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Latest Rare diseases Stories

2014-09-23 12:35:49

Employees and Families Raise Funds, Awareness at Annual Family Picnic WASHINGTON, Sept. 23, 2014 /PRNewswire/ -- MicroPact Inc., the global leader in Data-First(TM) Case Management and Business Process Management (BPM) software, is proud to do its part to help find a cure for ALS, commonly referred to as Lou Gehrig's disease, by taking part in the ALS Ice Bucket Challenge at the company's annual family picnic Sept. 6. Members of MicroPact's Senior Management Team joined dozens of...

2014-09-18 23:04:52

Beyond Batten Disease Foundation Delivers the Largest Investment in the History of Batten Research to Texas Children’s Hospital Houston, TX (PRWEB) September 18, 2014 No treatment. No cure. Fatal. That’s what the parents of six-year old Will Herndon of The Woodlands were told when their son was diagnosed with a disorder that strikes young, otherwise healthy children. Will, now eleven, is blind and the family is heartbroken, but driven to find a cure. They are speaking for the first...

2014-09-18 16:28:15

- Data suggest support for potential label expansion of XIAFLEX for Dupuytren's contracture to include treatment of two affected joints concurrently; PDUFA date is October 20, 2014 - LYNBROOK, N.Y., Sept. 18, 2014 /PRNewswire/ -- BioSpecifics Technologies Corp. (NASDAQ: BSTC), a biopharmaceutical company developing first in class collagenase-based products marketed as XIAFLEX(®) (collagenase clostridium histolyticum or CCH) in the U.S. and XIAPEX(®) in the EU, today announced that positive...

2014-09-18 08:28:56

Data Support CCH could be Used to Treat Two Affected Joints Concurrently; Positive Results Presented from Additional Studies Evaluating CCH Retreatment for Recurrent Contracture CHESTERBROOK, Pa., Sept. 18, 2014 /PRNewswire/ -- Auxilium Pharmaceuticals, Inc. (NASDAQ: AUXL), a specialty biopharmaceutical company, today announced the first presentation of positive safety and efficacy data from the AUX-CC-867 MULTICORD (MULtiple Treatment Investigation of Collagenase Optimizing the Resolution of...

2014-09-15 08:28:27

ANNAPOLIS, Md., Sept. 15, 2014 /PRNewswire/ -- The second annual International Plasma Awareness Week (IPAW) will be celebrated October 12-18. A joint initiative of the Plasma Protein Therapeutics Association (PPTA) and its member companies, IPAW is designed to: -- Raise global awareness about source plasma collection -- Recognize the contributions of plasma donors in saving and improving lives -- Increase understanding about lifesaving plasma protein therapies and...

2014-09-10 08:32:09

MELBOURNE, Australia, Sept. 10, 2014 /PRNewswire/ -- Global Kinetics Corporation, a leading mobile health technologies company, today announced that the U.S. Food and Drug Administration (FDA) has cleared the marketing of the company's Personal KinetiGraph(TM) (PKG(TM)) technology designed to improve the assessment and monitoring of symptoms of Parkinson's disease and other neurological disorders that affect movement. The Personal KinetiGraph is the first wrist-worn device approved in...

2014-09-10 08:25:38

CRANFORD, N.J., Sept. 10, 2014 /PRNewswire/ -- In light of the extensive issues facing patients and carers affected by rare disease, Atlantis Healthcare has published a white paper to educate the healthcare industry about their unmet needs, along with proven support approaches to address the challenges found in this important, yet often overlooked, area of care. Living with any chronic condition can be demanding, but rare diseases bring a unique set of obstacles for patients and...

2014-09-05 23:08:43

In her new role, Cyndi is poised to advance her goals of increased education, awareness, and fundraising for Multiple System Atrophy. With her doctorate in mathematics education from Columbia and experience in running her own non-profit, Cyndi is a stellar addition to the Coalition team. Howell, New Jersey (PRWEB) September 05, 2014 The Multiple System Atrophy Coalition, a growing nonprofit 501(c) 3 organization dedicated to serving patients, caregivers and families affected by the...

2014-09-04 08:29:45

PHILADELPHIA, Sept. 4, 2014 /PRNewswire/ -- By now, most people are familiar with the ALS ice bucket challenge that is sweeping the globe. But, what about the champagne challenge? This ALS fundraiser involves a partnership between the ALS Association Greater Philadelphia Chapter and Tendil & Lombardi Champagne. Prior to the countless Facebook videos of people dousing themselves with ice water, people and families living with ALS in the Philadelphia area were also using ice...

2014-09-03 23:07:25

iCare Financial and Project Main Street are working together to help ease the financial burden on victims with the terminal disease called Amyotrophic Lateral Sclerosis (ALS, also known as Lou Gehrig Disease). For each consumer plan processed through the iCare Financial Program, iCare will donate $1 towards Project Main Street’s mission. Atlanta, GA (PRWEB) September 03, 2014 In their newest campaign, iCare Financial and Project Main Street are working together to help ease the...


Word of the Day
bellycheer
  • Good cheer; viands.
  • To revel; to feast.
The word 'bellycheer' may come from 'belle cheer', "good cheer".
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