Quantcast
Last updated on April 18, 2014 at 1:21 EDT

Latest Patient advocacy Stories

2013-05-03 16:22:18

MIDLOTHIAN, Va., May 3, 2013 /PRNewswire-USNewswire/ -- Patient Services, Inc. (PSI) honored several members of Congress and patient advocate, Marcia Boyle, of the Immune Deficiency Foundation at a reception in Washington, DC, on Wednesday, April 24, 2013. This important event highlighted the access and affordability challenges facing patients with rare, chronic conditions. (Photo: http://photos.prnewswire.com/prnh/20130503/DC07412 ) (Logo:...

2013-05-02 16:30:56

TOWSON, Md., May 2, 2013 /PRNewswire/ -- Marcia Boyle, President & Founder of the Immune Deficiency Foundation (IDF) was awarded the inaugural President's Award from the Patient Services, Inc. (PSI). Marcia was recognized by PSI for her leadership in the patient advocacy community. Congresswoman Doris Matsui (D-CA), a dedicated advocate for the patient community, presented the award to Boyle at a reception in Washington DC on Wednesday, April 24, 2013. PSI's President Award recognizes...

2013-04-23 16:24:42

RALEIGH, N.C., April 23, 2013 /PRNewswire-USNewswire/ -- Today Jen Johns, Associate Director of State Government Relations for the National Patient Advocate Foundation, testified in front of the North Carolina House and Human Services Committee in support of H 609, the North Carolina Cancer Treatment Fairness Act. The committee approved the legislation passed by unanimous vote. If enacted, it would eliminate the disparity in out-of-pocket cost to patients between oral chemotherapy and IV...

2013-04-16 23:04:58

Organizations representing nearly 40 diseases will participate in advance of general availability of the openly available patient registry Dublin, Ireland (PRWEB) April 16, 2013 [International Rare Diseases Research Consortium Conference] – PatientCrossroads today announced the names of the initial disease organizations selected to participate in a beta test of the new CONNECT Open-Access patient registry. The CONNECT Registry Partners - patient advocacy groups, pharmaceutical...

2013-04-16 12:27:14

Davenport-Ennis to Remain As Chairman of the Board of Directors and Focus on National Health Policy Initiatives and Strategic Direction WASHINGTON and HAMPTON, Va., April 16, 2013 /PRNewswire-USNewswire/ -- After founding and leading the Patient Advocate Foundation (PAF) and National Patient Advocate Foundation (NPAF) for more than 17 years, Nancy Davenport-Ennis today announced her decision to step away from the day-to-day management position of Chief Executive Officer to focus on...

2013-04-08 23:04:35

The Cancer Support Community releases fourth edition of Frankly Speaking About Cancer®: Coping with the Cost of Care Washington, D.C. (PRWEB) April 08, 2013 A recent survey conducted by the Cancer Support Community® (CSC) revealed a majority (72.8%) of cancer patients experienced some degree of emotional distress from managing the cost associated with their cancer care. Additionally, 64.8% reported having no discussion with their health care team about the financial aspects of...

2013-04-01 12:26:40

Panels will advise PCORI on research priorities and patient engagement efforts WASHINGTON, April 1, 2013 /PRNewswire-USNewswire/ -- The Patient-Centered Outcomes Research Institute (PCORI) today announced the individuals from across the healthcare community who will make up the final rosters of PCORI's first four advisory panels. The panelists, selected from among 1,021 individuals who submitted applications, were approved by PCORI's Board of Governors in a public webinar on March 26....

2013-03-27 12:28:39

- International Decision-Makers Gather to Discuss Healthcare Advances and the Benefit to Society- LYON, France, March 27, 2013 /PRNewswire-USNewswire/ -- Nancy Davenport-Ennis, founder and CEO of the National Patient Advocate Foundation, addressed attendees at the BIOVISION conference in Lyon, France on personalized medicine and e-health technology and engaged healthcare stakeholders from across the globe on the future of e-health and the impact technology integration will have on the...

2013-03-25 12:26:40

The Heart Valve CareLine is now available toll-free to provide one-on-one case management support for patients diagnosed with heart valve conditions. HAMPTON, Va., March 25, 2013 /PRNewswire-USNewswire/ -- Patient Advocate Foundation (PAF), a national non-profit organization with extensive experience in patient-focused case management, is pleased to launch the Heart Valve CareLine as the newest addition to its MedCareLine division thanks to a significant gift from The Edwards...

2013-03-07 16:24:12

WHITE PLAINS, N.Y., March 7, 2013 /PRNewswire/ -- The Leukemia & Lymphoma Society (LLS) is pleased to announce an expanded role for Chief Policy and Advocacy Officer Mark Velleca, M.D., Ph.D. Velleca, who has headed LLS's Office of Public Policy in Washington, D.C., since early 2012, will now oversee the newly integrated patient advocacy, policy and programs department. Velleca will continue to oversee the strategy and implementation of LLS's growing legislative and regulatory policy...