Quantcast
Last updated on April 21, 2014 at 1:20 EDT

Latest narcolepsy Stories

2014-04-15 08:26:45

WORCESTER, Mass., April 15, 2014 /PRNewswire-USNewswire/ -- With the 26.2 miles of 118(th) Boston Marathon looming before them on April 21, 14 dedicated WUNners from across the U.S. and Canada are in their final few days of training. The WUNners are racing to benefit Wake Up Narcolepsy (WUN) www.wakeupnarcolepsy.org, a nonprofit organization working to speed narcolepsy diagnosis and treatment, and fund medical research to find a cure. Narcolepsy is a devastating lifelong, neurological...

2014-01-13 08:28:21

Terms include $125 million upfront payment in cash plus a potential of up to $272 million in milestone payments DUBLIN, Jan. 13, 2014 /PRNewswire/ -- Jazz Pharmaceuticals plc (Nasdaq: JAZZ) and Aerial BioPharma, LLC (Aerial) today announced that the companies have signed a definitive agreement under which Jazz Pharmaceuticals has acquired rights to ADX-N05, a novel compound in clinical development for the treatment of excessive daytime sleepiness in patients with narcolepsy. Under the...

2013-12-11 08:31:23

Experienced, Chicago-based Professional to Lead Fundraising and Other Philanthropic Initiatives WORCESTER, Mass., Dec. 11, 2013 /PRNewswire-USNewswire/ -- Wake Up Narcolepsy, Inc., (WUN) today announced the appointment of Kathi Wagner as Chief Development Director. Ms. Wagner, of Chicago, brings to the role more than 20 years of fundraising, marketing, public affairs, and nonprofit management experience. "We are thrilled to welcome Kathi to the WUN staff," said Monica Gow,...

2013-12-05 14:19:15

A new study shows that poor sleep quality is strongly associated with mood disturbance and lower quality of life among people with extreme obesity. Results show that 74.8 percent of participants were poor sleepers, and their mean self-reported sleep duration was only six hours and 20 minutes.  Fifty-two percent of study subjects were anxious, and 43 percent were depressed.  After controlling for age, sex, hypertension, diabetes, and obstructive sleep apnea, sleep quality and daytime...

2013-10-29 12:20:51

Kyle Busch Motorsports #51 Toyota Driver Races "Awake at the Wheel" WORCESTER, Mass. and MOORESVILLE, N.C., October 29, 2013 /PRNewswire-USNewswire/ -- When Erik Jones, the 17-year-old NASCAR driving phenom, buckles into the Kyle Busch Motorsports #51 Toyota for the next couple of weekends of racing, his newest partner will be Wake Up Narcolepsy (http://www.wakeupnarcolepsy.org). WUN is a leading international nonprofit dedicated to speeding narcolepsy diagnosis through greater...

2013-10-11 12:47:54

Researchers at the University of Toronto discover how the body's muscles accidentally fall asleep while awake Normally muscles contract in order to support the body, but in a rare condition known as cataplexy the body's muscles "fall asleep" and become involuntarily paralyzed. Cataplexy is incapacitating because it leaves the affected individual awake, but either fully or partially paralyzed. It is one of the bizarre symptoms of the sleep disorder called narcolepsy. "Cataplexy is...

2013-10-09 16:23:49

PARIS, October 9, 2013 /PRNewswire/ -- Lancet Neurology, a prestigious journal in its domain, publishes in its last issue, an article entitled "Pitolisant versus placebo and modafinil in patients with narcolepsy: a double-blind randomised trial" authored by Y. Dauvilliers and others from the HARMONY I study group which proposes a novel treatment for this orphan disease. It is accompanied by a Commentary entitled "A need for new treatments in narcolepsy". Narcolepsy is a...

2013-09-27 23:27:35

Historic FDA meeting on narcolepsy drug development brings narcolepsy community to FDA to offer candid and emotional remarks on how narcolepsy affects their lives, and on current treatment options. Silver Spring, MD (PRWEB) September 27, 2013 Narcolepsy Network, a national nonprofit organization supporting people with narcolepsy, joined dozens of others from the narcolepsy community at the FDA’s public meeting on narcolepsy drug development. The meeting was held on September 24 at FDA...

2013-09-19 12:29:00

Comprehensive patient survey documents delayed diagnosis and unmet medical needs for this devastating disease WORCESTER, Mass., Sept. 19, 2013 /PRNewswire-USNewswire/ -- On September 24, 2013, patients with narcolepsy and other stakeholders will gather at the Food & Drug Administration to provide direct input on drug development issues affecting nearly 200,000 Americans with narcolepsy. The meeting, fourth in a series of 20 mandated under a 2012 law, will be the first session dedicated...

2013-08-28 23:24:15

Do you have a hard time falling asleep at night no matter how tired you are? PCCSNOVA wants to share some information with you about Insomnia. Fairfax, Virginia (PRWEB) August 28, 2013 What is Insomnia? Insomnia, which in Latin means "no sleep," is the inability to fall or stay asleep. Insomnia also refers to the condition of waking up and not feeling well rested or recharged. People with insomnia have one or more of the following symptoms: Symptoms of Insomnia: Trouble...