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Last updated on April 20, 2014 at 8:28 EDT

Latest Immunodeficiency Stories

2014-01-09 20:21:01

Statement from Charles Lyons, President and CEO WASHINGTON, Jan. 9, 2014 /PRNewswire-USNewswire/ -- "The Elizabeth Glaser Pediatric AIDS Foundation (EGPAF) welcomes the nomination of Deborah Birx, M.D. as the new U.S. Global AIDS Coordinator. Dr. Birx will lead the U.S. Department of State's Office of the Global AIDS Coordinator as it develops sustainable solutions to global health challenges, including efforts to eliminate HIV/AIDS. "Dr. Birx has been on the frontline of the...

2014-01-03 12:23:32

TOWSON, Md., Jan. 3, 2014 /PRNewswire/ -- The Immune Deficiency Foundation (IDF), the national patient organization for persons with primary immunodeficiency diseases, commends the state of Washington for their decision to add Severe Combined Immune Deficiency (SCID) to the list of conditions that all newborns in the state are screened for at birth effective January 1, 2014. SCID is commonly known as "bubble boy disease" after David Vetter, a boy who lived in a germ-free bubble for...

2013-12-19 16:27:16

TOWSON, Md., Dec. 19, 2013 /PRNewswire/ -- A team led by the Immune Deficiency Foundation (IDF) has been approved for a funding award by the Patient-Centered Outcomes Research Institute (PCORI) to develop and expand a health data network that will be part of PCORnet: the National Patient-Centered National Clinical Research Network. The Immune Deficiency Foundation PI Connect data network is one of 29 that were approved for a total of $93.5 million from PCORI on December 17 to form...

Traces Of HIV Virus Found In Blood Of Previously ‘Cured’ Patients
2013-12-08 06:38:53

redOrbit Staff & Wire Reports – Your Universe Online After being declared HIV-free following a dangerous bone marrow transplant procedure earlier this summer, a pair of Boston-area men are now apparently showing traces of the virus in their blood once again. In July, the two patients tested negative for the immunodeficiency virus. Now, however, Brigham and Women’s Hospital associate professor of infectious diseases Dr. Timothy Henrich, speaking at an international AIDS research...

2013-12-05 23:36:35

A new guideline released Thursday by the Infectious Diseases Society of America (IDSA) notes that most people with compromised immune systems are especially vulnerable to illness and should receive the flu shot and other vaccinations. The guideline, entitled "Clinical Practice Guideline for the Vaccination of the Immunocompromised Host," was authored by Lorry G. Rubin, MD, director of the pediatric infectious diseases at Cohen Children's Medical Center of New York in New Hyde Park, NY, and...

2013-12-04 23:01:47

Julianna Margulies, Gloria Reuben, and Mary Steenburgen deliver dramatic readings, Michael Feinstein and the cast of Broadway musical Fela! perform to celebrate EGPAF’s 25th anniversary and support ending pediatric HIV/AIDS. New York, NY (PRWEB) December 04, 2013 Tuesday night, the Elizabeth Glaser Pediatric AIDS Foundation (EGPAF) honored Former Secretary of State and U.S. Senator Hillary Rodham Clinton with their Global Impact Award for her extraordinary legacy of leadership and...

2013-12-04 08:30:52

NEW YORK, Dec. 4, 2013 /PRNewswire/ -- Does your pediatrician or family practitioner tell you that your son or daughter "is a kid and all kids get sick"? It may not be a complete medical diagnosis. The underlying condition could be a Primary Immunodeficiency (PI), a disorder in which children and adults suffer with unexplained chronic and recurring infections. When left undiagnosed the immune system remains compromised, leading to a lifetime of chronic disease, permanent organ...

2013-11-19 23:01:10

Statement of Charles Lyons, President and CEO of the Elizabeth Glaser Pediatric AIDS Foundation Washington, DC (PRWEB) November 19, 2013 "The Elizabeth Glaser Pediatric AIDS Foundation (EGPAF) applauds the U.S. Congress for passing the U.S. President’s Emergency Plan for AIDS Relief (PEPFAR) Stewardship and Oversight Act of 2013. Ten years into the PEPFAR program, we are at a critical time in the global AIDS response. Passage of this legislation not only reaffirms the U.S....

2013-10-29 16:25:10

TOWSON, Md., Oct. 29, 2013 /PRNewswire/ -- The Board of Trustees of the Immune Deficiency Foundation (IDF) is pleased to announce that the Foundation has met all of the requirements of the National Health Council (NHC) Standards of Excellence Certification Program(®). The standards cover the areas of governance, human resources, programs, fundraising, finance, accounting, reporting and evaluation. "IDF has always maintained high standards and implemented best practices while...

2013-10-07 23:05:09

Project will offer support and expertise to health ministries to improve HIV/AIDS services. Washington, D.C. (PRWEB) October 07, 2013 The Elizabeth Glaser Pediatric AIDS Foundation (EGPAF) is pleased to announce the launch of a new HIV/AIDS technical assistance project, funded by the U.S. Centers for Disease Control and Prevention (CDC) through the U.S. President’s Emergency Plan for AIDS Relief(PEPFAR). EGPAF will offer technical support for health system strengthening and service...