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Last updated on April 17, 2014 at 10:23 EDT

Latest Disease Registry Stories

2014-03-04 23:31:31

Patients, Researchers, Industry and Leading Medical Experts Join Forces to Gain Patient Population Information San Mateo, CA (PRWEB) March 04, 2014 PatientCrossroads, Lipodystrophy United and international disease experts have launched the Lipodystrophy Connect (LD Connect) patient registry program to learn more about lipodystrophy by collecting information directly from patients. The data will be made broadly available to researchers to speed the search for treatments and to raise the...

2013-05-24 23:35:04

Founding Registry Partners voice strong support for the shared, open-access registry able to collect data on any disease San Mateo, CA (PRWEB) May 23, 2013 PatientCrossroads today announced that the CONNECT open-access patient registry is now available for patient communities and disease organizations — including patient advocacy groups, pharmaceutical companies and medical researchers — to join. Founding Registry Partner organizations, which collectively represent 70 diseases,...

2013-04-16 23:04:58

Organizations representing nearly 40 diseases will participate in advance of general availability of the openly available patient registry Dublin, Ireland (PRWEB) April 16, 2013 [International Rare Diseases Research Consortium Conference] – PatientCrossroads today announced the names of the initial disease organizations selected to participate in a beta test of the new CONNECT Open-Access patient registry. The CONNECT Registry Partners - patient advocacy groups, pharmaceutical...

2012-12-12 08:27:43

BRIDGEWATER, N.J., Dec. 12, 2012 /PRNewswire/ -- Sanofi US announced today that Registries for All Diseases has been selected as the winner of the Collaborate Activate Innovation Challenge. Registries for All Diseases will receive an award of $300,000 to create a comprehensive, crowdsourced, cross-disease registry to help accelerate translational research for over 1,000 diseases. The team consists of partnering organizations Genetic Alliance, CFIDS Association of America, National Psoriasis...

2012-07-17 02:28:17

SALT LAKE CITY, July 17, 2012 /PRNewswire/ -- Remedy Informatics, Inc., the leading provider of registries and research informatics software for Life Science, Translational and Biomedical Research and Healthcare, today announced it is a key member of the LongView International Technology Solutions team awarded a prime contract by the National Institutes of Health (NIH) Information Technology Acquisition and Assessment (NITAAC). The CIO-SP3 contract provides for the delivery of a broad range...

2012-07-05 10:24:00

SALT LAKE CITY, July 5, 2012 /PRNewswire/ -- Remedy Informatics, Inc., the leading provider of registries for Life Science and Translational research, today announced that The Jewish Hospital - Mercy Health Blood & Marrow Transplant Center has selected ComprehensiveBMT(TM), Remedy's BMT center research data management and reporting product, to help improve patient outcomes and increase operational efficiency of the organization. (Logo:...

2012-06-05 18:22:44

BOSTON, June 6, 2012 /PRNewswire/ -- The U.S. faces major obstacles in taking advantage of "value-based health care"--one of the most promising developments in health care, according to a new study by The Boston Consulting Group (BCG). (Photo: http://photos.prnewswire.com/prnh/20120606/NY19587 ) BCG assessed the progress of 12 developed-world countries in adopting value-based health care, an approach to better controlling health care costs by improving health outcomes at the same or lower...

2012-05-15 06:29:11

CDC releases "Asthma's Impact on the Nation" ATLANTA, May 15, 2012 /PRNewswire-USNewswire/ -- An estimated 29.1 million adults (12.7 percent) have been diagnosed with asthma in their lifetimes, and 18.7 million (8.2 percent) still had asthma, according to 2010 data from the Centers for Disease Control and Prevention. The report, Asthma's Impact on the Nation, is the first state-by-state data gathered using the Asthma Call-back Survey, an in-depth survey conducted among people with...

2012-05-03 06:27:13

SALT LAKE CITY, May 3, 2012 /PRNewswire/-- Remedy Informatics, Inc., the leading provider of registries for Life Science and Translational research, today announced that is has been named a "Cool Vendor" in the Life Sciences, 2012(1), by Gartner, Inc. Remedy was also recently mentioned in two other important Gartner research reports, "Convergence of Healthcare Information Creates Opportunities for Life Sciences,"(2) and "Translational Medicine Still Has Barriers for Connecting Life Science...

2012-03-05 23:09:27

Two government-issued studies are unable to demonstrate whether people were harmed by groundwater contaminated with toxic pollutants from Area B of Fort Detrick, Md., says a new report by the National Research Council.  Furthermore, it is unlikely that additional studies could establish a link, because data on early exposures were not collected and cannot be obtained or reliably estimated now, the report notes. The committee that wrote the report was charged with reviewing two...