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Latest Orphan drug Stories

2013-10-08 23:21:59

Report uncovers results and trends unavailable from any other news service and before pharmaceutical company disclosures; webinar speakers include former director of FDA’s Office of Orphan Drugs. Norwood, MA (PRWEB) October 08, 2013 BioPharm Insight™ is emphasizing orphan drug development this month with an exclusive subscriber report on the orphan drug market base and an educational webinar on the topic. BioPharm Insight – which is part of Infinata, a Financial Times Group company...

2013-10-02 23:01:39

Despite federal incentives for drug companies to create treatments for rare diseases, thousands of people are still searching for lifesaving therapies. In many cases, patients and those working on their behalf are taking matters into their own hands. Bethesda, MD (PRWEB) October 02, 2013 Katheryn Elibri, whose 7-year-old daughter has a rare genetic disease known as CDKL5 and has seizures almost daily, helped begin a foundation to fund research for a cure. Other parents—like Lisa Schill,...


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