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Last updated on April 16, 2014 at 12:22 EDT

Latest Rare diseases Stories

2014-02-26 23:23:27

The owner of DiscountMedicalSupplies.com, a pioneering online medical superstore, takes the lead once again by speaking on behalf of an overlooked segment of caregivers on a fourth segment of The Balancing Act’s Caregiving 101 series. (PRWEB) February 26, 2014 In honor of Rare Disease Day on February 28th, Dr. Jon Segal, founder of DiscountMedicalSupplies.com, is speaking out about the challenges facing caregivers of people with rare diseases. This month he was featured in a four-part...

2014-02-26 20:22:09

Using ultrasound guidance for facial injection is highly effective in treating trigeminal neuralgia CHICAGO, Feb. 26, 2014 /PRNewswire-USNewswire/ -- Cold wind was the trigger to pain greater than Paula Fore could have ever imagined, an electrical-feeling jolt that appeared suddenly and without warning on the left side of her face. "This pain is real," said Paula Fore, 49, a beauty shop owner, amateur motorcycle racer and grandmother of three from Washington, Ill., who started...

2014-02-24 12:27:14

MIDLOTHIAN, Va., Feb. 24, 2014 /PRNewswire-USNewswire/ -- Patient Services, Inc. (PSI) will be joining the National Organization for Rare Disorders (NORD) and others around the world in observing Rare Disease Day on February 28, 2014. On this day, millions of patients and their families will share their stories to focus a spotlight on rare diseases as a global public health concern. http://photos.prnewswire.com/prnvar/20140224/DC70603LOGO "Everyone knows someone with a rare...

2014-02-24 08:27:24

PDUFA Date Scheduled for October 20, 2014 CHESTERBROOK, Pa., Feb. 24, 2014 /PRNewswire/ -- Auxilium Pharmaceuticals, Inc. (NASDAQ: AUXL), a fully integrated specialty biopharmaceutical company, today announced that the U.S. Food and Drug Administration (FDA) has accepted the Company's submission of a supplemental Biologics License Application (sBLA) requesting approval of XIAFLEX (collagenase clostridium histolyticum, or CCH) for the treatment of two Dupuytren's contracture (DC)...

2014-02-24 04:21:52

ALISO VIEJO, Calif., Feb. 24, 2014 /PRNewswire/ -- Global Genes (globalgenes.org), a leading patient advocacy organization representing the rare and genetic disease community, is once again inviting industry partners, patients, caregivers, family and friends of the tens of millions of people who suffer from rare and genetic diseases to Wear That You Care(TM) and support the seventh annual World Rare Disease Day on Friday, February 28, 2014. The Wear That You Care(TM) campaign was launched by...

2014-02-20 12:27:38

Former NBC Correspondent Robert Bazell to Give Keynote Address WHITE PLAINS, N.Y., Feb. 20, 2014 /PRNewswire-USNewswire/ -- In the spring of 2009, 57-year-old Anne Geremia of Princeton Junction, NJ, began to struggle with her responsibilities as a teacher. She had trouble planning her days, she was confused, she couldn't get to meetings on time. Then came the mini-breakdown, and she was asked to take a temporary leave of absence for the remainder of the school year. Anne saw several...

2014-02-19 08:32:39

LONDON, Feb. 19, 2014 /PRNewswire/ -- Reportbuyer.com just published a new market research report: EpiCast Report: Trigeminal Neuralgia - Epidemiology Forecast to 2022 EpiCast Report: Trigeminal Neuralgia - Epidemiology Forecast to 2022 Summary Trigeminal neuralgia, also called tic douloureux, is a chronic nerve disorder characterized by severe facial nerve. The condition is more common in women compared with men and most commonly affects people ages 50 years and older. Globally...

Canadian Study Discovers How Lou Gehrig's Disease Spreads
2014-02-19 08:57:05

Rebekah Eliason for redOrbit.com – Your Universe Online A new study from the University of British Columbia and Vancouver Coastal Health Research Institute has discovered how amyotrophic lateral sclerosis (ALS), commonly known as Lou Gehrig’s disease, spreads. This fatal neurodegenerative disease is transmitted from one cell to another, which provides hope that the disease can be blocked. ALS damages nerve cells located in the brain and the spinal cord. This causes the motor neurons...

2014-02-18 23:04:47

Rock stars, celebrity chefs, and rare disease advocates band together to FIGHT MSA, a rare and fatal neurodegenerative disorder. The Multiple System Atrophy Coalition and other MSA groups will be in attendance in a show of solidarity in support of “rock ‘n roll chef” Kerry Simon. Las Vegas, NV (PRWEB) February 18, 2014 A masterful list of superstars comes together for a spectacular fundraiser on February 27, 2014 to support multiple system atrophy (MSA) awareness. MSA is a rare and...

2014-02-16 23:03:37

ALSFight.com Will Provide the Resources and Support Victims of ALS Need to Improve Their Health and Continue Living Meaningful Lives New York, NY (PRWEB) February 16, 2014 ALSFight.com, the ALS start up service dedicated to helping patients who suffer from ALS find ways to manage and treat their disease, is pleased to announce that they have launched a campaign on Indiegogo.com to help them raise funds to create and design their web and mobile application. Amyotrophic Lateral Sclerosis...