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Latest muscular dystrophy Stories

2014-03-26 08:29:20

Urges President to Support Safe and Effective Treatment for Duchenne Muscular Dystrophy WASHINGTON, March 26, 2014 /PRNewswire/ -- The Race to Yes, a national campaign by families with children facing death from Duchenne Muscular Dystrophy achieved an important milestone just after 8pm EDT last night when the 100,000th person signed their White House petition urging the U.S. Food and Drug Administration to approve a breakthrough drug that has been shown to halt the progress of the...

2014-03-24 23:05:02

Innovative and entrepreneurial research an important step in ongoing search for FSHD treatments and cures Lexington, MA (PRWEB) March 24, 2014 Today, the FSH Society, a Massachusetts based non-profit that is a world leader in combating facioscapulohumeral dystrophy (FSHD), announced that it has awarded six grants totaling more $609,525 to new research projects. Through these studies, the FSH Society’s fellowship program aims to gain insights and achieve significant milestones into the...

2014-03-21 23:01:12

The John Owen Adventure Dodgeball event is for children and adults alike to raise money and awareness for the fatal disease, Duchenne Muscular Dystrophy. North Royalton, OH (PRWEB) March 21, 2014 John Owen's Adventure Inc. is thrilled to launch the second annual Play for JOA-Dodgeball event bringing together children and adults alike to enjoy this classic sport while fundraising to cure the fatal disease Duchenne Muscular Dystrophy (DMD). "Our 2013 Tourney was a huge...

2014-03-20 23:22:09

Roanoke, VA Event on April 6th Hopes to Raise $75,000, Being Held at Salem Civic Center Roanoke, Virginia (PRWEB) March 20, 2014 Footmaxx, a leading provider of custom-made orthotics, is a proud corporate sponsor of the Muscular Dystrophy Association (MDA) Roanoke 2014 Muscle Walk, which will take place on April 6th at the Salem Civic Center. The event raises funds to help the MDA support research and to also provide services to those afflicted with neuromuscular diseases. The Roanoke...

2014-03-20 16:26:23

Leading Duchenne Organization Launches Certified Duchenne Care Center Program HACKENSACK, N.J., March 20, 2014 /PRNewswire-USNewswire/ -- Nationwide Children's Hospital was named the first Certified Duchenne Care Center by Parent Project Muscular Dystrophy (PPMD), the leading advocacy organization working to end Duchenne muscular dystrophy (Duchenne). PPMD is launching the Certified Duchenne Care Center Program as part of its robust Transforming Duchenne Care Initiative. Over the...

2014-03-19 23:02:37

Throughout the month of February, SRAC’s Burger King restaurants helped fight back against muscle disease by selling $1 green and $5 gold paper Shamrocks mobiles. St. Rose, LA (PRWEB) March 19, 2014 Strategic Restaurants Acquisitions, LLC (SRAC), a franchisee of 288 BURGER KING® restaurants, and the Greater New Orleans Muscular Dystrophy Association announced today that the annual Shamrocks mobile program raised more than $154,000 to benefit children and adults affected by muscle...

2014-03-14 08:27:16

CAMBRIDGE, Mass., March 14, 2014 /PRNewswire/ -- Catabasis Pharmaceuticals Inc. today announced that data from its Phase 1 clinical trial of SMART Linker conjugate CAT-1004 will be presented at the Muscular Dystrophy Association's 2014 Clinical Conference in Chicago, Ill. Catabasis' chief medical officer, Joanne Donovan, M.D., Ph.D., will discuss Duchenne muscular dystrophy (DMD) animal model data and data from a Phase 1 clinical trial during the poster session from 6:00 to 8:00 p.m. CDT on...

2014-03-12 23:21:05

Kroger-Atlanta Division stores are spreading the luck of the Irish by participating in the Muscular Dystrophy Association’s 32nd annual Shamrocks mobile program. Atlanta (PRWEB) March 12, 2014 Kroger-Atlanta Division stores are spreading the luck of the Irish by participating in the Muscular Dystrophy Association’s 32nd annual Shamrocks mobile program to help raise funds for local families affected by muscle disease. Beginning March 16 through March 29, Kroger customers and associates...

2014-03-11 23:03:00

The high-profile fundraiser will be held at Heinz Field on Wednesday, March 12 from 5:30 p.m.to 9:30 p.m. Pittsburgh, PA (PRWEB) March 11, 2014 Pittsburgh’s professional athletes, local celebrities and military heroes are set to put their muscle behind finding treatments and cures for muscle disease at the 10th annual Muscle Team® event to benefit local children and adults in the Pittsburgh area served by the Muscular Dystrophy Association. The high-profile fundraiser will be held...

2014-03-04 12:27:01

Parents Pushing FDA for Accelerated Approval of Safe and Effective Drug WASHINGTON, March 4, 2014 /PRNewswire-iReach/ -- After calling on the FDA directly to approve a breakthrough therapy for Duchenne Muscular Dystrophy, and appealing to Congress on behalf of the thousands of children facing this fatal genetic disease, concerned families have launched a national campaign and petition drive called "The Race to Yes" at TheRacetoYes.org to underscore the urgent need for accelerated...


Word of the Day
virgule
  • A punctuation mark (/) used to separate related items of information.
  • A little rod; a twig.
This word comes from the Late Latin 'virgula,' accentual mark, a diminutive of 'virga,' rod.
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