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Latest Global Genes Project Stories

2014-02-28 04:21:47

LEXINGTON, Massachusetts, February 28, 2014 /PRNewswire/ -- Global Initiatives Underscore Shire's Long-term Commitment to the Rare Disease Community Shire plc (LSE: SHP, NASDAQ: SHPG) today announced its support of Rare Disease Day and invites others to join them in its continued commitment to the rare disease community. Observed annually on the last day of February, Rare Disease Day is coordinated at the international level by the European Organisation for Rare...

2014-02-24 04:21:52

ALISO VIEJO, Calif., Feb. 24, 2014 /PRNewswire/ -- Global Genes (globalgenes.org), a leading patient advocacy organization representing the rare and genetic disease community, is once again inviting industry partners, patients, caregivers, family and friends of the tens of millions of people who suffer from rare and genetic diseases to Wear That You Care(TM) and support the seventh annual World Rare Disease Day on Friday, February 28, 2014. The Wear That You Care(TM) campaign was launched by...

2014-02-14 04:22:53

MIT's H@cking Medicine Program Will Deliver Technology Platform for Global Genes(TM) to Provide Novel Tools to Help Physicians Speed Diagnosis of Rare Disease Patients CHICAGO, Feb. 14, 2014 /PRNewswire-USNewswire/ -- Diagnosis is one of the most challenging problems faced by rare disease patients and caregivers. The Shire Rare Disease Impact Report found that it takes an average of 7.6 years for rare disease patients in the US to receive a proper diagnosis, with 2-3 misdiagnoses...

2013-02-28 23:03:43

Snappin' Ministries, Inc. serves as official Rare Disease Day Partner. Oconomowoc, WI (PRWEB) February 28, 2013 Working with parents in raising a child with special needs requires an organization to have a broad knowledge of a variety of diagnoses, many of them are rare. This is one reason why Snappin' Ministries, a non-profit organization committed to supporting parents of children with special needs, based at Oconomowoc, Wisconsin, is pleased to serve each year as a Rare Disease Day...


Word of the Day
tessitura
  • The prevailing range of a vocal or instrumental part, within which most of the tones lie.
This word is Italian in origin and comes from the Latin 'textura,' web, structure.