Quantcast
Last updated on April 24, 2014 at 21:24 EDT

Latest muscular dystrophy Stories

2013-09-27 23:02:00

Three neuromuscular diseases are being considered for inclusion in nationwide screening. Tucson, AZ (PRWEB) September 27, 2013 Pediatrician and medical geneticist R. Rodney Howell, who chairs MDA's Board of Directors, testified Thursday before the Subcommittee on Children and Families of the U.S. Senate Committee on Health, Education, Labor & Pensions to advocate for passage of the Newborn Screening Saves Lives Reauthorization Act of 2013 (S. 1417). Howell emphasized that:...

2013-09-27 12:24:42

MORE THAN 600 COLLEGIATE COACHING STAFFS UNITE AGAINST DUCHENNE MUSCULAR DYSTROPHY THIS WEEKEND WACO, Texas, Sept. 27, 2013 /PRNewswire-USNewswire/ -- In virtually every college stadium this weekend, more than 10,000 football coaches at more than 611 educational institutions will unite to support the Coach To Cure MD program, with the support of a new corporate sponsor, Northwestern Mutual, a leading financial security company. (Logo:...

2013-09-25 23:03:10

Vikings tight end Kyle Rudolph and Twins pitcher Glen Perkins among top athletes who will come together at high-profile fundraiser. Minneapolis, MN (PRWEB) September 25, 2013 Professional athletes throughout the Twin Cities are set to share the spotlight with children served by the Muscular Dystrophy Association at the 2013 Minnesota Muscle Team event on Tuesday, Oct. 8 at TCF Bank Stadium from 6-9:30 p.m. The MDA Minnesota Muscle Team is an event made up of athletes and alumni from local...

2013-09-25 16:26:33

SOUTH PLAINFIELD, N.J., Sept. 25, 2013 /PRNewswire/ -- PTC Therapeutics, Inc. (NASDAQ: PTCT) announced that four posters will be presented at the 18(th) International World Muscle Society Congress (WMS) in Asilomar, California, on October 1-5. The following posters will be presented on October 3 from 14:30 - 16:00 during Dystrophinopathy pharmco and pharmaco-gene therapy Session. -- Phase 2b, dose-ranging study of ataluren (PTC124®) in nonsense mutation Duchenne muscular...

2013-09-18 12:55:59

A preclinical study led by researchers at Children’s National Medical Center has found that a new oral drug shows early promise for the treatment of Duchenne muscular dystrophy (DMD). The results, published in EMBO Molecular Medicine, show that the drug, VBP15, decreases inflammation and protects and strengthens muscle without the harsh side effects linked to current treatments with glucocorticoids such as prednisone. Duchenne muscular dystrophy results in severe muscle degeneration and...

2013-09-18 12:30:08

WACO, Texas, Sept. 18, 2013 /PRNewswire-USNewswire/ -- For the sixth year in a row, college football coaches nationwide will join together in support of the Coach To Cure MD program, which will be held during games on Saturday, September 28, 2013. The rapidly growing annual effort has raised more than a million dollars to battle Duchenne muscular dystrophy. (Photo: http://photos.prnewswire.com/prnh/20130918/DC82266) (Logo: http://photos.prnewswire.com/prnh/20100119/DC39975LOGO)...

2013-09-18 08:29:10

SOUTH PLAINFIELD, N.J., Sept. 18, 2013 /PRNewswire/ -- PTC Therapeutics, Inc. (NASDAQ: PTCT) announced that two abstracts have been accepted for the 10(th) European Pediatric Neurology Society Congress (EPNS) in Brussels, Belgium, on September 25-28. -- Design of a confirmatory phase 3, multicenter, randomized, double-blind, placebo-controlled study of ataluren in patients with nonsense mutation Duchenne muscular dystrophy; -- Disease-related symptoms and...

2013-09-16 23:18:19

Fourth Annual Celebrity Walk n’ Roll to Raise Funds for FSH Muscular Dystrophy Research: Sunday, October 6 at 10:00 AM in Heritage Park, Irvine, Open to the Public IRVINE, Calif. (PRWEB) September 16, 2013 The FSH Society announced that the Fourth Annual Celebrity Walk n’ Roll fundraiser, hosted by Max Adler of “Glee,” will take place on Sunday, October 6, 2013 at Heritage Park in Irvine from 10:00 a.m. to 2:00 p.m. More than 20 celebrities and athletes will participate in the...

2013-09-12 23:20:39

MDA’s online Flu Season Resource Center can help. Tucson, AZ (PRWEB) September 12, 2013 The Muscular Dystrophy Association is offering assistance with the cost of flu vaccines for individuals affected by neuromuscular disease, including Duchenne muscular dystrophy (DMD), spinal muscular atrophy (SMA) and ALS (Lou Gehrig's disease). MDA offers this service annually for adults and children living with muscle disease who, because of compromised respiratory function — including...

2013-09-09 23:01:40

Festive Evening of Song on Monday, September 30, at New York Botanical Garden New York (PRWEB) September 09, 2013 Today The FSH Society, a world leader in combating muscular dystrophy, announced that its annual Festive Evening of Song, featuring luminary pianist Steven Blier and Broadway veteran Judy Kaye, will take place on Monday, September 30, 2013 at the New York Botanical Garden. The event will be a rare union of two musical icons to raise funds for FSH muscular dystrophy research....