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Last updated on April 23, 2014 at 11:29 EDT

Latest Jeffrey Modell Foundation Stories

2014-04-22 12:31:08

NEW YORK, April 22, 2014 /PRNewswire-USNewswire/ -- From April 22(nd )to April 29(th), the Jeffrey Modell Foundation (JMF) and 75 locations across 50 countries, will join together to celebrate the annual World Primary Immunodeficiency Week (WPIW). http://photos.prnewswire.com/prnvar/20140417/76370 JMF will host their simultaneous balloon launch in New York City and around the world to represent their commitment to this global movement to raise awareness for Primary...

2013-12-16 08:27:14

NEW YORK, Dec. 16, 2013 /PRNewswire/ -- The newborn screening test for Severe Combined Immune Deficiency (SCID) using the TREC Assay, is 100 percent sensitive and not a single newborn with this life threatening defect has been lost since the test's implementation five years ago. Nevertheless, public health officials still deliberate over the test's economic efficiency and that has resulted in the Jeffrey Modell Foundation's (JMF) newly created economic model, "Decision Tree."...

2013-12-04 08:30:52

NEW YORK, Dec. 4, 2013 /PRNewswire/ -- Does your pediatrician or family practitioner tell you that your son or daughter "is a kid and all kids get sick"? It may not be a complete medical diagnosis. The underlying condition could be a Primary Immunodeficiency (PI), a disorder in which children and adults suffer with unexplained chronic and recurring infections. When left undiagnosed the immune system remains compromised, leading to a lifetime of chronic disease, permanent organ...

2013-11-14 08:34:34

NEW YORK, Nov. 14, 2013 /PRNewswire-USNewswire/ -- 212 world renowned experts in Primary Immunodeficiency from 78 countries signed a "Berlin Declaration" calling for global implementation of newborn screening for Severe Combined Immunodeficiency (SCID), at the recently convened Berlin Summit organized by the Jeffrey Modell Foundation. http://photos.prnewswire.com/prnvar/20131114/MM16675-a The meeting brought together physicians from the Jeffrey Modell Centers Network (JMCN)...

2013-04-29 08:28:32

NEW YORK, April 29, 2013 /PRNewswire-USNewswire/ -- Who would have ever thought that sequestration and budget battles would determine whether a precious newborn baby would survive? How is it possible that a "continuing resolution" could actually deprive a newborn baby of "continuing" his or her life? It is exactly what has happened to our innocent newborns, who are victimized by government officials that are dealing with partisan politics and divisiveness. To view the multimedia...

2013-04-22 08:30:12

NEW YORK, April 22, 2013 /PRNewswire-USNewswire/ -- The Jeffrey Modell Foundation, in collaboration with physician experts and patient groups from 32 countries, launched World Primary Immunodeficiency Week beginning today. To view the multimedia assets associated with this release, please click http://www.prnewswire.com/news-releases/jeffrey-modell-foundation-joins-with-32-countries-to-launch-world-primary-immunodeficiency-week-202423081.html Primary Immunodeficiencies (PI) are genetic...

2012-11-28 08:30:44

NEW YORK, Nov. 28, 2012 /PRNewswire/ -- The Jeffrey Modell Foundation (JMF), a global non-profit organization dedicated to early diagnosis, proper treatment, and public awareness of genetic immune deficiency diseases, known as Primary Immunodeficiencies (PI), today announced a working collaboration with the Bill & Melinda Gates Foundation to achieve a common goal to end polio worldwide. To view the multimedia assets associated with this release, please click...

2012-07-24 10:23:48

PLYMOUTH, Minn., July 24, 2012 /PRNewswire/ --The Jeffrey Modell Foundation (JMF), in partnership with CSL Behring, has designated the Midwest Immunology Clinic in Plymouth, Minnesota as a Jeffrey Modell Diagnostic Center for Primary Immunodeficiencies (PI). The Center is headed by Ralph Shapiro, M.D. and is devoted to the diagnosis, treatment and care of people who have PI and autoimmune disorders. "This is a very exciting day for Midwest Immunology Clinic," said Dr. Shapiro. "We are...

2012-05-07 02:33:03

NEW YORK, May 7, 2012 /PRNewswire/ -- Physicians from 17 Middle East countries will convene next month for the first Middle East Workshop on Primary Immunodeficiencies (PI). The three day meeting is being organized by the Jeffrey Modell Foundation (JMF), a global organization dedicated to PI research, physician education, patient support, public awareness, advocacy and newborn screening. There are 493 referral physicians at 194 diagnostic and research centers in the Jeffrey Modell Centers...

2012-04-23 02:24:43

NEW YORK, April 23, 2012 /PRNewswire/ -- 25 years ago, Vicki and Fred Modell established the Jeffrey Modell Foundation, in memory of their son Jeffrey, who lost his battle with Primary Immunodeficiency (PI) at the age of 15. The Foundation (JMF) is a global organization dedicated to Research, Physician Education, Patient Support, Public Awareness, Advocacy, and Newborn Screening. There are 194 Jeffrey Modell Centers around the world. To view the multimedia assets associated with this...