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Latest muscular dystrophy Stories

2014-06-26 23:01:21

Mother’s Market & Kitchen today announced that through the generosity of its customers, it has raised nearly $34,000 to send 43 kids affected by muscle disease to MDA Summer Camp. Costa Mesa, CA (PRWEB) June 26, 2014 Mother’s Market & Kitchen today announced that through the generosity of its customers, it has raised nearly $34,000 to send 43 kids affected by muscle disease to MDA Summer Camp at the Irvine Ranch Outdoor Education Center. MDA summer camp offers a wide range of...

2014-06-25 12:30:09

Parent Project Muscular Dystrophy-led guidance seeks to address unmet clinical needs of individuals with Duchenne muscular dystrophy and accelerate development of safe and effective therapies CHICAGO, June 25, 2014 /PRNewswire-USNewswire/ -- Parent Project Muscular Dystrophy (PPMD) and a broad coalition of stakeholders today submitted the first-ever patient advocacy-initiated draft guidance for a rare disease to the U.S. Food and Drug Administration (FDA) to help accelerate development and...

2014-06-24 23:01:49

Third annual ‘Make a Muscle’ Mobile Campaign to support the fight against muscle disease. Tempe, AZ (PRWEB) June 24, 2014 Western Refining and the Muscular Dystrophy Association announced today that the 2014 “Make A Muscle, Make A Difference®” mobile campaign raised $379,053 to help save and improve the lives of children and adults affected by muscle disease throughout the Southwest. “I am very proud of the effort demonstrated by both the employees and our great...

2014-06-23 16:24:42

Leading Duchenne-specific Organization Marks Anniversary with Largest International Meeting to Date HACKENSACK, N.J., June 23, 2014 /PRNewswire-USNewswire/ -- Parent Project Muscular Dystrophy (PPMD), the leading advocacy organization working to end Duchenne muscular dystrophy (Duchenne) will hold their 20(th) Annual Connect Conference in Chicago, Illinois, June 26-29, 2014. The State of Illinois will recognize the event by declaring the week of June 23 as Duchenne Muscular Dystrophy...

2014-06-19 14:28:14

American Academy of Neurology A new study suggests that people with muscle diseases such as muscular dystrophies may benefit more from group doctor visits than individual appointments. The study is published in the June 18, 2014, online issue of Neurology®, the medical journal of the American Academy of Neurology. "In this age when the demand for neurologists is rising faster than the supply and health care costs continue to rise, it's important to look for finding solutions that are...

2014-06-12 23:08:10

Central US location to serve as nationwide hub as MDA accelerates progress to find treatments and cures. Chicago, Illinois (PRWEB) June 12, 2014 The Muscular Dystrophy Association has a new national office from which to direct its mission, fundraising and operational strategies. The 64-year-old voluntary health agency announced today it has moved into its new national office in the city’s downtown business district. The office will serve as a hub for MDA’s executive management,...

2014-06-11 23:07:00

Thursday, July 24th at Yoshi’s Jazz Club in San Francisco, CA (PRWEB) June 11, 2014 On Thursday July 24, 2014, the FSH Society will hold a very special benefit concert at Yoshi’s Jazz Club in San Francisco with opera’s legendary singer, Frederica von Stade, who will perform an intimate and personal suite of songs with the acclaimed pianist Steven Blier. Net proceeds for “Songs in the Key of Steven Blier,” will go to support the work of the FSH Society, raising critical funds for...

2014-06-11 12:22:21

Local CITGO Marketer Raises More Than $40,000 for MDA Chapter in Michigan SPARTA, Mich., June 11, 2014 /PRNewswire/ -- Local CITGO Marketer American Gas and Oil (AGO), with the support of CITGO Petroleum Corporation, raised more than $40,000 for the local Muscular Dystrophy Association (MDA) chapter during its annual MDA Shamrock campaign. From Feb. 17 through March 24, customers in the area visited local AGO stores and purchased $1 and $5 paper shamrocks, which were displayed around...

2014-06-09 12:30:50

HACKENSACK, N.J., June 9, 2014 /PRNewswire-USNewswire/ -- Parent Project Muscular Dystrophy (PPMD) - the leading patient advocacy organization fighting to end Duchenne muscular dystrophy (Duchenne) - announced that a recent treatment preferences and benefit/risk study led by the organization has been published in Clinical Therapeutics. The article entitled, "A Community-Engaged Approach to Quantifying Caregiver Preferences for the Benefits and Risks of Emerging Therapies for Duchenne...

2014-05-29 23:09:19

Couple Builds upon Success of Last Year’s Event to Raise Awareness of Little-Known Disease at Lakeside Michigan Event Gull Lake, MI (PRWEB) May 29, 2014 After last year’s wildly successful event, Michelle Mackay, wife of retired Kellogg’s CEO David Mackay, and her family will host the second annual festive event to raise awareness and funds for the FSH Society on Saturday, July 5 at their lakeside home in Gull Lake, Michigan. Always an active member of her community, Michelle has...


Word of the Day
omadhaun
  • A fool; a simpleton: a term of abuse common in Ireland and to a less extent in the Gaelic-speaking parts of Scotland.
This word is partly Irish in origin.