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Last updated on April 17, 2014 at 1:21 EDT

Latest Rare diseases Stories

2013-11-20 08:29:19

Country's sole Leksell Gamma Knife system used in treatments of over 6,000 patients since 1993 MADRID, Nov. 20, 2013 /PRNewswire/ -- In 1993, Hospital Ruber Internacional became the world's 43(rd )Leksell Gamma Knife® center, treating its first patient - a 60-year-old female patient with a frontal meningioma - on August 23 of that year. Both the patient and the hospital's Radiosurgery and Functional Neurosurgery Unit are still going strong today. Operating Spain's only Gamma Knife...

2013-11-19 08:29:25

Non-Profit Leader Joins with Industry Innovator to Study Cancer Therapies for Devastating Brain Disease NEW YORK, Nov. 19, 2013 /PRNewswire/ -- Project A.L.S. today announced an agreement with Eli Lilly and Company aimed at helping to accelerate the development of potential therapies for the neurodegenerative disease amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease. As part of the agreement, Project A.L.S. will study molecules developed and studied...

2013-11-18 08:29:33

- Results showed comparable improvement in joint contracture and range of motion to single injection in previous studies - LYNBROOK, N.Y., Nov. 18, 2013 /PRNewswire/ -- BioSpecifics Technologies Corp. (NASDAQ: BSTC), a biopharmaceutical company developing first-in-class collagenase-based products marketed as XIAFLEX(® )(collagenase clostridium histolyticum or CCH) in the U.S. and XIAPEX(®) in the EU, today announced positive results from the open label, Phase IIIb MULTICORD...

2013-11-18 08:27:56

- Expects to submit supplemental Biologics License Application to the FDA in the first quarter of 2014 that supports potential labeling expansion for concurrent treatment of multiple palpable cords- CHESTERBROOK, Pa., Nov. 18, 2013 /PRNewswire/ -- Auxilium Pharmaceuticals, Inc. (NASDAQ: AUXL), a fully integrated specialty biopharmaceutical company, today announced the results of the MULTICORD (Multiple Treatment Investigation of Collagenase Optimizing the Resolution of Dupuytren's)...

2013-11-14 08:34:34

NEW YORK, Nov. 14, 2013 /PRNewswire-USNewswire/ -- 212 world renowned experts in Primary Immunodeficiency from 78 countries signed a "Berlin Declaration" calling for global implementation of newborn screening for Severe Combined Immunodeficiency (SCID), at the recently convened Berlin Summit organized by the Jeffrey Modell Foundation. http://photos.prnewswire.com/prnvar/20131114/MM16675-a The meeting brought together physicians from the Jeffrey Modell Centers Network (JMCN)...

2013-11-12 16:26:46

ROCKVILLE, Md., Nov. 12, 2013 /PRNewswire/ -- Neuralstem, Inc. (NYSE MKT: CUR) today reported financial results for the three months and nine months ended September 30, 2013 and provided a business and clinical update. (Logo: http://photos.prnewswire.com/prnh/20061221/DCTH007LOGO ) "The Company reached several major milestones in the third quarter. We completed patient dosing in our Phase Ib trial to treat major depressive disorder with NSI-189, our lead small molecule compound....

2013-11-07 23:34:52

UK researchers says mesothelioma patients who undergo minimally invasive VAT partial pleurectomy may have less trouble breathing and better quality-of-life than those who have talc pleurodesis. Raleigh, NC (PRWEB) November 07, 2013 In a 10-year study presented at the 15th World Conference on Lung Cancer in Sydney, Australia and detailed by Surviving Mesothelioma, UK researchers found a significant quality-of-life advantage among mesothelioma patients whose pleural effusion was treated...

2013-11-06 23:22:35

2014 Muscle Team Gala expected to raise more than $1 million. NEW YORK, (PRWEB) November 06, 2013 Metro New York's top pro athletes will join together to put their muscle behind finding treatments and cures for muscle disease at a special kickoff event for the 17th annual New York Muscle Team® Gala on Tuesday, Nov. 19, at 6 p.m. to benefit the Muscular Dystrophy Association. The kickoff event will take place at The Lighthouse at Chelsea Piers, Pier 61 (Hudson River and 23rd...

2013-11-06 23:00:37

People suffering from chronic hives, urticaria and angiodema can now opt for a natural way of curing these conditions, announces DailyGossip.org after reviewing the urticaria cure released by Dr Gary M. Levin. Denver, Colorado (PRWEB) November 06, 2013 According to a review published by Daily Gossip magazine on November 6, Dr Gary M. Levin has discovered a natural, homeopathic cure for hives (medically known as idiopathic urticaria) and angiodema. This approach was published in the...

2013-11-06 08:28:37

TARRYTOWN, N.Y. and COARSEGOLD, Calif., Nov. 6, 2013 /PRNewswire/ -- ARMGO Pharma and the Kennedy's Disease Association (KDA) today announced that a research grant has been awarded to support preclinical work on novel, orally available compounds that have potential as a novel treatment for Kennedy's Disease (also known as Spinal Bulbar Muscular Atrophy or SBMA). The project being advanced by ARMGO Pharma is focused on a novel class of small molecule drugs known as Rycals(®) which target the...