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Latest European Organization for Rare Diseases Stories

2014-02-28 12:27:25

WHIPPANY, N.J., Feb. 28, 2014 /PRNewswire/ -- Bayer HealthCare is joining the National Organization for Rare Disorders (NORD) and others in raising awareness of Rare Disease Day, which is being celebrated today around the world. (Photo: http://photos.prnewswire.com/prnh/20140228/NY74321 ) Rare Disease Day 2014 activities by Bayer will include participation in state government awareness events and employee engagement via the NORD "Handprints Across America" photo gallery. "While...

2014-02-28 04:21:47

LEXINGTON, Massachusetts, February 28, 2014 /PRNewswire/ -- Global Initiatives Underscore Shire's Long-term Commitment to the Rare Disease Community Shire plc (LSE: SHP, NASDAQ: SHPG) today announced its support of Rare Disease Day and invites others to join them in its continued commitment to the rare disease community. Observed annually on the last day of February, Rare Disease Day is coordinated at the international level by the European Organisation for Rare...

2014-02-25 23:04:22

On Rare Disease Day, February 28, the Pulmonary Hypertension Association and PH community will celebrate the approval of three new PH treatments since October 2013 and join the National Organization of Rare Disorders in spreading the word that more needs to be done for the nearly one in ten Americans living with a rare disease. Silver Spring, Maryland (PRWEB) February 25, 2014 On Rare Disease Day, February 28, the pulmonary hypertension (PH) community will celebrate the approval of three...

2014-02-24 12:27:14

MIDLOTHIAN, Va., Feb. 24, 2014 /PRNewswire-USNewswire/ -- Patient Services, Inc. (PSI) will be joining the National Organization for Rare Disorders (NORD) and others around the world in observing Rare Disease Day on February 28, 2014. On this day, millions of patients and their families will share their stories to focus a spotlight on rare diseases as a global public health concern. http://photos.prnewswire.com/prnvar/20140224/DC70603LOGO "Everyone knows someone with a rare...

2013-09-13 23:01:19

Register Now to Attend Premier Conference on Orphan Product Development, Emerging Markets and Outlook for Investment. Horsham, PA (PRWEB) September 13, 2013 The early registration deadline for the third annual U.S. Conference on Rare Diseases and Orphan Products is Monday, Sept. 16. Co-sponsored by the National Organization for Rare Disorders (NORD) and DIA in collaboration with the Food and Drug Administration (FDA) and EURORDIS (Rare Diseases Europe), the conference will take place from...

2013-08-05 23:02:03

Bill Corr to Kick Off Conference 30 Years After Passage of Orphan Drug Act. Horsham, PA (PRWEB) August 05, 2013 Bill Corr, deputy secretary of the U.S. Department of Health and Human Services, will deliver the keynote address at the third annual U.S. Conference on Rare Diseases and Orphan Products in Bethesda, Md., on Oct. 7, 2013. Corr was vital in the passage of the Orphan Drug Act (ODA), serving as counsel to the U.S. House of Representatives’ Subcommittee on Health and the...

2013-07-23 23:04:05

Key Stakeholders in Rare Disease Community to Discuss the New Era in Health Care Bethesda, MD (PRWEB) July 23, 2013 Patient advocates, industry leaders, researchers, regulatory officials, investors and thought leaders dedicated to advancing the development of and access to therapies for rare diseases will come together for the third annual U.S. Conference on Rare Diseases and Orphan Products, held in Bethesda, Oct. 7–9. The conference is hosted by DIA and the National Organization for...

2013-02-28 23:03:43

Snappin' Ministries, Inc. serves as official Rare Disease Day Partner. Oconomowoc, WI (PRWEB) February 28, 2013 Working with parents in raising a child with special needs requires an organization to have a broad knowledge of a variety of diagnoses, many of them are rare. This is one reason why Snappin' Ministries, a non-profit organization committed to supporting parents of children with special needs, based at Oconomowoc, Wisconsin, is pleased to serve each year as a Rare Disease Day...


Word of the Day
abrosia
  • Wasting away as a result of abstinence from food.
The word 'abrosia' comes from a Greek roots meaning 'not' and 'eating'.