Latest Primary immunodeficiency Stories

MIDLOTHIAN, Va., May 3, 2013 /PRNewswire-USNewswire/ -- Patient Services, Inc. (PSI) honored several members of Congress and patient advocate, Marcia Boyle, of the Immune Deficiency Foundation at a reception in Washington, DC, on Wednesday, April 24, 2013. This important event highlighted the access and affordability challenges facing patients with rare, chronic conditions. (Photo: http://photos.prnewswire.com/prnh/20130503/DC07412 ) (Logo:...

TOWSON, Md., May 2, 2013 /PRNewswire/ -- Marcia Boyle, President & Founder of the Immune Deficiency Foundation (IDF) was awarded the inaugural President's Award from the Patient Services, Inc. (PSI). Marcia was recognized by PSI for her leadership in the patient advocacy community. Congresswoman Doris Matsui (D-CA), a dedicated advocate for the patient community, presented the award to Boyle at a reception in Washington DC on Wednesday, April 24, 2013. PSI's President Award...

NEW YORK, April 29, 2013 /PRNewswire-USNewswire/ -- Who would have ever thought that sequestration and budget battles would determine whether a precious newborn baby would survive? How is it possible that a "continuing resolution" could actually deprive a newborn baby of "continuing" his or her life? It is exactly what has happened to our innocent newborns, who are victimized by government officials that are dealing with partisan politics and divisiveness. To view the multimedia...

NEW YORK, April 22, 2013 /PRNewswire-USNewswire/ -- The Jeffrey Modell Foundation, in collaboration with physician experts and patient groups from 32 countries, launched World Primary Immunodeficiency Week beginning today. To view the multimedia assets associated with this release, please click http://www.prnewswire.com/news-releases/jeffrey-modell-foundation-joins-with-32-countries-to-launch-world-primary-immunodeficiency-week-202423081.html Primary Immunodeficiencies (PI) are...

Immune Deficiency Foundation (IDF) Plans Series of Activities to Educate Public and Get Patients with Primary Immunodeficiency Diseases the Resources They Need TOWSON, Md., April 1, 2013 /PRNewswire/ -- Approximately 250,000 people are diagnosed with primary immunodeficiency diseases in the United States, but thousands more go undetected and untreated. These diseases are chronic illnesses caused by hereditary or genetic defects in the immune system in which part of the body's...

LONDON, March 22, 2013 /PRNewswire/ -- Baxter International Inc. (NYSE: BAX) and Halozyme Therapeutics, Inc., (NASDAQ: HALO) today announced that the European Medicines Agency's Committee for Medicinal Products for Human Use (EMA CHMP) has granted a Positive Opinion to Baxter for the use of HyQvia (solution for subcutaneous use) as replacement therapy for adult patients with primary and secondary immunodeficiencies. The product is a combination of human normal immunoglobulin (IGSC,...

WASHINGTON, Jan. 10, 2013 /PRNewswire/ -- The Immune Deficiency Foundation (IDF), the national patient organization dedicated to improving the lives of persons with primary immunodeficiency diseases (PIDD), is proud to announce that the Medicare IVIG Access Act (HR 1845) was signed into law today, January 10, 2013, by President Obama. HR 1845 provides for a demonstration project to examine the benefits of providing coverage and payment for items and services necessary to administer...

KING OF PRUSSIA, Pa., Dec. 13, 2012 /PRNewswire/ -- CSL Behring has teamed up with Professional Supercross racer Carl Schlacht to launch www.IamaChamPIon.com. This new online resource is part of the I am a ChamPIon campaign, a partnership that aims to raise awareness of primary immunodeficiency disease (PI or PIDD) while encouraging those with the condition to pursue their dreams despite the challenges that PI can pose. "PI is a genetic disorder that can have a dramatic impact...

All Texas newborns will now be screened for immunodeficiency disorders at birth HOUSTON, Dec. 3, 2012 /PRNewswire-USNewswire/ -- Beginning in December 2012, all newborns in the state of Texas will be screened for Severe Combined Immunodeficiency Disorder (SCID) as part of the standard newborn screening panel which already screens for 28 additional disorders. In correlation with this new screening, Texas Children's Hospital announced a new Newborn Primary Immunodeficiency Disorder...

TOWSON, Md., Dec. 1, 2012 /PRNewswire/ -- The Texas Department of State Health Services (DSHS) will add Severe Combined Immunodeficiency (SCID) to the state's Newborn Screening Panel beginning December 1, 2012. The Immune Deficiency Foundation (IDF), the national patient organization for persons with primary immunodeficiency diseases, commends the state of Texas and the dedicated volunteers who have advocated for this cause. Screening for SCID increases the probability of early...