Latest National Organization for Rare Disorders Stories
Program Helps People with Severely Disabling Rare Diseases WASHINGTON, July 14, 2011 /PRNewswire-USNewswire/ -- The president of the National Organization for Rare Disorders (NORD) today praised the Social Security Administration's "Compassionate Allowances" program for helping people with severely disabling rare diseases. "We applaud Commissioner Michael Astrue for having the vision to establish this program.
WASHINGTON, May 23, 2011 /PRNewswire-USNewswire/ -- To better serve the nearly 30 million Americans who have rare diseases, the National Organization for Rare Disorders (NORD) has launched a completely redesigned website with new features to promote global networking, awareness, and advocacy on behalf of the rare disease patient community.
KING OF PRUSSIA, Pa., May 17, 2011 /PRNewswire/ -- CSL Behring, a global biotherapeutics company specializing in plasma-derived and recombinant therapies and a subsidiary of CSL Limited (ASX: CSL), is a recipient of the National Organization for Rare Disorders (NORD) 2011 Corporate Award.
Event to Highlight Progress in Research, Advocacy and New Treatments WASHINGTON, April 14, 2011 /PRNewswire-USNewswire/ -- The National Organization for Rare Disorders (NORD) will honor two members of the U.S.
WASHINGTON, Feb. 22, 2011 /PRNewswire-USNewswire/ -- A coalition of more than 500 U.S. patient organizations, medical societies, government agencies, and companies will join the National Organization for Rare Disorders (NORD) in observing Rare Disease Day on Monday, Feb. 28.
WASHINGTON, Jan. 21, 2011 /PRNewswire-USNewswire/ -- Food and Drug Commissioner Dr.
WASHINGTON, July 21 /PRNewswire-USNewswire/ -- An advocate for people with rare diseases today told a U.S.
WASHINGTON, June 29 /PRNewswire-USNewswire/ -- Noting that only about 200 of the nearly 7,000 diseases classified as rare currently have treatments, the National Organization for Rare Disorders (NORD) today called for a Food and Drug Administration (FDA) statement of policy on regulation of therapies for rare disorders. NORD also urged FDA to work with the research community to reduce regulatory uncertainty in the development of medicines for rare disorders. "There are still about 5,800 rare...
NORD and other leading patient advocacy groups file amicus brief opposing frivolous lawsuits that could undermine the new legislation's protections against insurances abuses. WASHINGTON, June 18 /PRNewswire-USNewswire/ -- The National Organization for Rare Disorders (NORD) and other leading disease and disabilities advocacy groups have filed an amicus brief urging the courts to protect Americans from lawsuits that would undermine protections provided by the nation's new health care reform...
CAMBRIDGE, Massachusetts, May 19, 2010 /PRNewswire-FirstCall/ -- Shire plc (LSE: SHP, NASDAQ: SHPGY), the global specialty biopharmaceutical company, today announced that it has received the 2010 Partners in Progress Corporate Award from NORD.