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Last updated on April 20, 2014 at 14:04 EDT

Latest Haemophilia Stories

2013-02-05 08:35:20

BEDFORD, Mass., Feb. 5, 2013 /PRNewswire/ -- Instrumentation Laboratory (IL) today announced the release of their new HemosIL AcuStar von Willebrand Factor (VWF) assay panel as a European CE IVD Mark product under the European Directive on in vitro Diagnostic Medical Devices. The CE IVD Mark allows IL to commence distribution of the product in the European Union and other international territories. The fully automated HemosIL AcuStar VWF assay panel, designed exclusively for use on the ACL...

2013-01-30 08:30:15

KING OF PRUSSIA, Pa., Jan. 30, 2013 /PRNewswire/ -- CSL Behring announced today that it has awarded $78,750 in Local Empowerment for Advocacy Development (LEAD) grants to patient advocacy organizations in New York and Ohio, and to the American Plasma Users Coalition (APLUS). LEAD grants are intended to help local patient organizations achieve their advocacy objectives by further developing an existing initiative or creating a new one. (Logo:...

2013-01-21 08:24:57

KING OF PRUSSIA, Pa., Jan. 21, 2013 /PRNewswire/ -- CSL Behring has announced that the first patient has been enrolled in the pivotal pediatric phase III study to evaluate the safety, efficacy and pharmacokinetics of recombinant fusion protein linking coagulation factor IX with recombinant albumin (rIX-FP) in previously treated children (up to age 11 years). The study site for this first enrollment is the Czech Republic. "CSL continues to advance at a very encouraging rate with our...

2012-12-06 08:24:53

PRAIRIEVILLE, La., Dec. 6, 2012 /PRNewswire/ -- A Louisiana man is telling the story of a largely unknown American health crisis involving the nation's blood supply, that claimed thousands of lives due to national irresponsibility and lack of proactive oversight. Gary William Cross recalls his pivotal role in what was called the nation's "hemophilia HIV pandemic" in his new memoir, Vial 023: A Father's Pursuit of Justice. The book tells how Cross' hemophiliac son, Brad, died in April 1993...

2012-11-28 04:21:19

WAYNE, N.J., Nov. 28, 2012 /PRNewswire/ -- Bayer's BAY 86-6150 is being investigated in a Phase II/III study called TRUST (TReatment with Unique recombinant rFVIIa STudy), and the recruitment of the first cohort is now complete. Recruitment is ongoing at sites located around the world, including in the U.S., where sites are ready to enroll eligible patients. The TRUST trial is designed to evaluate the safety and efficacy of the investigational compound BAY 86-6150, a recombinant...

2012-11-27 08:25:27

PRINCETON, N.J., Nov. 27, 2012 /PRNewswire/ -- Novo Nordisk announced today the introduction of HemaGo, a mobile application (app) to help individuals with hemophilia and their caregivers monitor the details of treatment, including medications, dosing, bleed information and the impact of hemophilia on life events. The app offers multiple profiles so that more than one family member can use the tool. HemaGo helps them track multiple medications, set reminders for treatment or doctor's...

2012-11-21 00:17:04

New insights into what causes uncontrollable bleeding in hemophilia patients are provided in a study published by Cell Press on November 20th in the Biophysical Journal. By revealing that blood clots spread in traveling waves through vessels, the study offers new strategies that could lead to the development of more effective treatments for hemophilia as well as common cardiovascular disorders. "Disorders of blood coagulation are a leading and immediate cause of mortality and morbidity in...

2012-11-08 12:27:59

WAYNE, N.J., Nov. 8, 2012 /PRNewswire/ -- At the National Hemophilia Foundation (NHF) Annual Meeting in Orlando today, Bayer HealthCare, the NHF and Save One Life celebrated the successful conclusion of the second annual Virtual Walk for Hemophilia, an engaging, online contest designed to raise awareness and funds for those living with bleeding disorders. With an innovative spin on the fundraising walk idea, The Virtual Walk for Hemophilia (www.walkforhemophilia.com) employs a website where...

2012-11-08 08:35:00

ORLANDO, Fla., Nov. 8, 2012 /PRNewswire/ -- A coalition of leaders in hemophilia advocacy and treatment today announced a nationwide program that will offer free genetic testing to people with hemophilia and their families. The partnership will be officially unveiled this evening at the 64(th) National Hemophilia Foundation (NHF) Annual Meeting in Orlando, Florida. To view the multimedia assets associated with this release, please click:...

2012-10-23 23:20:23

MONTREAL, Oct. 24, 2012 /PRNewswire/ - Pfizer Hemophilia is donating more than 35 million IUs of its recombinant factor IX therapy to the World Federation of Hemophilia (WFH) to help hemophilia B patients in underserved regions of the world. "This donation has the potential to impact people living with hemophilia B in more than 40 countries worldwide," said Alain Weill, WFH president. "The WFH relies on these donations to advance our goal of improving and introducing treatment in...