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Latest Rare diseases Stories

2014-09-15 08:28:27

ANNAPOLIS, Md., Sept. 15, 2014 /PRNewswire/ -- The second annual International Plasma Awareness Week (IPAW) will be celebrated October 12-18. A joint initiative of the Plasma Protein Therapeutics Association (PPTA) and its member companies, IPAW is designed to: -- Raise global awareness about source plasma collection -- Recognize the contributions of plasma donors in saving and improving lives -- Increase understanding about lifesaving plasma protein therapies and...

2014-09-10 08:32:09

MELBOURNE, Australia, Sept. 10, 2014 /PRNewswire/ -- Global Kinetics Corporation, a leading mobile health technologies company, today announced that the U.S. Food and Drug Administration (FDA) has cleared the marketing of the company's Personal KinetiGraph(TM) (PKG(TM)) technology designed to improve the assessment and monitoring of symptoms of Parkinson's disease and other neurological disorders that affect movement. The Personal KinetiGraph is the first wrist-worn device approved in...

2014-09-10 08:25:38

CRANFORD, N.J., Sept. 10, 2014 /PRNewswire/ -- In light of the extensive issues facing patients and carers affected by rare disease, Atlantis Healthcare has published a white paper to educate the healthcare industry about their unmet needs, along with proven support approaches to address the challenges found in this important, yet often overlooked, area of care. Living with any chronic condition can be demanding, but rare diseases bring a unique set of obstacles for patients and...

2014-09-05 23:08:43

In her new role, Cyndi is poised to advance her goals of increased education, awareness, and fundraising for Multiple System Atrophy. With her doctorate in mathematics education from Columbia and experience in running her own non-profit, Cyndi is a stellar addition to the Coalition team. Howell, New Jersey (PRWEB) September 05, 2014 The Multiple System Atrophy Coalition, a growing nonprofit 501(c) 3 organization dedicated to serving patients, caregivers and families affected by the...

2014-09-04 08:29:45

PHILADELPHIA, Sept. 4, 2014 /PRNewswire/ -- By now, most people are familiar with the ALS ice bucket challenge that is sweeping the globe. But, what about the champagne challenge? This ALS fundraiser involves a partnership between the ALS Association Greater Philadelphia Chapter and Tendil & Lombardi Champagne. Prior to the countless Facebook videos of people dousing themselves with ice water, people and families living with ALS in the Philadelphia area were also using ice...

2014-09-03 23:07:25

iCare Financial and Project Main Street are working together to help ease the financial burden on victims with the terminal disease called Amyotrophic Lateral Sclerosis (ALS, also known as Lou Gehrig Disease). For each consumer plan processed through the iCare Financial Program, iCare will donate $1 towards Project Main Street’s mission. Atlanta, GA (PRWEB) September 03, 2014 In their newest campaign, iCare Financial and Project Main Street are working together to help ease the...

2014-08-29 23:09:18

Every Month Hands-On Physical Therapy Raises Money for an Important Cause: In September this Cause will be ALS Research and Awareness Astoria, New York, (PRWEB) August 29, 2014 ALS, more commonly referred to as Lou Gehrig’s disease, is a degenerative condition that damages the motor neurons in the brain and spinal cord. As the disease progresses more and more of the nerve cells controlling movement are harmed, which causes the sufferer to lose control of their motor functions....

2014-08-28 08:27:24

Study Results of Concurrent CCH Injections to Treat Two Dupuytren's Contracture Cords with Delayed Finger Extension Selected for Best Paper Session; Data Support Safe and Effective Use of CCH for Treatment of Two Affected Joints Concurrently CHESTERBROOK, Pa., Aug. 28, 2014 /PRNewswire/ -- Auxilium Pharmaceuticals, Inc. (NASDAQ: AUXL), a specialty biopharmaceutical company, today announced that data from trials evaluating the use of collagenase clostridium histolyticum (CCH) for treating two...

2014-08-26 23:01:08

Judi Hubbard has cared for numerous ALS patients in her career as a physical therapist and now it will be a labor of love for her husband Tom, who was diagnosed with the disease in 2012. Their Ice Bucket Challenge video inspired ACC to make a $2,500 donation to the ALS Association in support of the Inland Empire Walk to Defeat ALS. Orange County, California (PRWEB) August 26, 2014 American Career College faculty member Judi Hubbard, MSPT has enjoyed a successful career as a physical...

2014-08-26 16:27:49

WASHINGTON, Aug. 26, 2014 /PRNewswire-USNewswire/ -- As of Tuesday, August 26, The ALS Association has received $88.5 million in donations compared to $2.6 million during the same time period last year (July 29 to August 26). These donations have come from existing donors and 1.9 million new donors to The Association, which is incredibly grateful for this tremendous outpouring of support. http://photos.prnewswire.com/prnvar/20131211/MM32178LOGO ALS, also known as Lou Gehrig's...


Word of the Day
malpais
  • The ragged surface of a lava-flow.
'Malpais' translates from Spanish as 'bad land.'