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Latest Rare diseases Stories

2014-03-21 23:26:31

The conference offers physicians, nurses, and specialists an opportunity to understand more about identifying mitochondrial diseases, managing adults and children with mitochondrial disorders, and assisting patients with treatment options and coordinated care. Boston, MA (PRWEB) March 21, 2014 In an ongoing effort to improve mitochondrial disease patient care, MitoAction will host the 2014 Mitochondrial Disease Clinical Conference Boston on May 3, 2014 at Mandarin Oriental. This is...

2014-03-21 23:25:53

As part of its $219,000 initial multiple system atrophy research grant funding round, The MSA Coalition® has awarded $25,00 to Dr. Roy Freeman of Beth Israel Deaconess Medical Center for research to determine whether alpha-synuclein deposits are a valid biomarker for multiple system atrophy. Boston, MA (PRWEB) March 21, 2014 The Multiple System Atrophy Coalition has awarded a $25,000 grant to Dr. Roy Freeman of Beth Israel Deaconess Medical Center to carry out a pilot study to...

2014-03-19 23:32:15

Eduardo Benarroch, M.D. of the Mayo Clinic in Rochester, MN. Has been awarded a research grant for his project "Mechanisms of Excessive Daytime Sleepiness and Sleep Related Respiratory Dysfunction in MSA.” In January 2014, The MSA Coalition announced the funding of five MSA research grants for a total of $219,000. Richester, MN (PRWEB) March 19, 2014 The Multiple System Atrophy Coalition has awarded a $50,000 grant to Dr. Eduardo Benarroch of the Mayo Clinic Rochester for a new...

2014-03-18 23:29:58

The MSA Coalition announced in January 2014 the funding of five MSA research grants for a total of $219,000 including the project "Peripheral delivery of brain-targeted neurosin as a novel treatment for MSA". This pre-clinical proof-of-concept study in mice is being led by Eliezer Masliah, M.D. (University of California San Diego). San Diego, CA (PRWEB) March 18, 2014 The Multiple System Atrophy Coalition has awarded a $50,000 grant to Dr. Eliezer Masliah of the University of...

2014-03-17 23:24:53

The MSA Coalition® announced in January 2014 the funding of five MSA research grants for a total of $219,000 including the "Global MSA Registry & Study Group.” The project is being led by researchers from Austria and the USA and will facilitate future international MSA trial recruitment and promote sharing of anonymous patient information to identify the natural history of multiple system atrophy (MSA). New York, New York (PRWEB) March 17, 2014 The Multiple System Atrophy...

2014-03-17 00:23:41

FDA approves IND for clinical trial in ultra rare orphan mitochondrial disease MOUNTAIN VIEW, Calif., March 17, 2014 /PRNewswire/ -- Edison Pharmaceuticals today announced the initiation of a phase 2 study entitled "A Phase 2 Safety and Efficacy Study of EPI-743 (Vincerinone(TM)) in Children with Pearson Syndrome." The Investigative New Drug application (IND) was approved by the Food and Drug Administration, Office of Hematology and Oncology Products. The trial is a...

2014-03-10 16:32:46

BALTIMORE, Md., March 10, 2014 /PRNewswire-USNewswire/ -- With the opening of the 14(th) Annual Robert Packard Center for ALS Research Symposium, the Packard Center and The ALS Association are pleased to announce the first scientific grant award from the Winokur Family Research Initiative. The inaugural grant will help to fund a project under the direction on Phil Wong, Ph.D., a Professor of Pathology at Johns Hopkins University and Liam Chen, M.D., Ph.D., Assistant Professor of...

2014-03-06 23:00:58

Unforgettable entertainment provided by popular rock band Smash Mouth at superhero-themed event. San Diego (PRWEB) March 06, 2014 Guests attending the 9th annual BASH for Augie’s Quest on Friday, March 14 at the San Diego Marriott Marquis and Marina will use their “super powers” to raise funds to help speed lifesaving research seeking treatments and a cure for ALS (amyotrophic lateral sclerosis, or Lou Gehrig’s disease). The 2014 superhero-themed BASH, presented by the...

2014-03-04 14:06:51

New Keck School of Medicine of USC research finds vascular damage in mice with ALS contributes to early development of the neurodegenerative disease, while repairing damage delays disease progression Keck School of Medicine of USC neuroscientists have unlocked a piece of the puzzle in the fight against Lou Gehrig's disease, a debilitating neurological disorder that robs people of their motor skills. Their findings appear in the March 3, 2014, online edition of the Proceedings of the...

2014-02-28 12:27:25

WHIPPANY, N.J., Feb. 28, 2014 /PRNewswire/ -- Bayer HealthCare is joining the National Organization for Rare Disorders (NORD) and others in raising awareness of Rare Disease Day, which is being celebrated today around the world. (Photo: http://photos.prnewswire.com/prnh/20140228/NY74321 ) Rare Disease Day 2014 activities by Bayer will include participation in state government awareness events and employee engagement via the NORD "Handprints Across America" photo gallery. "While...


Word of the Day
vermicular
  • Like a worm in form or movement; vermiform; tortuous or sinuous; also, writhing or wriggling.
  • Like the track or trace of a worm; appearing as if worm-eaten; vermiculate.
  • Marked with fine, close-set, wavy or tortuous lines of color; vermiculated.
  • A form of rusticated masonry which is so wrought as to appear thickly indented with worm-tracks.
This word ultimately comes from the Latin 'vermis,' worm.
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