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Latest Muscular Dystrophy Community Assistance Research and Education Amendments Stories

2014-07-29 12:34:51

Bill will help ensure law focuses adequately on needs of adults with Duchenne and other forms of muscular dystrophy WASHINGTON, July 29, 2014 /PRNewswire-USNewswire/ -- The House of Representatives today approved legislation to update the landmark Muscular Dystrophy Community Assistance, Research, and Education (MD-CARE) Act so the law continues getting results for all patients impacted by Duchenne and other forms of muscular dystrophy....

2014-07-11 08:24:34

PPMD one of four patient organizations testifying on 21st Century Cures Initiative; Focus will be on Accelerating Access Initiative HACKENSACK, N.J., July 11, 2014 /PRNewswire-USNewswire/ -- Pat Furlong, Founding President and CEO of Parent Project Muscular Dystrophy (PPMD), the leading advocacy organization working to end Duchenne muscular dystrophy (Duchenne), will testify today before a key Congressional committee focused on accelerating development and delivery of therapies to patients....

2014-02-25 16:28:51

WASHINGTON, Feb. 25, 2014 /PRNewswire-USNewswire/ -- At a Congressional hearing today in Washington, the Muscular Dystrophy Association's (MDA) chief executive briefed legislators on the enormous impact of the MD-CARE Act passed in 2001 and implored lawmakers to reauthorize this crucial legislation on behalf of the 100,000 Americans with muscular dystrophies. http://photos.prnewswire.com/prnvar/20120424/DC93207LOGO MDA co-hosted the briefing with Parent Project Muscular Dystrophy...

2013-11-15 23:04:44

FSH Society partners with Wellstone Muscular Dystrophy Cooperative Research Center. Boston, Massachusetts (PRWEB) November 15, 2013 A new cooperative research center focusing on Facioscapulohumeral Muscular Dystrophy (FSHD) has been established at the University of Massachusetts Medical School (UMMS). The National Institutes of Health Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center will focus its research and training programs on FSHD, one of the most prevalent...

2011-12-14 11:52:29

People who have the most common type of adult muscular dystrophy also have a higher risk of getting cancer, according to a paper published today in the Journal of the American Medical Association. The team found that patients who have myotonic muscular dystrophy are at increased risk primarily for four types of cancer: brain, ovary, colon, and the uterine lining known as the endometrium. The team also found a possible increased risk for some other types of cancer, including cancer of the...

2011-02-08 10:14:00

Efforts over decade result in $192 million in Duchenne-specific federal investment HACKENSACK, N.J., Feb. 8, 2011 /PRNewswire-USNewswire/ -- Parent Project Muscular Dystrophy (PPMD) - the largest non-profit organization in the United States focused on finding a cure for Duchenne muscular dystrophy (Duchenne) - will host their annual Advocacy Conference, including the One Voice Advocacy Summit, in Washington, D.C. from February 13 - 15, 2011. (Logo:...

2010-11-02 08:10:10

(Ivanhoe Newswire) -- Muscular dystrophies or MD are a group of more than 30 genetic diseases characterized by progressive weakness and degeneration of the skeletal muscles that control movement. New research is now helping establish a new and unifying model for the cause of a common type of MD called facioscapulohumeral dystrophy. Facioscapulohumeral refers to the muscles that move the face, shoulder blade, and upper arm bone. This form of muscular dystrophy appears in the teens to early...


Word of the Day
baudekin
  • A rich embroidered or brocaded silk fabric woven originally with a warp of gold thread.
'Baudekin' seems to be an alternative form of 'baldachin,' from the Italian 'Baldacco,' Baghdad, the city where the material was made.
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