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Latest muscular dystrophy Stories

2014-03-04 12:27:01

Parents Pushing FDA for Accelerated Approval of Safe and Effective Drug WASHINGTON, March 4, 2014 /PRNewswire-iReach/ -- After calling on the FDA directly to approve a breakthrough therapy for Duchenne Muscular Dystrophy, and appealing to Congress on behalf of the thousands of children facing this fatal genetic disease, concerned families have launched a national campaign and petition drive called "The Race to Yes" at TheRacetoYes.org to underscore the urgent need for accelerated...

2014-03-03 23:04:46

The $25,000 award to the Massachusetts-based FSH Society will fund scientific research grants focused on discovering and developing treatments for facioscapulohumeral muscular dystrophy. Lexington, MASS. (PRWEB) March 03, 2014 When GE Aviation’s Vice President Mohammad Ehteshami was told that he had received the prestigious GE Chairman’s Award, he asked that the $25,000 be donated to the FSH Society, a Massachusetts-based charitable foundation that has transformed the science of a...

2014-02-28 23:23:14

Stores across the Southwest to help MDA families with the sale of Make a Muscle Mobiles. Phoenix (PRWEB) February 28, 2014 Albertsons supermarkets across the Southwest will team up with the Muscular Dystrophy Association this March to raise over $200,000 through the 2014 pin-up mobile campaign. Throughout the month of March, Albertsons stores throughout New Mexico, Arizona, Nevada, Utah, El Paso, Texas and Durango, Colo. will participate in the in-store pin-up mobile campaign that...

2014-02-25 20:22:14

LOWELL, Mass., Feb. 25, 2014 /PRNewswire/ -- Henry Lacostic, the fun loving man who brought enormous attention to the disease known as Muscular Dystrophy, passed away on February 24(th) from complications of it. (Photo: http://photos.prnewswire.com/prnh/20140225/LA72240) Henry Lacostic was born in Haverhill, Massachusetts to Brenda and James Lacostic, and he has two brothers, James, Jr. and Dean, as well as a sister, Rebecca. During the 1980's and 1990's, Henry Lacostic hosted...

2014-02-25 16:28:51

WASHINGTON, Feb. 25, 2014 /PRNewswire-USNewswire/ -- At a Congressional hearing today in Washington, the Muscular Dystrophy Association's (MDA) chief executive briefed legislators on the enormous impact of the MD-CARE Act passed in 2001 and implored lawmakers to reauthorize this crucial legislation on behalf of the 100,000 Americans with muscular dystrophies. http://photos.prnewswire.com/prnvar/20120424/DC93207LOGO MDA co-hosted the briefing with Parent Project Muscular Dystrophy...

2014-02-24 08:28:11

Annual Advocacy Conference Focuses on Accelerating FDA Review And Enacting MD-CARE Act Update into Law WASHINGTON, Feb. 24, 2014 /PRNewswire-USNewswire/ -- More than 100 advocates seeking to end Duchenne muscular dystrophy (Duchenne) are converging on Washington for the annual Parent Project Muscular Dystrophy (PPMD) Advocacy Conference to urge Congressional action on key legislation and to help accelerate the Food and Drug Administration's (FDA) review of candidate Duchenne...

2014-02-19 23:01:11

From Feb. 17 to March 17, customers can show their support for MDA by purchasing and signing a $1 green or $5 gold Shamrocks mobile while shopping at ARO locations in their area. SALT LAKE CITY, (PRWEB) February 19, 2014 Associated Retail Operations (ARO) (Macey’s, Dan’s, Lin’s, Dicks Market and Fresh Market) throughout the Utah area are once again teaming up with the Muscular Dystrophy Association for the 32nd annual Shamrocks mobile program to help raise funds for local families...

2014-02-19 12:29:18

HACKENSACK, N.J., Feb. 19, 2014 /PRNewswire-USNewswire/ -- DuchenneConnect, a program of Parent Project Muscular Dystrophy (PPMD), is thrilled to announce receiving a funding award of $970,000 by the Patient-Centered Outcomes Research Institute (PCORI) to take part in developing a health data network. DuchenneConnect will be part of PCORnet: the National Patient-Centered Clinical Research Network. The DuchenneConnect network is one of 29 networks that were approved for PCORnet. The...

2014-02-19 08:30:43

SAN FRANCISCO, Feb. 19, 2014 /PRNewswire-USNewswire/ -- In recognition of Rare Disease Month and Rare Disease Day The Myotonic Dystrophy Foundation (MDF) has released "Hope and Inspiration"--a short eight minute video that brings attention to myotonic dystrophy (DM), the community of people living with it and the compelling scientific advances that have made it the global poster child for neuromuscular disorders. (Logo: http://photos.prnewswire.com/prnh/20130207/DC56674LOGO)...

2014-02-18 23:02:34

From early-February through the end of March, numerous retailers and MDA partners will sell $1 green, $5 gold and higher-level platinum paper-mobiles. Tucson, AZ (PRWEB) February 18, 2014 Thousands of supermarkets, convenience stores, restaurants and other key businesses across the United States will decorate their locations with green, gold and platinum Shamrocks mobiles signed by their customers during the 32nd annual Shamrocks program in support of the Muscular Dystrophy Association....


Word of the Day
bibliopole
  • A bookseller; now, especially, a dealer in rare and curious books.
This word comes from a Greek phrase meaning 'book seller.'
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