Latest Immunodeficiency Stories

Patient Services, Inc. Honors Members of Congress and Marcia Boyle of the Immune Deficiency Foundation in Washington, DC

2013-05-03 16:22:18

MIDLOTHIAN, Va., May 3, 2013 /PRNewswire-USNewswire/ -- Patient Services, Inc. (PSI) honored several members of Congress and patient advocate, Marcia Boyle, of the Immune Deficiency Foundation at a reception in Washington, DC, on Wednesday, April 24, 2013. This important event highlighted the access and affordability challenges facing patients with rare, chronic conditions. (Photo: http://photos.prnewswire.com/prnh/20130503/DC07412 ) (Logo:...

President & Founder of the Immune Deficiency Foundation, Marcia Boyle, Named Inaugural Recipient of Patient Services, Inc.'s President Award

2013-05-02 16:30:56

TOWSON, Md., May 2, 2013 /PRNewswire/ -- Marcia Boyle, President & Founder of the Immune Deficiency Foundation (IDF) was awarded the inaugural President's Award from the Patient Services, Inc. (PSI). Marcia was recognized by PSI for her leadership in the patient advocacy community. Congresswoman Doris Matsui (D-CA), a dedicated advocate for the patient community, presented the award to Boyle at a reception in Washington DC on Wednesday, April 24, 2013. PSI's President Award...

Jeffrey Modell Foundation joins with 32 countries to launch World Primary Immunodeficiency Week

2013-04-22 08:30:12

NEW YORK, April 22, 2013 /PRNewswire-USNewswire/ -- The Jeffrey Modell Foundation, in collaboration with physician experts and patient groups from 32 countries, launched World Primary Immunodeficiency Week beginning today. To view the multimedia assets associated with this release, please click http://www.prnewswire.com/news-releases/jeffrey-modell-foundation-joins-with-32-countries-to-launch-world-primary-immunodeficiency-week-202423081.html Primary Immunodeficiencies (PI) are...

April is National Primary Immunodeficiency Awareness Month

2013-04-01 16:24:07

Immune Deficiency Foundation (IDF) Plans Series of Activities to Educate Public and Get Patients with Primary Immunodeficiency Diseases the Resources They Need TOWSON, Md., April 1, 2013 /PRNewswire/ -- Approximately 250,000 people are diagnosed with primary immunodeficiency diseases in the United States, but thousands more go undetected and untreated. These diseases are chronic illnesses caused by hereditary or genetic defects in the immune system in which part of the body's...

Baxter And Halozyme Announce Positive Opinion For HyQvia For Treatment Of Primary And Secondary Immunodeficiencies In The European Union

2013-03-22 08:25:02

LONDON, March 22, 2013 /PRNewswire/ -- Baxter International Inc. (NYSE: BAX) and Halozyme Therapeutics, Inc., (NASDAQ: HALO) today announced that the European Medicines Agency's Committee for Medicinal Products for Human Use (EMA CHMP) has granted a Positive Opinion to Baxter for the use of HyQvia (solution for subcutaneous use) as replacement therapy for adult patients with primary and secondary immunodeficiencies. The product is a combination of human normal immunoglobulin (IGSC,...

President Obama Signs into Law Medicare IVIG Access Act

2013-01-10 16:23:10

WASHINGTON, Jan. 10, 2013 /PRNewswire/ -- The Immune Deficiency Foundation (IDF), the national patient organization dedicated to improving the lives of persons with primary immunodeficiency diseases (PIDD), is proud to announce that the Medicare IVIG Access Act (HR 1845) was signed into law today, January 10, 2013, by President Obama. HR 1845 provides for a demonstration project to examine the benefits of providing coverage and payment for items and services necessary to administer...

CSL Behring Partners with Pro Supercross Racer Carl Schlacht to Encourage Those with Primary Immunodeficiency to be a "ChamPIon"

2012-12-13 08:26:39

KING OF PRUSSIA, Pa., Dec. 13, 2012 /PRNewswire/ -- CSL Behring has teamed up with Professional Supercross racer Carl Schlacht to launch www.IamaChamPIon.com. This new online resource is part of the I am a ChamPIon campaign, a partnership that aims to raise awareness of primary immunodeficiency disease (PI or PIDD) while encouraging those with the condition to pursue their dreams despite the challenges that PI can pose. "PI is a genetic disorder that can have a dramatic impact...

Texas Will Screen Newborns for SCID Beginning December 1

2012-12-01 12:20:06

TOWSON, Md., Dec. 1, 2012 /PRNewswire/ -- The Texas Department of State Health Services (DSHS) will add Severe Combined Immunodeficiency (SCID) to the state's Newborn Screening Panel beginning December 1, 2012. The Immune Deficiency Foundation (IDF), the national patient organization for persons with primary immunodeficiency diseases, commends the state of Texas and the dedicated volunteers who have advocated for this cause. Screening for SCID increases the probability of early...

Iowa Launches Pilot to Screen Newborns for Severe Combined Immune Deficiency

2012-10-17 11:24:07

TOWSON, Md., Oct. 17, 2012 /PRNewswire/ -- The Immune Deficiency Foundation (IDF), the national patient organization for persons with primary immunodeficiency diseases, applauds the decision of the Iowa Department of Public Health to expand its newborn screening program to include screening for Severe Combined Immune Deficiency Disease (SCID), known as bubble boy disease. The Department of Public Health made the announcement on their website Wednesday, October 10, 2012. SCID has...

Florida to Test Newborns for SCID, a Life-Threatening Immune Disease

2012-10-02 06:24:36

TOWSON, Md., Oct. 2, 2012 /PRNewswire/ -- The Florida Department of Health has added Severe Combined Immune Deficiency Disease (SCID), known as bubble boy disease, to the list of conditions that all newborns in the state are screened for at birth beginning October 1, 2012. SCID is a primary immunodeficiency disease where affected infants lack T lymphocytes or white blood cells that help fight infections from a wide array of viruses, bacteria and fungi, leaving these infants...