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Last updated on April 18, 2014 at 1:21 EDT

Latest PPMD Stories

2014-03-20 16:26:23

Leading Duchenne Organization Launches Certified Duchenne Care Center Program HACKENSACK, N.J., March 20, 2014 /PRNewswire-USNewswire/ -- Nationwide Children's Hospital was named the first Certified Duchenne Care Center by Parent Project Muscular Dystrophy (PPMD), the leading advocacy organization working to end Duchenne muscular dystrophy (Duchenne). PPMD is launching the Certified Duchenne Care Center Program as part of its robust Transforming Duchenne Care Initiative. Over the...

2013-09-18 12:30:08

WACO, Texas, Sept. 18, 2013 /PRNewswire-USNewswire/ -- For the sixth year in a row, college football coaches nationwide will join together in support of the Coach To Cure MD program, which will be held during games on Saturday, September 28, 2013. The rapidly growing annual effort has raised more than a million dollars to battle Duchenne muscular dystrophy. (Photo: http://photos.prnewswire.com/prnh/20130918/DC82266) (Logo: http://photos.prnewswire.com/prnh/20100119/DC39975LOGO)...

2013-02-28 08:29:39

HACKENSACK, N.J., Feb. 28, 2013 /PRNewswire-USNewswire/ -- Parent Project Muscular Dystrophy (PPMD), the leading non-profit in the United States focused entirely on Duchenne muscular dystrophy (Duchenne), will mark the six year anniversary of Rare Disease Day today by participating in two important events that will raise awareness about Duchenne and share with audiences compelling stories from our community. (Logo: http://photos.prnewswire.com/prnh/20100119/DC39975LOGO) PPMD Founder,...

2012-09-19 02:25:06

WACO, Texas, Sept. 19, 2012 /PRNewswire-USNewswire/ -- For the fifth year in a row, college football coaches nationwide will join together in support of the Coach To Cure MD program, which will be held during games of Saturday, September 29, 2012. The rapidly growing annual effort has raised more than a million dollars to battle Duchenne muscular dystrophy. (Logo: http://photos.prnewswire.com/prnh/20100119/DC39975LOGO ) On September 29th, American Football Coaches Association (AFCA) members...

2012-06-25 02:26:07

Meeting to Take Place at Annual Connect Conference in Ft. Lauderdale HACKENSACK, N.J., June 25, 2012 /PRNewswire-USNewswire/ -- Parent Project Muscular Dystrophy (PPMD) will host the first Transforming Duchenne Care Meeting, June 27-28, 2012, immediately preceding the Annual Connect Conference in Fort Lauderdale, Florida. The goal of the Transforming Duchenne Care Meeting is to bring together leadership from top medical institutions, neuromuscular experts, and patient representatives to...

2012-06-20 10:23:04

HACKENSACK, N.J., June 20, 2012 /PRNewswire-USNewswire/ -- AVI BioPharma is teaming up with Parent Project Muscular Dystrophy (PPMD)'s endurance program, Run For Our Sons, to participate in the Rock 'n' Roll Seattle Marathon & Half Marathon on June 23, 2012. The goal is to raise money and awareness to help end Duchenne muscular dystrophy (Duchenne), the most common form of muscular dystrophy. (Logo: http://photos.prnewswire.com/prnh/20100119/DC39975LOGO) AVI and PPMD have a long...

2012-06-13 10:23:58

Letter Signed by Nearly 120 Organizations, Latest PDUFA-Oriented Action HACKENSACK, N.J., June 13, 2012 /PRNewswire-USNewswire/ -- Parent Project Muscular Dystrophy (PPMD), the nation's largest Duchenne muscular dystrophy (Duchenne) advocacy organization - co-led a letter to key lawmakers that was signed by 119 organizations and that urges Congress to include the strongest patient engagement and rare disease provisions within the final use fee legislation. (Logo:...

2012-05-24 06:28:45

HACKENSACK, N.J., May 24, 2012 /PRNewswire-USNewswire/ -- As the U.S. Senate continues debate on legislation that seeks to accelerate delivery of safe and effective therapies to patients and to increase the patient voice as part of the therapy review process, Parent Project Muscular Dystrophy (PPMD) is pleased to offer its enthusiastic endorsement of the legislation. (Logo: http://photos.prnewswire.com/prnh/20100119/DC39975LOGO) Over the past several months, PPMD - the leading...

2012-05-03 06:27:12

Larger Community Roundtable on Trial Design Planned HACKENSACK, N.J., May 3, 2012 /PRNewswire-USNewswire/ -- Parent Project Muscular Dystrophy (PPMD) - the leading advocacy organization fighting to end Duchenne muscular dystrophy, the most common form of muscular dystrophy, convened a high-impact meeting with leaders of the Food & Drug Administration's (FDA) drug review center to seek ways to accelerate the review process and to ensure the patient voice is included when key decisions...

2012-03-29 10:25:19

Leading Duchenne-Specific Nonprofit Urges Congress to Enact as Part of User Fee Bill HACKENSACK, N.J., March 29, 2012 /PRNewswire-USNewswire/ -- Parent Project Muscular Dystrophy (PPMD) - the leading advocacy organization fighting to end Duchenne muscular dystrophy - has endorsed legislation that would shorten the amount of time the Food and Drug Administration (FDA) takes to review candidate therapies for life-threatening conditions like Duchenne that lack other...