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Latest Mucinoses Stories

2011-08-19 12:00:00

Dinesh Khanna, M.D., M.Sc., Honored at Annual Banquet in San Francisco DANVERS, Mass., Aug. 19, 2011 /PRNewswire-USNewswire/ -- The Scleroderma Foundation named Dinesh Khanna, M.D., M.Sc., its 2011 Doctor of the Year during this year's National Patient Education Conference held last month in San Francisco. The award recognizes a skilled physician or researcher for his or her involvement within the Foundation, and for helping provide guidance and support to the organization's patient...

2011-08-12 12:30:00

LAKE STEVENS, Wash., Aug. 12, 2011 /PRNewswire-USNewswire/ -- Ryan Roy, of Bellingham, Wash., only has been doing triathlons for two years. In 2010, he completed three races at sprint and Olympic distances. For 2011, in addition to competing in sprint and Olympic triathlons, and his first half marathon in Seattle, Ryan will race Sunday in his first Ironman competition while battling for a cause that means a lot to him and his family. On Sunday, Aug. 14, Ryan will battle the Ironman 70.3...

2011-07-12 22:19:22

Systemic scleroderma has slowed Tracy Zinn but it has not stopped her from working. Thanks in part to determination and an accommodating employer, Zinn is now in her 13th year as an account executive for a firm that produces educational software. But, many with the incapacitating disease are not as fortunate. In the United States, the work disability rate for people with systemic scleroderma, also known as systemic sclerosis, is two to three times that of people with some other rheumatic...

2011-05-31 12:00:00

Going Social to Spread the Word in 2011 DANVERS, Mass., May 31, 2011 /PRNewswire-USNewswire/ -- June is Scleroderma Awareness Month, and you can become an advocate for the Scleroderma Foundation by raising awareness and teaching others about this chronic, connective tissue disease. This month, join our 23 chapters and more than 145 support groups, as we work to spread the word about this devastating disease. Teaming up with the Scleroderma Foundation in 2011 to spread awareness in the...

2011-03-28 17:19:49

A drug approved to treat certain types of cancer has shown promising results in the treatment of patients with scleroderma, according to results from an open-label Phase II trial. While the drug's efficacy must be demonstrated in a Phase III trial, the gold standard for testing a drug, researchers are optimistic that Gleevecâ“ž¢ (imatinib) could potentially be a weapon against the chronic connective tissue disease for which a treatment has remained elusive. "This...

2011-03-08 15:44:12

Modified-release therapy is well tolerated in clinical trial Researchers in Europe reported that treatment with modified-release sildenafil significantly reduced the frequency of attacks of Raynaud's phenomenon in patients with limited cutaneous systemic sclerosis (lcSSc), also known as scleroderma. The double-blind, placebo-controlled trial found that sildenafil was well tolerated with only some subjects experiencing minor or moderate side effects. Full findings are available in the March...

2010-11-08 11:17:42

New research from Georgetown University Medical Center (GUMC) suggests that up to 40 percent of scleroderma patients will not be correctly diagnosed with the disorder using a new automated commercial screening test. The findings of the study will be presented Wednesday, November 10th at the Annual Scientific Meeting of the American College of Rheumatology in Atlanta, Georgia. The American College of Rheumatology recommends immunofluorescence antinuclear antibody (IF-ANA) testing to help...

2010-09-30 12:42:00

DANVERS, Mass., Sept. 30 /PRNewswire-USNewswire/ -- The Scleroderma Foundation applauds the U.S. House of Representatives today for the passage of the Scleroderma Research and Awareness Act (H.R. 2408), introduced last March by Rep. Lois Capps (D-CA) and Rep. Vern Ehlers (R-MI). This bipartisan legislation gives hope to the estimated 300,000 Americans and their families living with this devastating disease. Scleroderma is a chronic and disabling connective tissue disorder resulting from...


Word of the Day
mundungus
  • A stinking tobacco.
  • Offal; waste animal product; organic matter unfit for consumption.
This word comes from the Spanish 'mondongo,' tripe, entrails.