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Latest muscular dystrophy Stories

2014-07-17 23:01:11

Annual Fill the Boot Campaigns Heat Up This Summer; Events Nationwide Benefit Children and Adults Fighting Muscle Disease. CHICAGO, (PRWEB) July 17, 2014 The Muscular Dystrophy Association and the International Association of Fire Fighters (IAFF) are set to kick off another summer season of the fire fighters' spirited Fill the Boot campaign. Throughout 2014, the two organizations are celebrating 60 years of a partnership committed to saving and improving the lives of more than one...

2014-07-17 16:25:56

Annual Fill the Boot Campaigns Heat Up This Summer; Events Nationwide Benefit Children and Adults Fighting Muscle Disease CHICAGO, July 17, 2014 /PRNewswire-USNewswire/ -- The Muscular Dystrophy Association and the International Association of Fire Fighters (IAFF) are set to kick off another summer season of the fire fighters' spirited Fill the Boot campaign. Throughout 2014, the two organizations are celebrating 60 years of a partnership committed to saving and improving the lives...

2014-07-16 23:11:04

Jerry’s Auto Group has teamed up with the MDA to host a philanthropic event to help those living with muscular dystrophy. The event will be held on the July 21st and it will be a golf outing for the ages. Baltimore, MD (PRWEB) July 16, 2014 Muscular Dystrophy Association is a nonprofit agency dedicated to curing muscle disease, ALS and related diseases by funding worldwide research. The association also provides comprehensive health care and support services, advocacy and education....

2014-07-16 23:02:53

Seed monies for FSH Muscular Dystrophy research by Seattle-based Friends of FSH Research non-profit pays off in huge NIH funding. This community supported non-profit is helping to change the landscape of FSH research. (PRWEB) July 16, 2014 NIH awards $6.3 million grant to Seattle muscular dystrophy researchers A group of Seattle-based muscular dystrophy researchers has been awarded a prestigious $6.3 million grant from the National Institute of Health (NIH) to establish a Senator Paul D....

2014-07-11 08:24:34

PPMD one of four patient organizations testifying on 21st Century Cures Initiative; Focus will be on Accelerating Access Initiative HACKENSACK, N.J., July 11, 2014 /PRNewswire-USNewswire/ -- Pat Furlong, Founding President and CEO of Parent Project Muscular Dystrophy (PPMD), the leading advocacy organization working to end Duchenne muscular dystrophy (Duchenne), will testify today before a key Congressional committee focused on accelerating development and delivery of therapies to patients....

2014-07-09 16:28:13

-French ATU Cohort and Other Named Patient Programs Authorized - SOUTH PLAINFIELD, N.J., July 9, 2014 /PRNewswire/ -- PTC Therapeutics, Inc. (NASDAQ: PTCT) today announced the initiation of a reimbursed expanded access program (EAP). PTC's EAP program is intended to make Translarna(TM) (ataluren) available to patients before commercial availability in certain countries. Where mechanisms exist and in accordance with local regulations, PTC will make Translarna available to nonsense...

2014-07-08 12:28:25

THE LABOR DAY WEEKEND TRADITION WILL AIR IN PRIMETIME, SUNDAY, AUGUST 31, 9|8C CHICAGO, July 8, 2014 /PRNewswire/ -- For the first time, the Muscular Dystrophy Association's nationally broadcast telethon the MDA Show of Strength Telethon, one of America's longest-standing and beloved fundraising and entertainment events, will invite America to help shape the content of the show to air this Labor Day weekend. http://photos.prnewswire.com/prnvar/20140708/124950 "For decades,...

2014-07-07 23:03:55

New York Philanthropist to Donate up to $5,000 to the FSH Society, Providing $1 for Each Selfie Posted Using the Campaign Hashtag Boston, MA (PRWEB) July 07, 2014 The FSH Society, the Massachusetts-based charity that has transformed the science of a little-known disease, facioscapulohumeral muscular dystrophy (FSHD), today announced the launch of its #FSHDselfies Campaign. The campaign is designed to encourage consumers across the country to take a selfie using the hashtag #FSHDselfies to...

2014-06-30 08:30:29

SOUTH PLAINFIELD, N.J., June 30, 2014 /PRNewswire/ -- PTC Therapeutics, Inc. (NASDAQ: PTCT) today announced that it is the recipient of Parent Project Muscular Dystrophy's (PPMD) "Path to Progress" award, honoring PTC's 16 years of commitment to bring the first-ever therapy for the underlying cause of the disorder to patients with Duchenne muscular dystrophy (DMD). The award was presented at PPMD's Annual Connect Conference in Chicago, Illinois....

2014-06-26 23:01:21

Mother’s Market & Kitchen today announced that through the generosity of its customers, it has raised nearly $34,000 to send 43 kids affected by muscle disease to MDA Summer Camp. Costa Mesa, CA (PRWEB) June 26, 2014 Mother’s Market & Kitchen today announced that through the generosity of its customers, it has raised nearly $34,000 to send 43 kids affected by muscle disease to MDA Summer Camp at the Irvine Ranch Outdoor Education Center. MDA summer camp offers a wide range of...


Word of the Day
call-note
  • The call or cry of a bird or other animal to its mate or its young.
'Call-note' is newer than 'bird-call,' which originally referred to 'an instrument for imitating the note of birds' but now also refers to 'the song or cry of a bird.'
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