Latest Disease Registry Stories

2014-06-10 12:32:29

CECity to Power Over 25% of All Qualified Clinical Data Registries (QCDRs) Across Specialties to Foster Improved Patient Care, New Measures and Payment Models, Simplified PQRS and MOC Reporting PITTSBURGH, June 10, 2014 /PRNewswire/ -- CECity, healthcare's leading provider of cloud-based registry platforms for performance improvement, value-based payment and professionalism, today announced that the Centers for Medicare & Medicaid Services (CMS) has recognized ten (10) of...

2014-05-22 23:11:58

Researchers, pharmaceutical companies, advocacy organizations and healthcare providers can access large sets of patient-provided de-identified data to speed research. San Mateo, Calif. (PRWEB) May 22, 2014 PatientCrossroads, pioneer of the groundbreaking CONNECT patient registry platform, has expanded the open availability of disease-specific patient data with the launch of its CONNECT Data Portal. The Data Portal allows any authorized user to see the de-identified patient data that has...

2014-03-04 23:31:31

Patients, Researchers, Industry and Leading Medical Experts Join Forces to Gain Patient Population Information San Mateo, CA (PRWEB) March 04, 2014 PatientCrossroads, Lipodystrophy United and international disease experts have launched the Lipodystrophy Connect (LD Connect) patient registry program to learn more about lipodystrophy by collecting information directly from patients. The data will be made broadly available to researchers to speed the search for treatments and to raise the...

2013-05-24 23:35:04

Founding Registry Partners voice strong support for the shared, open-access registry able to collect data on any disease San Mateo, CA (PRWEB) May 23, 2013 PatientCrossroads today announced that the CONNECT open-access patient registry is now available for patient communities and disease organizations — including patient advocacy groups, pharmaceutical companies and medical researchers — to join. Founding Registry Partner organizations, which collectively represent 70 diseases,...

2013-04-16 23:04:58

Organizations representing nearly 40 diseases will participate in advance of general availability of the openly available patient registry Dublin, Ireland (PRWEB) April 16, 2013 [International Rare Diseases Research Consortium Conference] – PatientCrossroads today announced the names of the initial disease organizations selected to participate in a beta test of the new CONNECT Open-Access patient registry. The CONNECT Registry Partners - patient advocacy groups, pharmaceutical...

Word of the Day
  • A gigantic fictional humanoid alien god being described with a head resembling an octopus and dragon wings and claws, around whom an insane cult developed.
  • Pertaining to the mythos of Cthulhu and additional otherworldly beings created by H. P. Lovecraft or inspired by his writings and imitators.
This word was invented in 1926 by H.P. Lovecraft for his short story, 'The Call of Cthulhu.' 'Cthulhu' may be based on the word 'chthonic,' which in Greek mythology refers to the underworld.