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Latest Facioscapulohumeral muscular dystrophy Stories

2014-08-18 23:04:58

FSHD Connect Unites Patients, Doctors and Researchers to Explore New Insights on Rare Disease Boston, MA (August 18, 2014) (PRWEB) August 18, 2014 The FSH Society, the Massachusetts-based charitable non-profit organization, is pleased to announce that Senator Elizabeth Warren expressed her support for the Biennial “FSHD Connect” International Network Meeting and FSHD research and awareness, in her opening video remarks on Saturday, August 16. The meeting, held August 16-17, 2014 at...

2014-08-12 08:30:36

SYDNEY, Aug. 12, 2014 /PRNewswire/ -- The Australian biotechnology company, Novogen Limited (ASX: NRT; NASDAQ: NVGN), today announced receipt of funding from the FSHD Global Research Foundation as part of the Company's efforts to find effective treatments for a range of musculo-degenerative diseases including facioscapulohumeral dystrophy (FSHD). http://photos.prnewswire.com/prnvar/20131220/NY36990LOGO FSHD is one of the most common forms of muscular dystrophy and genetic hereditary...

2014-08-05 23:05:42

Massachusetts Senator Elizabeth Warren Expresses Support for Boston FSHD Connect Meeting Boston (PRWEB) August 05, 2014 The FSH Society, the Massachusetts-based charitable non-profit organization that has transformed the science of a little-known disease, facioscapulohumeral muscular dystrophy (FSHD), today announced its Biennial “FSHD Connect” International Network Meeting. The meeting, being held August 16-17, 2014 at the Westin Boston Waterfront hotel, will be one of the largest...

2014-07-16 23:02:53

Seed monies for FSH Muscular Dystrophy research by Seattle-based Friends of FSH Research non-profit pays off in huge NIH funding. This community supported non-profit is helping to change the landscape of FSH research. (PRWEB) July 16, 2014 NIH awards $6.3 million grant to Seattle muscular dystrophy researchers A group of Seattle-based muscular dystrophy researchers has been awarded a prestigious $6.3 million grant from the National Institute of Health (NIH) to establish a Senator Paul D....

2014-07-07 23:03:55

New York Philanthropist to Donate up to $5,000 to the FSH Society, Providing $1 for Each Selfie Posted Using the Campaign Hashtag Boston, MA (PRWEB) July 07, 2014 The FSH Society, the Massachusetts-based charity that has transformed the science of a little-known disease, facioscapulohumeral muscular dystrophy (FSHD), today announced the launch of its #FSHDselfies Campaign. The campaign is designed to encourage consumers across the country to take a selfie using the hashtag #FSHDselfies to...

2014-06-11 23:07:00

Thursday, July 24th at Yoshi’s Jazz Club in San Francisco, CA (PRWEB) June 11, 2014 On Thursday July 24, 2014, the FSH Society will hold a very special benefit concert at Yoshi’s Jazz Club in San Francisco with opera’s legendary singer, Frederica von Stade, who will perform an intimate and personal suite of songs with the acclaimed pianist Steven Blier. Net proceeds for “Songs in the Key of Steven Blier,” will go to support the work of the FSH Society, raising critical funds for...

2014-05-29 23:09:19

Couple Builds upon Success of Last Year’s Event to Raise Awareness of Little-Known Disease at Lakeside Michigan Event Gull Lake, MI (PRWEB) May 29, 2014 After last year’s wildly successful event, Michelle Mackay, wife of retired Kellogg’s CEO David Mackay, and her family will host the second annual festive event to raise awareness and funds for the FSH Society on Saturday, July 5 at their lakeside home in Gull Lake, Michigan. Always an active member of her community, Michelle has...

2014-04-29 23:05:19

Distinguished celebrities help increase visibility of rare incurable disease Lexington, MA (PRWEB) April 29, 2014 The FSH Society, the Massachusetts-based non-profit organization that has transformed the science of the rare incurable disease, facioscapulohumeral muscular dystrophy (FSHD), today announced its Honorary Board. The board of fourteen distinguished celebrities will work in cooperation with the FSH Society to raise visibility of FSHD, a disease that remains relatively unknown...

2014-04-10 23:22:50

Nonprofit organization receives sixth consecutive four-star rating. Lexington, MA (PRWEB) April 10, 2014 The FSH Society, the Massachusetts-based charitable foundation that has transformed the science of a little-known disease, facioscapulohumeral muscular dystrophy (FSHD), today announced it has received its sixth consecutive Charity Navigator four-star rating. Scoring 68.40 out of a possible 70 points in its evaluation, the FSH Society is currently listed as one of “10 Charities Worth...

2014-03-24 23:05:02

Innovative and entrepreneurial research an important step in ongoing search for FSHD treatments and cures Lexington, MA (PRWEB) March 24, 2014 Today, the FSH Society, a Massachusetts based non-profit that is a world leader in combating facioscapulohumeral dystrophy (FSHD), announced that it has awarded six grants totaling more $609,525 to new research projects. Through these studies, the FSH Society’s fellowship program aims to gain insights and achieve significant milestones into the...


Word of the Day
cenobite
  • One of a religious order living in a convent or in community; a monk: opposed to anchoret or hermit (one who lives in solitude).
  • A social bee.
This word comes from the Latin 'coenobium,' convent, which comes from the Greek 'koinobios,' living in community.
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