewswire-USNewswire/ -- The Cystic Fibrosis Foundation officially unveiled today a new visual identity and logo. The new mark bears the words, adding tomorrows - the organization's tagline - and features the image of a rising sun, symbolizing past progress and hope for the future for all people with the disease. (Logo: http://photos.prnewswire.com/prnh/20120730/DC48724LOGO) The new logo, which is only the second in the CF Foundation's history,...

PTC Therapeutics Closes $30 Million Financing

2012-07-23 02:25:28

SOUTH PLAINFIELD, N.J., July 23, 2012 /PRNewswire/ -- PTC Therapeutics, Inc. (PTC) today announced the completion of a $30 million financing. The round included a number of long-term investors such as Credit Suisse First Boston Equity Partners, HBM BioVentures, Vulcan Ventures, Celgene, Delphi Ventures, The Column Group, Novo A/S, and other existing investors. (Logo: http://photos.prnewswire.com/prnh/20010919/PTCLOGO) "This funding will support our continued late-stage clinical...

Intrinsic Imaging Awarded International Phase III Clinical Trial for Cystic Fibrosis

2012-07-18 23:03:24

This international multicenter clinical trial studies an investigational new drug targeted at treating CF. During this trial, Intrinsic Imaging will evaluate Cystic Fibrosis lung pathophysiology to gain insights into the treatment’s effect on major manifestations of CF. Boston, MA (PRWEB) July 18, 2012 Intrinsic Imaging, an ISO 9001:2008 certified and GAMP 5 medical imaging core lab specializing in providing imaging core lab services for clinical trials, announces today that it was...

Discovery Labs Receives US Patent for Method to Promote Mucus Clearance with Pulmonary Surfactant

2012-07-18 02:26:10

WARRINGTON, Pa., July 18, 2012 /PRNewswire/ -- Discovery Laboratories, Inc. (Nasdaq: DSCO) today announced it has received a patent issued by the United States Patent and Trademark Office (USPTO) entitled "Pulmonary Surfactant Formulations and Methods for Promoting Mucus Clearance." The claims of the patent (U.S. Patent Number 8,221,772) provide coverage for a method for promoting mucus clearance in a patient with a pulmonary condition characterized by excessive mucus secretion or...

Fifth Annual Pipeline to a Cure Gala Successfully Raised $465,000 for the Cystic Fibrosis Foundation

2012-07-16 23:02:55

The Cystic Fibrosis Foundation held a successful Pipeline to a Cure Gala on Saturday, July 14, 2012 at the Hyatt Regency Huntington Beach Resort and Spa with surfing legends in attendance. Huntington Beach, CA (PRWEB) July 16, 2012 “Pipeline to a Cure 2012 was our most successful year ever. Because of all of our amazing sponsors, supporters and committee members we were able to raise $465,000 in net revenue! We are so thankful for everyone's support and love!” says Michael Shumard...

Paul Motenko & Jerry Hennessy, Co-Founders of STACKED Restaurants, Are Proud to Support the Cystic Fibrosis Foundation at the Pipeline to A Cure Gala

2012-07-14 23:00:30

The Cystic Fibrosis Foundation is pleased to announce that the Fifth Annual Pipeline to a Cure gala will be held on Saturday, July 14th, 2012 at the Hyatt Regency Huntington Beach Resort and Spa. Huntington Beach, CA (PRWEB) July 14, 2012 Paul Motenko and Jerry Hennessy, Co-Founders of STACKED Restaurants are proud to support the Cystic Fibrosis Foundation at the Pipeline to A Cure Gala. The gala will be held on Saturday, July 14th, 2012 at the Hyatt Regency Huntington Beach Resort and...

Spiro PD Reduces ER Visits and Healthcare Costs

2012-07-09 23:03:24

Monitoring lung function with Spiro PD personal spirometer has been decreasing direct and indirect healthcare costs associated with chronic lung disease. Allentown, PA (PRWEB) July 09, 2012 On Thursday, June 28th, The U.S. Supreme Court declared the Patient Protection and Affordable Care Act constitutional. Healthcare costs are on the rise. It is now more important than ever to find ways to reduce expenses associated with healthcare. Spiro PD personal spirometer has been decreasing...

Susceptibility Genes Can Be Revealed From Exome Sequencing Of Health Condition Extremes

2012-07-09 10:55:33

DNA from cystic fibrosis patients with and without chronic infections points to unsuspected mutation Comparing the DNA from patients at the best and worst extremes of a health condition can reveal genes for resistance and susceptibility. This approach discovered rare variations in the DCTN4 gene among cystic fibrosis patients most prone to early, chronic airway infections. The DCTN4 gene codes for dynactin 4. This protein is a component of a molecular motor that moves trouble-making...