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Latest rare disease Stories

2015-05-21 12:30:56

NOVATO, Calif., May 21, 2015 /PRNewswire-USNewswire/ -- The EveryLife Foundation for Rare Diseases applauded Sens.

2015-05-05 23:04:33

Rare Genomics Institute (RG) today announced the Amplify Hope Initiative, a new study aimed at determining how crowdfunding can promote scientific research to help rare disease patients.

2015-05-04 08:29:54

Global PWS Registry Debuts as Part of Prader-Willi Syndrome Awareness Month WASHINGTON and PASADENA, Calif., May 4, 2015 /PRNewswire-USNewswire/ -- The Foundation for Prader-Willi

2015-04-10 08:25:19

WASHINGTON, April 10, 2015 /PRNewswire-USNewswire/ -- On May 19, the National Organization for Rare Disorders (NORD)®, the nation's leading nonprofit organization dedicated to helping patients with

2015-03-05 23:03:15

Rare Genomics Institute (RGI) has announced BeHEARD challenge, a global competition to award rare diseases research to foundations, researchers, and patients groups.

2015-03-02 23:00:49

CHI partners with Achadjian for resolution to promote awareness of more than 7,000 rare diseases Sacramento, Calif.

2015-03-02 08:35:22

Progress May Also Hold Promise For Multiple Sclerosis, Type 1 Diabetes and Other Autoimmune Conditions LOS ANGELES, March 2, 2015 /PRNewswire/ -- Encouraged by new, targeted smart-drug

2015-02-27 23:19:09

With rich experience and many partners in the rare disease space, Discovery USA recognizes the impact and importance of the “rare,” and proudly joins rare disease patients, families, caregivers,


Word of the Day
sudarium
  • A handkerchief.
  • Specifically— The legendary sweat-cloth; the handkerchief of St. Veronica, according to tradition miraculously impressed with the mask of Christ; also, the napkin about Christ's head (Johu xx. 7).
  • In general, any miraculous portrait of Christ.
The word 'sudarium' comes from a Latin word meaning 'a handkerchief'.