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Latest Orphan drug Stories

2013-10-02 23:01:39

Despite federal incentives for drug companies to create treatments for rare diseases, thousands of people are still searching for lifesaving therapies. In many cases, patients and those working on their behalf are taking matters into their own hands. Bethesda, MD (PRWEB) October 02, 2013 Katheryn Elibri, whose 7-year-old daughter has a rare genetic disease known as CDKL5 and has seizures almost daily, helped begin a foundation to fund research for a cure. Other parents—like Lisa Schill,...

2013-09-30 23:18:18

The Rare Disease Panel will present on October 7, 2013 at 9:45 a.m. Bethesda, MD (PRWEB) September 30, 2013 WHAT: Thirty years after the adoption of the Orphan Drug Act, patients with rare diseases still face incredible obstacles. At the U.S. Conference on Rare Diseases and Orphan Products, with its theme of “The New Era in Health Care,” patients and patient advocates will discuss: Getting an accurate diagnosis Supporting research for and the development of treatments Assuring...

2013-09-26 23:31:37

MarketResearchReports.Biz announces addition of new report “Orphan Drugs Market in Europe: Pricing, Reimbursement, Funding and Market Access Issues, 2013” to its database. Visit: http://www.marketresearchreports.biz/analysis-details/orphan-drugs-in-europe-pricing-reimbursement-funding-and-market-access-issues-2013-edition Albany, NY (PRWEB) September 26, 2013 The cost of treating rare diseases in an age when austerity measures are hitting a total health care funding across Europe is a...

2013-09-26 23:19:52

Reportbuyer.com just published a new market research report: Orphan Drugs for Cancer: R&D and Market 2013-2023. London (PRWEB) September 26, 2013 Report Details Orphan cancer drugs - new study shows you trends, R&D, and sales forecasts What's the future of orphan medicines to treat cancers? Visiongain's new report gives you revenue predictions from 2013. There you explore results, R&D, opportunities, and potential sales. Orphan drugs can be profitable. In our analysis...

2013-09-13 23:01:19

Register Now to Attend Premier Conference on Orphan Product Development, Emerging Markets and Outlook for Investment. Horsham, PA (PRWEB) September 13, 2013 The early registration deadline for the third annual U.S. Conference on Rare Diseases and Orphan Products is Monday, Sept. 16. Co-sponsored by the National Organization for Rare Disorders (NORD) and DIA in collaboration with the Food and Drug Administration (FDA) and EURORDIS (Rare Diseases Europe), the conference will take place from...

2013-08-29 23:04:59

New research study “Europe Orphan Drugs Pipeline Analysis” elaborated by PNS Pharma has been recently published by Market Publishers Ltd. According to the report, the share of orphan drugs R&D of total biopharma industry’s R&D is set to keep on increasing significantly in future. London, UK (PRWEB) August 29, 2013 Since 2000 onwards, Europe has witnessed over 50 treatments for rare diseases being approved, when the European Commission introduced incentives to encourage the...


Word of the Day
humgruffin
  • A terrible or repulsive person.
Regarding the etymology of 'humgruffin,' the OED says (rather unhelpfully) that it's a 'made-up word.' We might guess that 'hum' comes from 'humbug' or possibly 'hum' meaning 'a disagreeable smell,' while 'gruffin' could be a combination of 'gruff' and 'griffin.'