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Latest muscular dystrophy Stories

2014-02-19 23:01:11

From Feb. 17 to March 17, customers can show their support for MDA by purchasing and signing a $1 green or $5 gold Shamrocks mobile while shopping at ARO locations in their area. SALT LAKE CITY, (PRWEB) February 19, 2014 Associated Retail Operations (ARO) (Macey’s, Dan’s, Lin’s, Dicks Market and Fresh Market) throughout the Utah area are once again teaming up with the Muscular Dystrophy Association for the 32nd annual Shamrocks mobile program to help raise funds for local families...

2014-02-19 12:29:18

HACKENSACK, N.J., Feb. 19, 2014 /PRNewswire-USNewswire/ -- DuchenneConnect, a program of Parent Project Muscular Dystrophy (PPMD), is thrilled to announce receiving a funding award of $970,000 by the Patient-Centered Outcomes Research Institute (PCORI) to take part in developing a health data network. DuchenneConnect will be part of PCORnet: the National Patient-Centered Clinical Research Network. The DuchenneConnect network is one of 29 networks that were approved for PCORnet. The...

2014-02-19 08:30:43

SAN FRANCISCO, Feb. 19, 2014 /PRNewswire-USNewswire/ -- In recognition of Rare Disease Month and Rare Disease Day The Myotonic Dystrophy Foundation (MDF) has released "Hope and Inspiration"--a short eight minute video that brings attention to myotonic dystrophy (DM), the community of people living with it and the compelling scientific advances that have made it the global poster child for neuromuscular disorders. (Logo: http://photos.prnewswire.com/prnh/20130207/DC56674LOGO)...

2014-02-18 23:02:34

From early-February through the end of March, numerous retailers and MDA partners will sell $1 green, $5 gold and higher-level platinum paper-mobiles. Tucson, AZ (PRWEB) February 18, 2014 Thousands of supermarkets, convenience stores, restaurants and other key businesses across the United States will decorate their locations with green, gold and platinum Shamrocks mobiles signed by their customers during the 32nd annual Shamrocks program in support of the Muscular Dystrophy Association....

2014-02-14 23:01:58

Teams of families and friends of those affected by neuromuscular disease participated in the walk on Feb. 8 at Raymond James Stadium. Saint Petersburg, FL (PRWEB) February 14, 2014 More than $165,000 was raised at the annual MDA Tampa Bay Muscle Walk presented by APEC on Feb. 8 at Raymond James Stadium to benefit children and adults in the Tampa Bay area served by the Muscular Dystrophy Association. Teams of families and friends of those affected by neuromuscular disease participated in...

2014-02-13 23:00:42

An acrylic painting created by Amber Stock, 17, of Eugene, Ore., has been accepted into the Muscular Dystrophy Association’s national Art Collection. Tucson, AZ (PRWEB) February 13, 2014 An acrylic painting created by Amber Stock, 17, of Eugene, Ore., has been accepted into the Muscular Dystrophy Association Art Collection. Now in its 22nd year, the Collection features artwork by people from across the country with muscular dystrophy and related disorders. “Diamond in the Sunset”...

2014-02-13 16:28:10

Experimental Protein Replacement Therapy for Congenital Muscular Dystrophy Type 1A (MDC1A) MILFORD, Mass. and RENO, Nev., Feb. 13, 2014 /PRNewswire/ -- Prothelia Incorporated (Prothelia) and University of Nevada, Reno announce that they have entered into strategic agreements with Alexion for the development of Laminin-111, a patented experimental protein replacement therapy for merosin-deficient congenital muscular dystrophy (MDC1A), a life-threatening, ultra-rare disease caused by a genetic...

2014-02-11 23:00:48

MDA Muscle Walk is the largest event circuit of its kind in the United States, with approximately 150 walks throughout the nation scheduled from February through May. Tucson, AZ (PRWEB) February 11, 2014 Take a small step to make a big difference for the Muscular Dystrophy Association during the 2014 Muscle Walk season that will pay tribute to — and raise funds for — children and adults served by MDA. MDA Muscle Walk is comprised of a series of non-competitive local walks held across...

2014-02-10 23:05:02

After wrapping up what was a busy first month of 2014, the FSH Society finally has a moment to look back on 2013 and acknowledge what a busy – and successful – year it was! Lexington, MA (PRWEB) February 10, 2014 Throughout 2013, the FSH Society expanded its networks locally and nationally, partnering with the University of Massachusetts’ Wellstone Center for FSHD Research and Training. The Society is proud to have participated in several FSHD studies as well, contributing to...

2014-02-10 20:21:08

Call on FDA for Accelerated Approval of Promising Duchenne Muscular Dystrophy Treatment WASHINGTON, Feb. 10, 2014 /PRNewswire-iReach/ -- Health staffers from over 80 Congressional offices together with agency and industry officials jammed a briefing room last Friday to hear mothers, clinicians and leading researchers call on the FDA to accept and promptly review a new drug application for eteplirsen, a promising new treatment for Duchenne Muscular Dystrophy that could save thousands...


Word of the Day
monteith
  • A large punch-bowl of the eighteenth century, usually of silver and with a movable rim, and decorated with flutings and a scalloped edge. It was also used for cooling and carrying wine-glasses.
  • A kind of cotton handkerchief having white spots on a colored ground, the spots being produced by a chemical which discharges the color.
This word is possibly named after Monteith (Monteigh), 'an eccentric 17th-century Scotsman who wore a cloak scalloped at the hem.'
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