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Latest National Organization for Rare Disorders Stories

2009-10-01 09:44:00

DANBURY, Conn., Oct. 1 /PRNewswire-USNewswire/ -- The leading advocacy groups for Americans and Europeans with rare diseases -- the National Organization for Rare Disorders (NORD) and the European Organization for Rare Diseases (EURORDIS) -- have signed a Memorandum of Understanding to join forces on several key strategic initiatives on behalf of rare disease patients and their families. The intent is to increase global awareness, promote research and the development of new treatments,...

2009-09-14 16:21:00

WASHINGTON, Sept. 14 /PRNewswire-USNewswire/ -- The following letter was sent today to all members of Congress by the National Organization for Rare Disorders (NORD): September 14, 2009 Dear Member of Congress: On behalf of the 30 million Americans who are affected by one of the nearly 7,000 rare disorders, the National Organization for Rare Disorders (NORD) urges you to pass comprehensive health reform legislation to assure that every American has access to affordable, meaningful health...

2009-07-31 14:49:00

DANBURY, Conn., July 31 /PRNewswire-USNewswire/ -- The following letter regarding health care reform was sent to all members of Congress today by the National Organization for Rare Disorders (NORD): July 31, 2009 Dear Member of Congress: On behalf of the 30 million Americans who are affected by one of the nearly 7,000 rare disorders, we urge you to pass comprehensive health reform legislation designed to assure that every American, regardless of health status, has access to affordable,...

2009-05-18 09:50:00

EXTON, Pa., May 18 /PRNewswire-FirstCall/ -- ViroPharma Incorporated (Nasdaq: VPHM) was honored with a Corporate Award at the National Organization for Rare Disorders (NORD) Annual Gala for its work in bringing Cinryze(TM) (C1 esterase inhibitor (human)) to market for a rare and devastating disorder -- hereditary angioedema (HAE). HAE is a rare, severely debilitating, life-threatening genetic disorder caused by a deficiency of C1 inhibitor, a human plasma protein. Patients with C1 inhibitor...

2009-05-15 08:00:00

National Organization for Rare Disorders (NORD) Recognizes BioMarin's Efforts to Expand Treatment Options for Patients with PKU NOVATO, Calif., May 15 /PRNewswire-FirstCall/ -- BioMarin Pharmaceutical Inc. (Nasdaq: BMRN) announced today that it has received the 2009 Corporate Award from the National Organization for Rare Disorders (NORD), an organization dedicated to improving the lives of people with rare diseases. The award was presented on May 14 at NORD's annual "Partners in Progress"...

2009-05-14 17:06:00

WASHINGTON, May 14 /PRNewswire-USNewswire/ -- A shortage of new pharmaceutical products in the pipeline combined with new scientific tools has created a climate of opportunity for the rare disease community, a senior Food and Drug Administration (FDA) official said today at a conference hosted by the National Organization for Rare Disorders (NORD). The blockbuster model is no longer viable, said Janet Woodcock, MD, director of the Center for Drug Evaluation and Research at FDA. As a result,...

2009-05-11 16:02:00

DANBURY, Conn., May 11 /PRNewswire-USNewswire/ -- The National Organization for Rare Disorders (NORD) will honor a senior U.S. Senator, a top Administration official, a cutting-edge television network, and several pioneering companies developing treatments for rare diseases at the 2009 NORD Gala at the National Press Club in Washington, DC, on Thursday, May 14. The NORD Gala is an annual event at which researchers and others are honored for significant achievements to improve the lives of...

2009-02-13 11:30:00

DANBURY, Conn., Feb. 13 /PRNewswire-USNewswire/ -- The last day of February has been designated as worldwide "Rare Disease Day" to call attention to the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world. "People with rare diseases remain a medically underserved population in every country," said Peter L. Saltonstall, president of the National Organization for Rare Disorders (NORD), which is sponsoring Rare...

2009-02-09 06:00:00

- NORD Names Discovery Health Media Partner and MYSTERY DIAGNOSIS Program Partner for First Rare Disease Day in U.S. on February 28, 2009 - - MYSTERY DIAGNOSIS Airs Mondays at 10PM ET/PT on Discovery Health - DANBURY, Conn., Feb. 9 /PRNewswire/ -- The National Organization for Rare Disorders (NORD) announced that Discovery Health and its popular series, MYSTERY DIAGNOSIS, will serve as media and program partners for Rare Disease Day on February 28, 2009. This year represents the first U.S....

2008-11-13 09:00:37

The payer climate for coverage and access of new rare disease treatments is becoming increasingly challenging. As a result, The National Organization for Rare Disorders (NORD) has invited Bruckner Group partner David Balekdjian to make a presentation to NORD's Corporate Council on November 18, 2008, to address these emerging challenges. As one of the country's leading experts in payer drug coverage and access decision-making, and healthcare value issues and strategy, David Balekdjian will...


Word of the Day
cruet
  • A vial or small glass bottle, especially one for holding vinegar, oil, etc.; a caster for liquids.
This word is Middle English in origin, and ultimately comes from the Old French, diminutive of 'crue,' flask.
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