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Latest Primary immunodeficiency Stories

2014-09-16 12:30:31

NEW YORK, Sept. 16, 2014 /PRNewswire-USNewswire/ -- Today, over $1 million dollars were awarded for translational research by the Jeffrey Modell Foundation (JMF), a global non-profit organization dedicated to early diagnosis, appropriate treatments and public awareness of genetic immune deficiency diseases, known as Primary Immunodeficiencies (PI). http://photos.prnewswire.com/prnvar/20140909/144623 Primary Immunodeficiency affects as many as 10 million people worldwide and most...

2014-08-28 23:16:45

Othon Mourkakos’ team, Zebras In Tiaras, is 100 strong and geared up to raise thousands of dollars and raise awareness for Primary Immunodeficiency. Alpine, NJ (PRWEB) August 28, 2014 Alpine, NJ resident Othon Mourkakos is proud to lead the fundraising efforts of his team, Zebras In Tiaras, to benefit the Immune Deficiency Foundation (IDF) Walk for Primary Immunodeficiency, to be held October 26, 2014 in Foley Square, New York. IDF is the voice of the primary immunodeficiency...

2014-08-28 12:29:53

CSL Behring Assists The Jeffrey Modell Foundation and National Association of School Nurses to prepare an information blitz to improve early referral and diagnosis. KING OF PRUSSIA, Pa., Aug. 28, 2014 /PRNewswire/ -- School nurses reach 98 percent of the 50,000,000 students in U.S. public schools, grades k-12, and are uniquely positioned to facilitate the early diagnosis of serious medical conditions such as primary immunodeficiency (PI)....

2014-08-19 16:27:55

IDF Medical Advisory Committee member Jennifer Puck, MD, is the senior author TOWSON, Md., Aug. 19, 2014 /PRNewswire/ -- The Immune Deficiency Foundation (IDF) applauds a new study published August 19, 2014 in the Journal of the American Medical Association that underscores the importance of newborn screening for Severe Combined Immune Deficiency (SCID), also known as Bubble Boy disease. Jennifer M. Puck, MD, senior author of the study and a renowned SCID expert, is also a member of...

2014-08-05 12:31:36

A nine-year study recently released proves the need TOWSON, Md., Aug. 5, 2014 /PRNewswire/ -- The Immune Deficiency Foundation (IDF) commends the states of Maine and Rhode Island for adding Severe Combined Immune Deficiency (SCID) to their states' newborn screening panels, effective August 1, 2014. These states join 21 other states currently screening newborns for SCID, ensuring over two thirds of all babies in the U.S. are now being screened. SCID is a type of primary...

2014-07-23 23:23:28

Partnership will allow patients with primary immunodeficiencies to electronically track their health information and further national research. Rockville, Maryland (PRWEB) July 22, 2014 Get Real Health announced today a new partnership with the Immune Deficiency Foundation (IDF) to provide their patient community with a new web and mobile portal that will allow them to electronically track their symptoms, medications and other health-related information—enabling them to better manage...

2014-07-08 16:25:25

TOWSON, Md., July 8, 2014 /PRNewswire/ -- With the recent addition of newborn screening for Severe Combined Immune Deficiency (SCID) in New Jersey and Illinois, approximately two-thirds of all babies born in the U.S. will be screened for this deadly disease. SCID is a primary immunodeficiency disease where affected infants lack the T-cells and antibody immunity that help fight infections from a wide array of viruses, bacteria and fungi, leaving these infants susceptible to serious,...

2014-04-22 12:31:08

NEW YORK, April 22, 2014 /PRNewswire-USNewswire/ -- From April 22(nd )to April 29(th), the Jeffrey Modell Foundation (JMF) and 75 locations across 50 countries, will join together to celebrate the annual World Primary Immunodeficiency Week (WPIW). http://photos.prnewswire.com/prnvar/20140417/76370 JMF will host their simultaneous balloon launch in New York City and around the world to represent their commitment to this global movement to raise awareness for Primary...

2014-01-03 12:23:32

TOWSON, Md., Jan. 3, 2014 /PRNewswire/ -- The Immune Deficiency Foundation (IDF), the national patient organization for persons with primary immunodeficiency diseases, commends the state of Washington for their decision to add Severe Combined Immune Deficiency (SCID) to the list of conditions that all newborns in the state are screened for at birth effective January 1, 2014. SCID is commonly known as "bubble boy disease" after David Vetter, a boy who lived in a germ-free bubble for...


Word of the Day
jument
  • A beast of burden; also, a beast in general.
'Jument' ultimately comes from the Latin 'jugum,' yoke.
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