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Latest Muscular Dystrophy Community Assistance Research and Education Amendments Stories

2014-09-19 04:21:53

CHICAGO, Sept. 19, 2014 /PRNewswire-USNewswire/ -- The Muscular Dystrophy Association and the entire muscular dystrophy community are celebrating a tremendous victory today after the MD-CARE Act (S.315) passed in the Senate by unanimous consent late Thursday night. This follows the successful passage of the House version of this critical legislation (H.R. 594) in July. The MD-CARE Act (Paul D. Wellstone Muscular Dystrophy Community Assistance Research and Education Amendments Act) is...

2014-09-17 12:24:23

WACO, Texas, Sept. 17, 2014 /PRNewswire-USNewswire/ -- For the sixth year in a row, college football coaches nationwide will join together in support of the Coach To Cure MD program, which will be held during games of Saturday, September 27, 2014. The rapidly growing annual effort has raised more than a million dollars to battle Duchenne muscular dystrophy. On September 27th, American Football Coaches Association (AFCA) members will wear a Coach To Cure MD logo patch on the sidelines...

2014-08-18 23:04:58

FSHD Connect Unites Patients, Doctors and Researchers to Explore New Insights on Rare Disease Boston, MA (August 18, 2014) (PRWEB) August 18, 2014 The FSH Society, the Massachusetts-based charitable non-profit organization, is pleased to announce that Senator Elizabeth Warren expressed her support for the Biennial “FSHD Connect” International Network Meeting and FSHD research and awareness, in her opening video remarks on Saturday, August 16. The meeting, held August 16-17, 2014 at...

2014-07-29 12:34:51

Bill will help ensure law focuses adequately on needs of adults with Duchenne and other forms of muscular dystrophy WASHINGTON, July 29, 2014 /PRNewswire-USNewswire/ -- The House of Representatives today approved legislation to update the landmark Muscular Dystrophy Community Assistance, Research, and Education (MD-CARE) Act so the law continues getting results for all patients impacted by Duchenne and other forms of muscular dystrophy....

2014-07-11 08:24:34

PPMD one of four patient organizations testifying on 21st Century Cures Initiative; Focus will be on Accelerating Access Initiative HACKENSACK, N.J., July 11, 2014 /PRNewswire-USNewswire/ -- Pat Furlong, Founding President and CEO of Parent Project Muscular Dystrophy (PPMD), the leading advocacy organization working to end Duchenne muscular dystrophy (Duchenne), will testify today before a key Congressional committee focused on accelerating development and delivery of therapies to patients....

2014-02-25 16:28:51

WASHINGTON, Feb. 25, 2014 /PRNewswire-USNewswire/ -- At a Congressional hearing today in Washington, the Muscular Dystrophy Association's (MDA) chief executive briefed legislators on the enormous impact of the MD-CARE Act passed in 2001 and implored lawmakers to reauthorize this crucial legislation on behalf of the 100,000 Americans with muscular dystrophies. http://photos.prnewswire.com/prnvar/20120424/DC93207LOGO MDA co-hosted the briefing with Parent Project Muscular Dystrophy...

2013-11-15 23:04:44

FSH Society partners with Wellstone Muscular Dystrophy Cooperative Research Center. Boston, Massachusetts (PRWEB) November 15, 2013 A new cooperative research center focusing on Facioscapulohumeral Muscular Dystrophy (FSHD) has been established at the University of Massachusetts Medical School (UMMS). The National Institutes of Health Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center will focus its research and training programs on FSHD, one of the most prevalent...


Word of the Day
jument
  • A beast of burden; also, a beast in general.
'Jument' ultimately comes from the Latin 'jugum,' yoke.
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