Latest Muscular Dystrophy Community Assistance Research and Education Amendments Stories

2009-01-23 13:47:00

Online Resource Links Patients With Researchers, Clinicians MIDDLETOWN, Ohio, Jan. 23 /PRNewswire-USNewswire/ -- Patricia A. Furlong, Founding President and CEO of Parent Project Muscular Dystrophy (PPMD), the largest non-profit organization in the United States focused on finding a cure for Duchenne muscular dystrophy (Duchenne), announced the one year anniversary of DuchenneConnect, a central online arena linking the resources and needs of the Duchenne and Becker muscular dystrophy...

2008-09-27 15:00:42

To: MEDICAL EDITORS Contact: Bob Mackle, Vice President, Public Information of Muscular Dystrophy Association, +1-520-529-5317, bobmackle@mdausa.org TUCSON, Ariz., Sept. 27 /PRNewswire-USNewswire/ -- The Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education (MD-CARE) Amendments of 2008 received final Congressional approval today. It now goes to President Bush, who is expected to sign it. The approved legislation -- which reauthorizes and updates the MD-...

2008-09-24 18:00:40

WASHINGTON, Sept. 24 /PRNewswire-USNewswire/ -- Legendary entertainer and MDA National Chairman Jerry Lewis today expressed gratitude to all those working to pass the Muscular Dystrophy Community Assistance, Research and Education (MD-CARE) Amendments of 2008. The legislation, which today passed the House, reauthorizes and augments the MD-Care Act signed into law in 2001. The bill still is pending in the Senate. "I want to thank the entire MD advocacy community for getting behind this...

2008-09-18 12:00:40

The Myotonic Dystrophy Foundation (MDF), a patient advocacy organization, is excited to announce the launch of its long-awaited website, www.myotonic.com. It offers expansive information to help affected families understand and cope with this complex, multisystemic disorder. The primary mission of the MDF focuses on education (for families and medical providers), advocacy and research. All disease information on the website has been edited and approved by members of the MDF Medical and...

2008-09-10 12:00:51

BOSTON, Sept. 10 /PRNewswire-USNewswire/ -- The U.S. National Institutes of Health (NIH) have awarded $9 million to launch a unique collaboration of researchers, clinicians, patients, government research agencies and pharmaceutical/biomedical companies to study the causes and potential treatments for facioscapulohumeral muscular dystrophy (FSHD), a muscle weakening and disabling disease that affects, at the least, one in 20,000 individuals worldwide. The award will create the first Senator...

2008-04-30 08:56:26

New study in the FASEB Journal identifies c-FLIP and calpain-3 proteins as drug targets in limb-girdle muscular dystrophy and other conditionsA team of French and German researchers report in the May 2008 print issue of The FASEB Journal that people with limb-girdle muscular dystrophy are missing a protein called c-FLIP, which the body uses to prevent the loss of muscle tissue. By targeting the cellular and molecular mechanisms responsible for creating this protein, scientists could develop...

Word of the Day
  • A spider.
  • Figuratively, a peevish, testy, ill-natured person.
'Attercop' comes from the Old English 'atorcoppe,' where 'atter' means 'poison, venom' and‎ 'cop' means 'spider.' 'Coppa' is a derivative of 'cop,' top, summit, round head, or 'copp,' cup, vessel, which refers to 'the supposed venomous properties of spiders,' says the OED. 'Copp' is still found in the word 'cobweb.'