Latest Rare diseases Stories
The Multiple System Atrophy Coalition announces the debut of "My Hero - An MSA Angel Story," an inspiring video of courage and love at the Brain Health Fair during the annual American
Parion plans to initiate Phase 2 studies of P-1037 for the treatment of cystic fibrosis in the second half of 2014 DURHAM, N.C., April 30, 2014 /PRNewswire/ -- Parion Sciences, a company
The 5p- Society is joining with families around the globe that have been affected by Cri Du Chat, to send a message to the world.
Patients respond to ALS diagnosis by forming for-profit investment fund targeting a marketable cure for their disease AMSTERDAM, April 29, 2014 /PRNewswire/ --
GULF SHORES, Ala., April 29, 2014 /PRNewswire/ -- If successful, Neuralgene's (http://www.neuralgene.com) PRCN-323 treatment
DUBLIN, April 28, 2014 /PRNewswire/ -- Research and Markets (http://www.researchandmarkets.com/research/nm24hh/global) has announced the addition of the "Global Amyotrophic
Nationwide fundraising campaign to raise money for ALS research WASHINGTON, April 25, 2014 /PRNewswire-USNewswire/ -- Seventy-five years ago, on July 4, 1939, Lou Gehrig delivered
Scientists have detected a previously unknown neurodegenerative disorder stemming from a single mutation in one lone individual who lived approximately 16 generations ago during the days of the Ottoman Empire in Turkey.
People diagnosed with Huntington's disease, most in their mid-thirties and forties, face a devastating prognosis: complete mental, physical, and behavioral decline within two decades.
Combining inspiring stories from families, advice from top scientists and industry experts, the latest scientific developments in genomics and a parent’s toolkit with best practices, this book
- totally perplexed and mixed up.