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Latest National Organization for Rare Disorders Stories

2011-01-21 13:22:00

WASHINGTON, Jan. 21, 2011 /PRNewswire-USNewswire/ -- Food and Drug Commissioner Dr.

2010-07-21 12:30:00

WASHINGTON, July 21 /PRNewswire-USNewswire/ -- An advocate for people with rare diseases today told a U.S.

2010-06-29 13:48:00

WASHINGTON, June 29 /PRNewswire-USNewswire/ -- Noting that only about 200 of the nearly 7,000 diseases classified as rare currently have treatments, the National Organization for Rare Disorders (NORD) today called for a Food and Drug Administration (FDA) statement of policy on regulation of therapies for rare disorders. NORD also urged FDA to work with the research community to reduce regulatory uncertainty in the development of medicines for rare disorders. "There are still about 5,800 rare...

2010-06-18 13:23:00

NORD and other leading patient advocacy groups file amicus brief opposing frivolous lawsuits that could undermine the new legislation's protections against insurances abuses. WASHINGTON, June 18 /PRNewswire-USNewswire/ -- The National Organization for Rare Disorders (NORD) and other leading disease and disabilities advocacy groups have filed an amicus brief urging the courts to protect Americans from lawsuits that would undermine protections provided by the nation's new health care reform...

2010-05-19 10:55:00

CAMBRIDGE, Massachusetts, May 19, 2010 /PRNewswire-FirstCall/ -- Shire plc (LSE: SHP, NASDAQ: SHPGY), the global specialty biopharmaceutical company, today announced that it has received the 2010 Partners in Progress Corporate Award from NORD.

2010-02-25 15:49:00

NOVATO, Calif., Feb. 25 /PRNewswire-FirstCall/ -- BioMarin Pharmaceutical Inc.

2010-02-25 15:09:00

WASHINGTON, Feb. 25 /PRNewswire-USNewswire/ -- Peter L.

2010-02-23 09:44:00

DANBURY, Conn., Feb. 23 /PRNewswire-USNewswire/ -- A coalition of more than 300 U.S. patient organizations, medical societies, government agencies and companies will join the National Organization for Rare Disorders (NORD) in observing World Rare Disease Day on Sunday, Feb. 28.

2010-02-03 09:00:00

SILVER SPRING, Md. and Danbury, Conn., Feb. 3 /PRNewswire/ -- The National Organization for Rare Disorders (NORD) announced that Discovery Health and its new program, DISEASE DETECTIVES, will serve as media and program partners for Rare Disease Day on February 28, 2010.


Word of the Day
gubbings
  • The parings of haberdine; also, any kind of fragments.
The word 'gubbings' is a variant of the word 'gobbon', meaning 'a portion, gobbet.'