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Latest Rare diseases Stories

2014-04-29 23:14:57

The 5p- Society is joining with families around the globe that have been affected by Cri Du Chat, to send a message to the world.

2014-04-29 12:33:11

Patients respond to ALS diagnosis by forming for-profit investment fund targeting a marketable cure for their disease AMSTERDAM, April 29, 2014 /PRNewswire/ --

2014-04-29 08:36:49

GULF SHORES, Ala., April 29, 2014 /PRNewswire/ -- If successful, Neuralgene's (http://www.neuralgene.com) PRCN-323 treatment

2014-04-27 20:20:56

DUBLIN, April 28, 2014 /PRNewswire/ -- Research and Markets (http://www.researchandmarkets.com/research/nm24hh/global) has announced the addition of the "Global Amyotrophic

2014-04-25 16:22:41

Nationwide fundraising campaign to raise money for ALS research WASHINGTON, April 25, 2014 /PRNewswire-USNewswire/ -- Seventy-five years ago, on July 4, 1939, Lou Gehrig delivered

Genetic Legacy Of A Rare Brain Disorder Traced Back To The Ottoman Empire
2014-04-25 05:17:10

Scientists have detected a previously unknown neurodegenerative disorder stemming from a single mutation in one lone individual who lived approximately 16 generations ago during the days of the Ottoman Empire in Turkey.

2014-04-24 10:52:56

People diagnosed with Huntington's disease, most in their mid-thirties and forties, face a devastating prognosis: complete mental, physical, and behavioral decline within two decades.

2014-04-23 23:09:55

Combining inspiring stories from families, advice from top scientists and industry experts, the latest scientific developments in genomics and a parent’s toolkit with best practices, this book

2014-04-23 12:29:20

Unique Resource Now Available for Children of a Parent Diagnosed with FTD PHILADELPHIA, April 23, 2014 /PRNewswire-USNewswire/ -- Isolation, confusion and fear characterize the experience

2014-04-16 04:21:57

STOCKHOLM, April 16, 2014 /PRNewswire/ -- Wilson Therapeutics, a biopharmaceutical company, today announced that


Word of the Day
saggar
  • A ceramic container used inside a fuel-fired kiln to protect pots from the flame.
The word 'saggar' may come from 'safeguard'.
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